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Going Downhill Fast


bartfull

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kareng Grand Master

Holy cow! I'm crying again. But this time it's because I found out my friends are organizing a fundraiser so I can get that MRI. I feel TERRIBLE about taking charity - I've always been one to give charity, not recieve it. But I feel wonderful knowing that my friends care about me so much. And it WILL be good to finally find out what this is - even if it turns out to be cancer. At least I'll know.

That's so nice about your friends!

If you are paying cash for the MRI, you might be able to get it cheaper. Someone paying at the time of service costs the hospital less than billing insurance companies or managing people making payments.

Keep trying to eat the things that aren't your worst foods. Not eating just makes you feel worse & messes up your digestion more.


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Jestgar Rising Star

Holy cow! I'm crying again. But this time it's because I found out my friends are organizing a fundraiser so I can get that MRI. I feel TERRIBLE about taking charity -

It's not charity when it's from your friends. That's called love. :)

bartfull Rising Star

And oh, how I love them all back! As crummy as I feel, I think I am the luckiest person in the world!

UKGail Rookie

Bartfull - just wanting to send my best wishes, and hope that you can get through this soon. I'm thrilled that your friends are helping you with the doctor's fees.

lynnelise Apprentice

I hope you are able to get your MRI asap! You are so lucky to have such good friends! Don't hesitate to let them help! I know if I had a sick friend I would want to be able to ease their burden! Keep us posted!

cmoore Apprentice

"Candida" perhaps. Candida overgrowth can cause a countless number of issues including food intolerance's. I would research that as well.

This sums up what I have read myself .... I say this as I reel from my own issues and Im trying to sort it all out myself.

Gluten intolerance and issues with Candida can overlap and be devastating, unless your aware of BOTH and actively address both problems.

For what its worth.

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      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
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    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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