Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Spring Break Kids Camp: Do I Laugh Or Cry?!


mamaupupup

Recommended Posts

mamaupupup Contributor

So, I signed the girls up for our Natural History Museum spring break camp months ago. Here's a description:

Yucky Madness: Let's go hunting for yuckies at the Museum and study the slippery, the slimy, and the messy. Explore the yuckies found in the human body and in animals. Experiment in making yucky mayhem and participate in the Great Loogie Contest. Hunt for scat, slimy snails, and wiggly worms. Participate in a snail race. Build an earthworm habitat and a composting bin. Watch as earthworms eat our trash and change it to earthly treasure!

I called and emailed the education coordinator to confirm she knows both girls are Celiac and my expectations for how to keep them safe. Here's the quite nice, accomodating and shocking email I received back:

"I have received your phone call. I will share with you what is planned for the camp so we can make adjustments. Please let me know what we can substitute.

Monday: There is a tasting activity which we will need to make an adjustment. We will have flour, oatmeal, cocoa powder(poop making); gelatin, applesauce, raisin bran, shredded wheat (vomit-making). Will latex gloves suffice to protect them from touching starchy foods? I can substitute with gluten free materials (flour) for your girls.

Tuesday: Exploring the (all five ) senses. With respect to tasting (salt (pretzels, which we will NOT give to the girls), lemons, semi-sweet and dark chocolate) we can incorporate other campers


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I guess I'm not sure what you are shocked about? The description says pretty clearly, to me, that they will be doing age appropriate " yucky" stuff. I immediately thought they would make some sorts of edible worms or mud, etc.

She sounds like she wants to accomadate the kids. She's probably worked with kids with allergies before and just wants the OK for everything she gives the kids. She could just say " This is what the class is" and not tried to work with you. It will definitely make it harder for the instructors.

If the class isn't appropriate for your kids, don't send them.

Roda Rising Star

I'm a little confused if you are shocked that they want to help accomodate you or shocked at what the class is.

Sounds like a great class and my boys would love every minute. From the response you got it sounds like the instructor is willing to make the experience work for your girls. Since she is willing, contact her to make alternatives for the kids. If it was me and I had the willingness the instructor seems to show, I would send my boys.

mamaupupup Contributor

:) Thanks! Yes, I'm VERY thankful she is so accommodating. Shocked it had anything to do with food! Laughing because all the gluten items really could make someone with Celiac sick, vomit, poop! It's ironic!

I offered to pay for all supplies to be gluten free for all kids. We have a call in the morning to see what we'll do!

Darn210 Enthusiast

I hope that you can get it all worked out. It sounds like a great class for the kids.

Kudos to the director for being so accomodating.

Mizzo Enthusiast

Once we found out about Celiac we noticed everything has food involved. LOL

Minette Contributor

It sounds like a fun week, but it is amazing how they managed to have something involving food (or poop) on EVERY day except Friday. Of all those things, the worms on Friday would worry me the least!

This sentence especially made me laugh:

Can the girls handle Harry Potter jelly beans? Snails? Borax and (Elmers

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaupupup Contributor

:) I am so pleased with the educators there! They are switching everything out for one group to be totally gluten free! What a treat!

And, yes, I love the worm day!!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Nancy N Rosen
    Newest Member
    Nancy N Rosen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.