Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Allergy Or Intolerance?


stef-the-kicking-cuty

Recommended Posts

stef-the-kicking-cuty Enthusiast

I know, I'm not here very often, but the people who are here longer should still know me. I have a "new" problem now as it seems and was hoping to find somebody with similar experiences. Since I have to leave for my pm run in about 10 minutes I haven't read any of the posts yet, I'll do that later tonight. OK, here it goes: As most of the older people know, I was diagnosed for celiac and went glutenfree 07/21/04. It's been almost 10 years now and though I've had initial problems with accidental glutening in the beginning, I can say to 100% that I'm glutenfree now. I didn't really change anything in my diet, other than in my drinks. In 2004 I used to be lactose intolerant initially, but that disappeared about 6 months into the glutenfree diet. With my new job in September I started to make peppermint tea from Bigeloq and bottled it in empty water bottles, put stevia in, which is glutenfree and took it with me to work. Sometimes in December I once forgot my tea and started drinking the Maxwell office coffee with that powdery milk stuff in it and stevia. The powdered milk stuff with vanilla flavor is gluten- as well as lactose free. Well, needless to say, I got addicted to that stuff, but that was around the time, when my gluten initiated pain came back, with the difference that I didn't have any gluten. Now it's even there, when I don't drink the coffee over the weekend. I took lactose tabs, but there was just a little pain relief. What can this be? Am I going nuts? Can you be allergic to coffee? What's going on? Anybody with the same experiences?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Maggie Mermaid Apprentice

Well, my husband's allergy tests showed that he is highly allergic or intolerant to caffeine. I had never heard of that before his test results. He's avoided caffeine since as well as a myriad of other foods so it's not clear how the caffeine affects him. His skin conditions are/were the indicator for the gluten intolerance.

Personally, my stomach does not tolerate the powdered or fake liquid creamers so I've had to avoid them.

Best of luck on figuring it out.

burdee Enthusiast

I know, I'm not here very often, but the people who are here longer should still know me. I have a "new" problem now as it seems and was hoping to find somebody with similar experiences. Since I have to leave for my pm run in about 10 minutes I haven't read any of the posts yet, I'll do that later tonight. OK, here it goes: As most of the older people know, I was diagnosed for celiac and went glutenfree 07/21/04. It's been almost 10 years now and though I've had initial problems with accidental glutening in the beginning, I can say to 100% that I'm glutenfree now. I didn't really change anything in my diet, other than in my drinks. In 2004 I used to be lactose intolerant initially, but that disappeared about 6 months into the glutenfree diet. With my new job in September I started to make peppermint tea from Bigeloq and bottled it in empty water bottles, put stevia in, which is glutenfree and took it with me to work. Sometimes in December I once forgot my tea and started drinking the Maxwell office coffee with that powdery milk stuff in it and stevia. The powdered milk stuff with vanilla flavor is gluten- as well as lactose free. Well, needless to say, I got addicted to that stuff, but that was around the time, when my gluten initiated pain came back, with the difference that I didn't have any gluten. Now it's even there, when I don't drink the coffee over the weekend. I took lactose tabs, but there was just a little pain relief. What can this be? Am I going nuts? Can you be allergic to coffee? What's going on? Anybody with the same experiences?

You could have delayed reaction (IgA or IgG mediated) allergies to almost anything, including herbs and spices. I have an IgG allergy to vanilla and nutmeg (as well as gluten, dairy, soy, egg and cane sugar). I was dx'd with celiac disease and went gluten free the same year you did. I'd had celiac (gastro) symptoms for most of my adult life, but I wasn't d'xd until age 56. Over the next2 years I was dx'd with thse 6 other allergens.

Many people who think they have lactose intolerance actually have allergy to dairy ingredients (casein and/or whey). Try eliminating anything you suspect an see how you feel.

stef-the-kicking-cuty Enthusiast

Tanks for your responses. I'm going to have a journal for an exclusion diet for a while and see how that goes. Birder, I remember you from back when. We actually talked quite often.

Lisa Mentor

Tanks for your responses. I'm going to have a journal for an exclusion diet for a while and see how that goes. Birder, I remember you from back when. We actually talked quite often.

Hey Stef and baby Luke...how about some pictures? B)

GFinDC Veteran

Elimination is the trick. It is almost certainly something you added to your diet at some point. I have problems with caffeine so I don;t doubt that could be a culprit. But it really could be anything at all causing a reaction. Your food diary should help identify the cause though. You can test for caffeine by trying different kinds of beverages. Like tea or yerba mata. They both have ccffeine but are not coffee. So if it is coffee itself but not caffeine you could still imbibe. I suppose decaf coffee would be just as good a test for that matter.

dilettantesteph Collaborator

I'd get rid of that stuff you got addicted to. That was when you noticed a change. I think that you know it yourself, you just don't want to admit it. It may take a week or two to notice a difference. Hopefully you will.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



stef-the-kicking-cuty Enthusiast

OK, I'm 3 days off of that coffee now and the pain, albeit still there every once in a while, got noticeably less. I will keep this up another week or two and then drink a cup and see what happens.

GFinDC Veteran

Good, sounds like you are close to solving the riddle!

Juliebove Rising Star

My last intolerance test showed that I am intolerant to green coffee beans. Whether or not that means I can drink roasted coffee beans I do not know. I just don't drink coffee to begin with so I guess I never will. I did drink it many years ago. I don't know if it was a problem or not.

But you can be allergic to anything!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,900
    • Most Online (within 30 mins)
      7,748

    tessycork47
    Newest Member
    tessycork47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.