Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What To Eat!? I'm Going Crazy :(


CeliacFashionista

Recommended Posts

CeliacFashionista Apprentice

I have been okay with eating gluten free but now I am trying to go on a low iodine diet to cure my DH. I need some type of candy that I CAN eat because this is driving me crazy!! I am almost to the point of suicide because of this disease and I don't think I can hold on much longer if things don't get better. Please someone help!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kim69 Apprentice

Whereabouts in the world are you? It looks like you are from USA from your use of the word candy. I have never heard of a low iodine diet do I googled it (and DH). I hope the lid helps you. I am sorry that you have to be on this diet. I found this website that says you can have dark chocolate, marshmallow, hard candy, jellies (tho according to the site I found no red dye is allowed), Popsicles. Could you make or buy a vegan gluten-free cake? I have made chocolate cake before that is gluten-free and vegan. The egg substitute powder would need checking. But apparently u can have cocoa at least :)

rosetapper23 Explorer

You can eat all See's candies except those that have hard frosting on them (like Easter eggs). That means everything in the display case is fine to eat. My favorite is the Butterscotch Square. Nestle's chocolate chips are gluten free as are Reese's Peanut Butter Cups, Hershey Bars, and a lot of Trader Joe's chocolates. Actually, there are quite a few candies we can eat. Do you like ice cream? Haagen Dazs (sp?), Breyer's, Dreyer's, Double Rainbow, Ben and Jerry's, and Baskin-Robbins are gluten free as long as they don't list wheat in them (such as Cookies and Cream).

If you're following a low-iodine diet, you only have to avoid iodized salt, salty snacks, seafood, dairy, and asparagus. Otherwise, you can eat practically everything else that is gluten free. However, I would avoid most processed foods. I suffer from DH, and candy has never really been an aggravating food. If you're feeling practically suicidal, I think chocolate is really needed in your life (lots of calming chemicals).

GottaSki Mentor

I am not familiar with the low iodine diet. Others have made suggestions for sweet treats, hopefully you can purchase some things to help get you through the rough patches of changing your diet.

Do you have someone to talk to regarding how tough your dietary changes / health problems have been on you which led to the statement about suicide? Sibling? Parent? Friend? Pastor/Priest? Counselor/Therapist?

If you are having suicidal thoughts, please, please talk to someone.

Metoo Enthusiast

My undiagnosed DH drove me nuts!

I didn't go totally iodine free, but I did things like strictly avoided eggs, and limited dairy. It definitly seemed to help, but it still took me over 5 weeks to get mine to stop having my skin peel off and hurt!

I also switched to all gluten free soaps, lotions and shampoos.

My 'gluten' reactions in terms of stomach stuff, or fatigue is nothing compared to what the little patch of skin on my hand does...it litterally drove me nuts and just continued to be painful and peel off skin down to raw flesh for over 5 weeks the last time I got glutened. The skin alone is what keeps me from eating gluten. I am terrified, nor do I know exactly how much gluten would make me break out again.

lovegrov Collaborator

If you truly have DH and it's truly driving you nuts, consider dapsone for a while (if you haven't tried it already). I know that the side effect warnings scare some but it's better than suicide. I took it for more than 20 years when DH was my only symptom and I didn't know about celiac.

richard

CeliacFashionista Apprentice

Thank you Guys so much for all your help! I was sent to the ER last because my eye has swollen up and they gave me prednisone to help with the swelling. Hopefully it will help the Dh as well. It sucks because I get the worst of it on my face and most doctors believe its just really bad cystic acne and aren't willing to treat it as anything else. Is prednisone unsafe to take for emergencies? I don't break out in DH daily but the scars are what bother me most. I really want to eat chocolate but I think dairy is the biggest trigger. Maybe I will try dark chocolate to see if thats better. Thank you again! I don't know what I would do without this forum.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,483
    • Most Online (within 30 mins)
      7,748

    AML2013
    Newest Member
    AML2013
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.