Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Couldn't Tolerate Coffe But Now I Can?

Poppi

Recommended Posts

Poppi Enthusiast
Poppi
Posted

I am just shy of 11 months gluten free and one thing I noticed when I went gluten free was that coffee also made me feel awful. I would feel glutened for 2-3 hours complete with brain fog, sour stomach, big D, back ache and headache.

A few months ago I start experimenting a bit because I really, really miss coffee. I found that I could tolerate a decaf a couple times a week and be fine. So when I was out with friends I would occasionally indulge a decaf latte and feel okay. Sometimes I'd get a headache but no big deal.

This past week I have had a terrible head cold. This morning I found myself with a terrible Benadryl hangover and decided to go ahead and grab a cup of coffee. So I busted out the French Press and made a cup of medium strength regular caffienated coffee. It was amazing and I felt fine. I'm on my second cup of the day and I still feel fine. Great in fact! I probably won't sleep tonight as this is my first regular coffee in almost a year but I am enjoying it immensely.

Is this a result of my gut healing? I have noticed my gluten reaction changing as well. I accidentally glutened myself with the chicken feed last month and had horrible D which wasn't a normal symptom for me before. Healing gut = changing reactions?

Anyway, I'm just curious what the experts say.

For what it's worth, I can't ask my doctor about this because she refuses to acknowledge that I might have a gluten problem unless I do a gluten challenge/bloodwork/biopsy.

Edited because caffienated fingers can't spell.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eatmeat4good Enthusiast
eatmeat4good
Posted

Well congratulations!

I'm very happy for you!

I never gave up the coffee.

But yeah, I have read that you can get a gluten-like reaction from coffee..or some people have.

I skipped right over that part though, and probably made myself another cup of coffee.

I hope you can keep enjoying it. :)

IrishHeart Veteran
IrishHeart
Posted

A ravaged gut can't tolerate MOST things, including coffee. (My list of "nopes" was very long, and it has become shorter). I added back coffee last month, but decaf. Caffeine makes my heart race too much.

So, YES, I believe you are healing your gut and therefore, able to enjoy coffee once more! :)

Cheers!

Skylark Collaborator
Skylark
Posted

I had trouble with coffee when my stomach was all irritated from gluten. Now it's fine. It would have helped tremendously 20 years ago if my stupid doctor had told me to go off wheat rather than coffee when he diagnosed me with gastritis. :lol:

GFinDC Veteran
GFinDC
Posted

You probably will need to be on it for a couple weeks to find out if it affects you. Some things don't happen right away but build up over time. But you may be just fine too. We are all individuals and react as individuals. Personally I can't do caffeine of any kind but I never had the GI symptoms from it that you described. So we is different.

Kjas Newbie
Kjas
Posted

I had trouble with coffee and tea.

I've always been somewhat sensitive to caffeine but until my gut was screwed up I was never intolerant of it. I can handle a good quality decaf with both coffee and tea now, although I keep it to once a month. I'm still hoping I will be able to heal completely and go back to coffee even if it's on a one day a week basis at some stage.

dilettantesteph Collaborator
dilettantesteph
Posted

Coffee is hard on the stomach. It is probably because you are healed that you can drink it again. I gave it up at first and now can drink it too. It does bother me a bit when I am glutened, but I drink it anyway.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

I am just shy of 11 months gluten free and one thing I noticed when I went gluten free was that coffee also made me feel awful. I would feel glutened for 2-3 hours complete with brain fog, sour stomach, big D, back ache and headache.

A few months ago I start experimenting a bit because I really, really miss coffee. I found that I could tolerate a decaf a couple times a week and be fine. So when I was out with friends I would occasionally indulge a decaf latte and feel okay. Sometimes I'd get a headache but no big deal.

This past week I have had a terrible head cold. This morning I found myself with a terrible Benadryl hangover and decided to go ahead and grab a cup of coffee. So I busted out the French Press and made a cup of medium strength regular caffienated coffee. It was amazing and I felt fine. I'm on my second cup of the day and I still feel fine. Great in fact! I probably won't sleep tonight as this is my first regular coffee in almost a year but I am enjoying it immensely.

Is this a result of my gut healing? I have noticed my gluten reaction changing as well. I accidentally glutened myself with the chicken feed last month and had horrible D which wasn't a normal symptom for me before. Healing gut = changing reactions?

Anyway, I'm just curious what the experts say.

For what it's worth, I can't ask my doctor about this because she refuses to acknowledge that I might have a gluten problem unless I do a gluten challenge/bloodwork/biopsy.

Edited because caffienated fingers can't spell.

Yeah!

:D

GFinDC Veteran
GFinDC
Posted

Well, I opened my mouth and stuck my foot in again. I ended up drinking caffeine last night and survived. It doesn't usually cause me a problem unless I drink it for a week or so straight. Here's what I did, some of you may like this.

So I have been drinking herbal teas (caffeine free) for a while now. I took to keeping a kettle of hot water on the stove this winter. I got the idea of adding some cinnamon to the kettle water since they say it is good for blood sugar control. And some ginger because it can help digestion. Then yesterday I got the bright idea of adding some powdered Hershey's cocoa. Just a couple teaspoons. So I put a little stevia in my tea cup, a mint tea bag, and add the chocolate - ginger - cinnamon hot water from the kettle. Dang tasty stuff people! Not as rich as regular cocoa made with dairy, but I haven't had that in years due to avoiding milk. But tasty-tasty.

Then after a kettle of this tea and a refill noticed I was feeling kinda wired. Feeling better than I had in a while in fact. More energy. More alert. That caffeeiney feeling you get. Thought about it and remembered chocolate is supposed to have some caffeine in it.

So found this wise geek page talking about it. There is a little caffeine in chocolate, but much less then coffee or tea. So this might be something to try for people who like that sort of chocolatey, dairy-free, low caffeine hot drink stuff. You know who you are, no need to spell out names. I did get pretty buzzed before I realized what was happening so it is not without affect. Took me a while to get to sleep.

The cinnamon does leave a little grit in the bottom of the tea cup but I don't mind that . It is just ground up tree bark after all.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.