Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Almost A Year On Diet And No Results


eazyeazy

Recommended Posts

T.H. Community Regular

So sorry to hear that you are having such a tough time!

For your current diet, do you always eat the same brand of food, or source from the same farm? If you do, how well do you do if you try another brand or farm source for your apples/chickens/eggs and so on?

For the other foods that you have tried, have you tried multiple sources/brands, or only one?

I ask because something I've run across is reactions to common additions TO the foods that I was eating. I was down to a <10 foods diet, as well, and it took forever for me to figure some of it out (still not there all the way). A coating that is on most citrus. An anti-bacterial wash commonly used on types of meat. A pesticide (organic or conventional) used on the produce.

If you can eat multiple brands of all your safe foods, that's often a good clue that it's the food itself which is good for you. Or in other words, it's not an additive or contamination that you are avoiding by eating that food.

If some brands of your safe food make you sick, then it can be a good clue that there is something being added to food or coming into contact with it that is making you sick. Now, you'd need to check this with your 'bad' foods too, because some additives or cc risks are only associated with certain foods, yeah?

If you can find sources of veggies/fruit, maybe at a farmer's market, where you can know what the produce does and doesn't come into contact with, it might at least help you narrow down the problem so you can know for certain if it is the produce itself that is the issue or if it's something else contacting it.

Meats, grains, and beans are often more of a challenge, but can still be done.

One thing that has also helped me with my health detective moments has been to start a garden, without soil additions, and try to grow a food I wanted to add to the diet. If, grown in my own yard with native soil and no additions, I can eat it and be safe, then great. If it makes me sick, then it is something inherent in that item that makes me sick, like the food itself, high fructose levels, salicylates, whatever.

Another issue you may be experiencing right now is vitamin deficiencies, as I think a few have already said. Aside from feeling crummy and general overall health, this can also affect how you react to foods. As an example, if you don't get enough molybdenum (or aren't absorbing it), you don't make something called molybdenum cofactor, which is needed to create certain enzymes. One of these enzymes (sulfite oxidase) is used to change sulfites to sulfates in the body, and is also part of the pathway to get sulfur eventually changed to sulfate. In this case, sulfited food plus grapes, onions, garlic, cabbages, many meats (and tons of other foods) and even some bottled waters would make you react.

Good luck to you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eazyeazy Rookie

beachbirdie:

Do you mean the blood test for antibodies of celiac disease? If so I had them and they were negative (two times)

I also did the Igm, IgG for allergies or something they were also good. I only had one biopsy this was an experience I don't really want to repeat again...

cavernio: that sounds reasonable, although I'm not really sure how i can test for candida. On the other hand I

m still on "candida-free-alike-diet". I'm taking multivitamin but without much effect. What can you recommend in this case?

And after eating dairy my head gets heavy and I don't feel well.

T.H:

Mostly same brand. But for apples I just go to the local shop and I have no idea where they really come from, same with chickens and meat.

Are you eating any supplements? I'm currently trying digestive enzymes but without much luck. Anyway this "brand" thing seems interesting. Too bad this all eco-food is so expensive.

Thank you all for the support! you are great!

  • 3 months later...
eazyeazy Rookie

This month I was only eating chicken and watermelon and I still don't feel good. I think I'm missing something big time because with all this gluten-free diet I should have results already :(

ravenwoodglass Mentor

This month I was only eating chicken and watermelon and I still don't feel good. I think I'm missing something big time because with all this gluten-free diet I should have results already :(

If all your eating is chicken and watermelon I am not surprised you aren't feeling good. Can you add maybe some potatoes or rice and some other fruits and veggies in?

eazyeazy Rookie

If all your eating is chicken and watermelon I am not surprised you aren't feeling good. Can you add maybe some potatoes or rice and some other fruits and veggies in?

Well I did it especially to test if I'm being glutened or something. I feel even worse when I add potatoes and rice. Eating gluten free sweets for example = bad stomach pain and toilet mode.

dilettantesteph Collaborator

I have seen several posts about people having problems with chicken:

Maybe you'd be better off with beef?

I agree with the previous poster that a bit more variety would be a good idea.

Jestgar Rising Star

I didn't check out Steph's chicken links, so she may have covered this, but you could also look around for local egg producers who cull their chickens periodically. Maybe find one who's practices you approve of and buy chicken from them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

    3. - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

    4. - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

    5. - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,369
    • Most Online (within 30 mins)
      7,748

    Nick H.
    Newest Member
    Nick H.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...