Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Hair Loss


alimore33

Recommended Posts

alimore33 Newbie

Hi everyone,

I'm new, my name is Ali. I'm waiting on blood tests but can see gluten is the culprit of my pain and suffering. My belly is no longer angry with me like before.

I have an array of symptoms but my main concern is hair loss. I wasnt sure if it was


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

First, you should be tested for thyroid problems (perhaps your doctors already have?), because an underactive or overactive thyroid can be a cause for hairloss, and many of us suffer from thyroid conditions.

However, if the hairloss is truly a result of nutritional deficiencies, you might consider taking a B complex vitamin that contains biotin, chelated zinc, and a silicon product called BioSil, which a number of us take on this Forum, which helps to regrow hair, nails, and connective tissues. Some folks on this forum take it for joint pain. I also take a bovine collagen product made by NeoCell that I buy at a healthfood store.

If this combination is helpful, you'll see 1/2 inch of hair growth within 4-5 weeks around your hairline.

alimore33 Newbie

Awesome thank you so much for your reply!

Cara in Boston Enthusiast

Right when I was getting tested, I noticed my hair was thinning at an alarming rate and I had a bald spot developing right at my temple where my part ended. After testing and going gluten free, my other symptoms started going away (GI issues, headaches, joint aches, fogginess, etc.) immediately but the hair loss continued. It wasn't until about 3 months that I noticed my sink wasn't full of hair after I brushed it. Now, after almost a year, the hair at my temple is clearly growing back - it is almost two inches long and I never have the big clumps of hair in the shower drain or sink like I did right before being diagnosed. It can take a while. Don't give up.

Cara

Bubba's Mom Enthusiast

I second the thyroid test opinion. Thyroid issues and Celiac/gluten intolerance seem to go together quite often.

I had hair loss at an alarming rate too. :o I didn't get bald spots..just an overall thinning. My thyroid test was normal. In my case it was a lack of nutrition due to damage in my intestine. I now take a good B complex vitamin. Biotin is specific for hair growth.

It takes time to heal, even if you take supplements, so don't get discouraged if you don't see a change over night. It should get better once you're on the path to healing.

orange Newbie

Ali ,

first of all keep faith that u are on right track and being celiac we have no other option .

well i didnot had hair loss but my hair were weak and grey almost close to whiteish silver but on gluten free for 4 mon they look healthy and changing to blackish silver and patches looks very much black , so lets hope down track this problem of yours will get better . give time to recovery .

good luck

Hi everyone,

I'm new, my name is Ali. I'm waiting on blood tests but can see gluten is the culprit of my pain and suffering. My belly is no longer angry with me like before.

I have an array of symptoms but my main concern is hair loss. I wasnt sure if it was – stress, or that I colored my hair twice in 2 weeks, drastic diet change, or Fibromyalgia (I've had since 2006).

Osteopath & Dr mentioned gluten intolerance,and it explains hair loss, bladder problems, hip pain, constipation, acne, and skin rashes, abdominal discomfort and even fatigue and joint pain, which actually makes me think I don't have Fibromyalgia at all but Celiac.

Anyway, I'm on day 8 of a gluten-free diet. But hair loss persists, every day I see hair loss, some days it's more aggressive than others. Its quite alarming, especially because I'm only 32 and other than feeling like I got hit by a bus, I'm ok and in a good mood.

How long after a gluten-free diet does it take for hair loss to cease? Do you mind sharing your experiences? Did you experience hair loss and what did you do to slow it down?

I would appreciate any information you can give me. Thanks so much for your experiences and for this site.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,561
    • Most Online (within 30 mins)
      7,748

    Valentino
    Newest Member
    Valentino
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
    • knitty kitty
      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.