Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I A Mess?

Jetamio

Recommended Posts

Jetamio Apprentice
Jetamio
Posted

Hi everyone. I've been gluten free for a little over a week and being super careful. In the past, I've used soy milk from time to time as I can't have dairy. I usually opt for almond milk. Anyway, yesterday afternoon I went to an Asian restraurant with a friend and had a veggie steam bowl with rice and some gluten free sauce on the side. The inside of my mouth got sort of raw after - not sure if it was the spice or the soy and I still feel it today. I had a soy latte later - no syrup or anything - and ended up with really bad wind that has stayed yet today. Is it possible that I'm sensitive to soy? Or could it just be part of the healing? I plan on staying away from it for a bit but I wanted to see what you thought.

Everyone has been so helpful since I joined. Thank you so much :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Seifer Rookie
Seifer
Posted

I dunno but I've read nothing but bad stuff about soy, I would stay away from it, but I guess it's hard if you want to eat out at chinese, thai and the like. Basically I read there's estrogen and other bad stuff in soy, and that the soy protein is really sticky in your gut.

squirmingitch Veteran
squirmingitch
Posted

A lot of celiacs also have problems with soy. I am one of those. Bloating, gas. I quit soy & it went away.

mushroom Proficient
mushroom
Posted

Yes, soy is a problem also for many celiacs, me included. If you are looking for a soy sauce substitute, Whole Foods carries a product called Cocnut Secrets/Cocnut Aminos, which is very similar in flavor.

Jetamio Apprentice
Jetamio
Posted
  • Author

Thanks Mushroom - I will check that out. I have always tried to limit soy, even before all this happened but have some in "treats" since most places don't use almond milk. I might be noticing symptoms more now that I am feeling a bit better. I think I'll have to watch it more carefully now.

mushroom Proficient
mushroom
Posted

Thanks Mushroom - I will check that out. I have always tried to limit soy, even before all this happened but have some in "treats" since most places don't use almond milk. I might be noticing symptoms more now that I am feeling a bit better. I think I'll have to watch it more carefully now.

That happened to me! I had never gone out of my way to eat soy, but didn't check for it in things like salad dressings, etc. After gluten free when my body no longer had to fight that fight it turned its attention to soy with a vengeance, and I developed this huge bright red rash which tooke me quite a while to figure out. Turns out that a lot of gluten free foods have soy subbed in them - it does limit your choice of baked goods/flours if you avoid soy :unsure:

GottaSki Mentor
GottaSki
Posted

I had never removed Soy until my full elimination diet and boy what a reaction I got when I trialed a cup of soybeans! Here is my note from my food log 9/23/11:

"Major bloat - 8 months prego within 20 minutes of eating one cup soybeans - next day none had digested."

Hope that wasn't TMI -- hope no one is eating while reading this post ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,345
    • Most Online (within 30 mins)
      7,748
    Louise Sullivan
    Newest Member
    Louise Sullivan
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Gluten exposure when trying to conceive

      By trents · Posted

      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Gluten exposure when trying to conceive

      By Skydawg · Posted

      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      Gluten Free Cannabis Edibles

      By ShadowLoom · Posted

      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      Damage after 13 years gluten free

      By Scott Adams · Posted

      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Damage after 13 years gluten free

      By RMJ · Posted

      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...