Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I A Mess?

Jetamio

Recommended Posts

Jetamio Apprentice
Jetamio
Posted

Hi everyone. I've been gluten free for a little over a week and being super careful. In the past, I've used soy milk from time to time as I can't have dairy. I usually opt for almond milk. Anyway, yesterday afternoon I went to an Asian restraurant with a friend and had a veggie steam bowl with rice and some gluten free sauce on the side. The inside of my mouth got sort of raw after - not sure if it was the spice or the soy and I still feel it today. I had a soy latte later - no syrup or anything - and ended up with really bad wind that has stayed yet today. Is it possible that I'm sensitive to soy? Or could it just be part of the healing? I plan on staying away from it for a bit but I wanted to see what you thought.

Everyone has been so helpful since I joined. Thank you so much :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Seifer Rookie
Seifer
Posted

I dunno but I've read nothing but bad stuff about soy, I would stay away from it, but I guess it's hard if you want to eat out at chinese, thai and the like. Basically I read there's estrogen and other bad stuff in soy, and that the soy protein is really sticky in your gut.

squirmingitch Veteran
squirmingitch
Posted

A lot of celiacs also have problems with soy. I am one of those. Bloating, gas. I quit soy & it went away.

mushroom Proficient
mushroom
Posted

Yes, soy is a problem also for many celiacs, me included. If you are looking for a soy sauce substitute, Whole Foods carries a product called Cocnut Secrets/Cocnut Aminos, which is very similar in flavor.

Jetamio Apprentice
Jetamio
Posted
  • Author

Thanks Mushroom - I will check that out. I have always tried to limit soy, even before all this happened but have some in "treats" since most places don't use almond milk. I might be noticing symptoms more now that I am feeling a bit better. I think I'll have to watch it more carefully now.

mushroom Proficient
mushroom
Posted

Thanks Mushroom - I will check that out. I have always tried to limit soy, even before all this happened but have some in "treats" since most places don't use almond milk. I might be noticing symptoms more now that I am feeling a bit better. I think I'll have to watch it more carefully now.

That happened to me! I had never gone out of my way to eat soy, but didn't check for it in things like salad dressings, etc. After gluten free when my body no longer had to fight that fight it turned its attention to soy with a vengeance, and I developed this huge bright red rash which tooke me quite a while to figure out. Turns out that a lot of gluten free foods have soy subbed in them - it does limit your choice of baked goods/flours if you avoid soy :unsure:

GottaSki Mentor
GottaSki
Posted

I had never removed Soy until my full elimination diet and boy what a reaction I got when I trialed a cup of soybeans! Here is my note from my food log 9/23/11:

"Major bloat - 8 months prego within 20 minutes of eating one cup soybeans - next day none had digested."

Hope that wasn't TMI -- hope no one is eating while reading this post ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams commented on Scott Adams's article in Latest Research
      3

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

      Your story is a testament to the critical importance of an early and accurate diagnosis. It's tough to read about what you had to endure, including multiple surgeries and hospitalizations, all while the root cause—celiac disease—remained undetected for so long. Your experience highlights the consequences of medical ignorance surrounding this condition and...
    2. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Guinness, can you drink it?

      This is why Daura Damm can be a sponsor here--at 3ppm or less it is gluten-free, and it's doubtful that anyone with celiac disease would ever have issues with such levels. Some people may be reacting to the yeast in the beer, but I seriously doubt that such beers could trigger elevated antibodies or villi damage--the science says such levels won't trigger...
    3. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      7

      Related issues

      I have to express some significant skepticism about the drclark cleansing programs you've mentioned. The claim that a specific, three-part parasite and organ cleanse is a universal solution for chronic health issues is a major red flag, as it oversimplifies the immense complexity of the human body and conditions like Celiac disease, which is an autoimmune...
    4. Donna Moxley
      - Donna Moxley commented on Scott Adams's article in Latest Research
      3

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

      I was not a well child and on my own would stop eating certain foods when a stomachache occurred. As I got older, I began more and more anemic and ended up unable to hold food down at all. Once an endoscopy occurred, doctor said I had an obstruction in my stomach but nothing said about Celiac Disease. Dr. did stomach bypass surgery, removed a 1/3 of my...
    5. Scott Adams
      0

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,277
    • Most Online (within 30 mins)
      7,748
    Michellesmitty
    Newest Member
    Michellesmitty
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This is why Daura Damm can be a sponsor here--at 3ppm or less it is gluten-free, and it's doubtful that anyone with celiac disease would ever have issues with such levels. Some people may be reacting to the yeast in the beer, but I seriously doubt that such beers could trigger elevated antibodies or villi damage--the science says such levels won't trigger celiac disease issues.  
    • Scott Adams
      Related issues

      By Scott Adams · Posted

      I have to express some significant skepticism about the drclark cleansing programs you've mentioned. The claim that a specific, three-part parasite and organ cleanse is a universal solution for chronic health issues is a major red flag, as it oversimplifies the immense complexity of the human body and conditions like Celiac disease, which is an autoimmune disorder, not a parasite infection. Regarding your Celiac disease, the reaction you describe, while real to you, does not necessarily confirm a diagnosis; a delayed reaction is common with various digestive issues, and a definitive diagnosis typically requires specific blood tests and an intestinal biopsy, not just a provider's acceptance of symptoms. Furthermore, your mention of approaching mayors seems to misunderstand the role of local government versus federal policy; the deduction for gluten-free food is a federal tax law, and a mayor has no jurisdiction to implement widespread Celiac screening, which is a medical and public health decision far beyond a municipal leader's purview. It sounds like you are navigating a difficult health journey, but I would strongly advise consulting with qualified medical specialists and registered dietitians over relying on unverified online cleansing programs.
    • cristiana
      Rectal pain

      By cristiana · Posted

      When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this.  I am not a medical person but it seemed like the extra pressure down there perhaps added pressure to already sensitised pelvic and rectal muscles. Coeliacs can suffer from bloating when they are first diagnosed due to the inability to digest food properly.  Lactose for me caused a lot of bloating and when I came off it temporarily after diagnosis it helped reduce bloating.  Iron supplements and the timing of taking them also caused discomfort and I had to experiment a bit with type and timing before my gut felt comfortable.   Maybe something to think about?   Some coeliacs suffer from constipation - again, just a thought, but perhaps if you had issues with that it might be a contributor.
    • Rogol72
      Guinness, can you drink it?

      By Rogol72 · Posted

      At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
    • Mari
      Related issues

      By Mari · Posted

      Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer  support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead are offering supplements for your symptoms. This has helped you but you are not able to work very much.  The Programs I have seen  online usually have 3 parts. The first is a Parasite cleanse. The 2nd is the Kidney cleanse and the  3rd is a Liver cleanse and gallbladder cleanse. You need to doall these cleanses to have your whole body functioning well. I can only reccommend the program I gave you because that is the one I used and still do. (drclark.net)  When I see a newprovider and tell I have Celiacs and they look skeptical I tell them that when I am gluttoned the reaction happens 8 or more hours later with intestinal painful cramping followed by diarrhea. Providers are willing to accept tha I probably have Celiacs and are more likely order tests such as vitamin levels. Is this what happens if you eat only a small amount of Gluten? You mentioned going to Mayors. 20 years ago many Dr.s wanted to include a celiac screening as a standard test so that more people eould diagnosed and not become disabled. It did not happen but the Federal levgislature did pass a law so that Celiacs could claim deductions for the gluten free food they bought. What were you going to ask the Mayors to do?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.