Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac & Epilepsy

tgrissom

By tgrissom
in Related Issues & Disorders

Recommended Posts

tgrissom Newbie
tgrissom
Posted

I had the symptoms of celiac (stomack pain, vomiting, diarrhea, etc) around puberty & didn't know what on earth it was. They all went away after a while, but then I started having complex-partial seizures around the age of 19. I was diagnosed w/ epilespy when I was 21. After my second pregnancy all the celiac symptoms returned. Finally, after a yr & a half of pain I was diagnosed w/ celiac disease. My question is whether or not the celiac is the cause of my epilepsy. My neurologist said he's never heard of celiac & epilepsy being related, but I've read differently on the web. Has anyone had any similiar experiances or know any information about a real relationship between these two diseases?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyberprof Enthusiast
cyberprof
Posted

I had the symptoms of celiac (stomack pain, vomiting, diarrhea, etc) around puberty & didn't know what on earth it was. They all went away after a while, but then I started having complex-partial seizures around the age of 19. I was diagnosed w/ epilespy when I was 21. After my second pregnancy all the celiac symptoms returned. Finally, after a yr & a half of pain I was diagnosed w/ celiac disease. My question is whether or not the celiac is the cause of my epilepsy. My neurologist said he's never heard of celiac & epilepsy being related, but I've read differently on the web. Has anyone had any similiar experiances or know any information about a real relationship between these two diseases?

Tgrissom, the best way to find information that medical professionals will accept is to use PubMed or other peer-reviewed medical journals: Most doctors work on true scientific findnings and will be more or less unhappy when presented with non-tested theories. (IMHO, they are prejudiced against patients who don't rely on medical research or who say "I read it on the internet".)

Here are articles to get you started:

Open Original Shared Link

Good luck!

Open Original Shared Link

Skylark Collaborator
Skylark
Posted

IMHO, they are prejudiced against patients who don't rely on medical research or who say "I read it on the internet".

Perhaps because any idiot with a Blogger account can claim expertise? ;)

I found another case study for you.

Open Original Shared Link

cyberprof Enthusiast
cyberprof
Posted

Perhaps because any idiot with a Blogger account can claim expertise? ;)

I found another case study for you.

Open Original Shared Link

Well, in my case I told my doctor that I thought I needed to be tested for Hashimoto's based on symptoms and she said "Don't belive everything you read on the internet. ... You just need to lose weight." And when I said that PubMed and my brother the doctor were big sources of my information, she ignored me.

Some doctors don't like patients to have control or input into their diagnoses or to have patients as participants in their own healthcare.

mushroom Proficient
mushroom
Posted

Some doctors don't like patients to have control or input into their diagnoses or to have patients as participants in their own healthcare.

Sad, but so true :( I am dealing with one of those now, too, and even worse, he feels threatened that I get some of my medical care in the U.S., and says, "Isn't it NICE that you have insurance in America?" :P I told him I worked many years for that, and I would have it here too if I could find anyone who would write it :blink:

Kamma Explorer
Kamma
Posted

In the past year, before going gluten free, I started to have seizure like episodes. These seemed to be brought on by a certain kind of flourescent lighting and sounds at a certain frequency. I read of the correlation between celiac and seizures as well.

The previous posters had great advice about printing off the research articles and taking them into your doctor.

Skylark Collaborator
Skylark
Posted

Well, in my case I told my doctor that I thought I needed to be tested for Hashimoto's based on symptoms and she said "Don't belive everything you read on the internet. ... You just need to lose weight." And when I said that PubMed and my brother the doctor were big sources of my information, she ignored me.

Some doctors don't like patients to have control or input into their diagnoses or to have patients as participants in their own healthcare.

The only people who have been unwilling to listen or work with me have been nurse practitioners and physician assistants. I do whatever I can to avoid them. Doctors with an M.D. or D.O. tend to have a lot of respect for my level of training because they have some idea what Ph.D. training entails. (It's always funny to watch a doctor's eyes bug out when they ask what I do. :lol:) It really bothers me that an equally smart self-taught person would have trouble getting respect from a doctor though.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,726
    • Most Online (within 30 mins)
      7,748
    smithsis
    Newest Member
    smithsis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Inconclusive results

      By Wends · Posted

      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Inconclusive results

      By Wends · Posted

      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.