Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Problems Tolerating Lactaid Tablet?


mamaupupup

Recommended Posts

mamaupupup Contributor

Hi all,

Quick question for the lactose-free crowd...has anyone had problems tolerating the Lactaid tablet itself? Our twin who is Celiac and has an incredibly low lactase score seems to be having more stomach pains taking the Lactaid tablet and eating dairy. In fact, she has twice thrown up after the combo of Lactaid tablet and ice cream.

Our plan is to go with lactose free milk/ice creams, etc for now. We are considering taking her off dairy for some time, although we aren't sure what the boundaries are in terms of how to define dairy...etc.

Any thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

You are talking a child so this might not apply. I could not eat dairy and I did try to lactose enzymes. I found the one that you take prior to eating dairy simply did not work for me. The one that you took daily did as long as I took 2 a day. Is it possible to

hat it is not the lactose supplement that is making her sick but that it is not enough and it is causing hr to be sick from dairy?

ravenwoodglass Mentor

It is possible that she is reacting to casien and if that is the case lactaid tablets would not help. You may want to drop all dairy for a bit, watch out for casien on labels of 'dairy free' items, and see if that helps.

GFinDC Veteran

Make sure the lactaid tablets are gluten-free. Not all of them are.

tom Contributor

I don't think she's throwing up from the tablet.

If I were her I'd want to try true dairy-free for a couple weeks at a minimum. (Somehow casein can be in things called non-dairy :wacko: like powdered coffee non-dairy creamer)

Also, it could make sense if an "incredibly low lactase score" correlates to more villi damage indicating a more advanced case which could have a higher probability of celiac-related casein issues. Just spitballin' here.

I don't bet on much, but I'd bet she wouldn't've thrown up if she had the tablet w/out the ice cream.

mamaupupup Contributor

Thanks Tom!

Yes, I could do the test "Here's a tablet, let's see how you do!"

And, yes, we are about to go dairy free. Newbie question: is there a difference between dairy free and casein free?

And, here are her disaccharidase scores as background:

Lactase 2.2 Abnormal <15

Sucrase 13.4 Abnormal <25

Maltase 56.8 Abnormal <100

Palatinase 2.2 Abnormal <5

Thanks for the help and input!

BTW, this is a kiddo who has vomited a total of 5x in her entire life (she's 5.5) so I'm especially eager to figure it out!

mamaupupup Contributor

I just dug up my daughter's allergy testing: her Casein IgE came back negative. Does that mean she is not casein intolerant?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ninja Contributor

IgE testing does not test for intolerances. The IgE antibodies are involved in "true" allergies (histamine response(s)

mamaupupup Contributor

Thanks Laura--that's a BIG help!

I "tested" my little Lactaid puker today...I took her to McDonald's for a vanilla milkshake and didn't give her a Lactaid tablet. No vomit. Hmmm. No belly ache, no bloating, crazy!

Not sure I'm going to test the Lactaid tablet only...I'd have to be out in the backyard with her for an afternoon to be prepped for that one!

runnergirl88 Newbie

I know a few people who have become immune to the lactaid pill, but have found great constant relief from something called Digestive Advantage Lactose Defense Formula. I am lactose intolerant as well and found these work nicely and are much more convenient.My friend suffers from sever lactose intolerant and he swears by it!

Hope this helps! I attached a link to show you what it looks like:

Open Original Shared Link

Stay strong! Feel better :D

tom Contributor

I know a few people who have become immune to the lactaid pill, but have found great constant relief from something called Digestive Advantage Lactose Defense Formula.

...

Open Original Shared Link

Curious about this & the phrase "become immune to the lactaid pill", I clicked the link. The pill is just lactase & a probiotic.

Most ppl w/ digestive issues should think about taking probiotics - or already be taking them, imho - whether lactose intolerant or not.

P.S. Thought it strange that the label http://www.digestiveadvantage.com/images/suppfacts-da-ldf.gif says "Contains Soy", though no ingredient looks suspect to this 5-yrs-soyfree celiac. Are they making maltodextrin from soy now?

Ninja Contributor

Thanks Laura--that's a BIG help!

I "tested" my little Lactaid puker today...I took her to McDonald's for a vanilla milkshake and didn't give her a Lactaid tablet. No vomit. Hmmm. No belly ache, no bloating, crazy!

Not sure I'm going to test the Lactaid tablet only...I'd have to be out in the backyard with her for an afternoon to be prepped for that one!

No problem!

Well that's good that she didn't have a negative reaction

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,869
    • Most Online (within 30 mins)
      7,748

    Chaoticcrud
    Newest Member
    Chaoticcrud
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      As I suspected, xanthan gum is one of the ingredients. It is a polysaccharide used as a texturing agent in many gluten-free products. It's hard to digest and causes distress for many celiacs. I can't say for sure if that was the problem but you might be on the lookout for it in the future. Muscle spasms can be caused by magnesium deficiency. Are you taking any vitamin and mineral supplements? I mean some things more potent than a multivitamin?
    • Wheatwacked
      Hello @Suze046 In the western world 40 to 60 percent are low or deficient in Vitamin D.  Malabsorption from Celiac Disease, avoidance of UV from the sun and seasonal variations can result in low vitamin D.  A simple 25(OH)D test will tell you your status.  Low vitamin D affects immune system, bone health, mental health.  I keep mine around 80 ng/ml (200 nmol/L). Choline has many functions in our body.  From the neurotransmitter Acetylcholine to fat digestion.  It is made by our bodies but in insufficient amount.  The major dietary source is from beef and eggs.  The RDA is 500 mg a day.  That would be equivelant to 3 eggs or 10 cups of cooked brocolli a day.  Choline is a significant portion of biliary phospholipids and is a crucial element for bile function.n.  I found taking Phosphatidly Choline capsules helps.  A homocysteine test can be indicative of choline deficiency.  Could we be overlooking a potential choline crisis in the United Kingdom? NIH Choline Fact Sheet Vitamin D Is Not as Toxic as Was Once Thought
    • annamarie6655
      @trents thank you so much for your response!  When i was diagnosed, I was exhibiting mainly joint pain, hair loss, bloating, and allodynia (painful feeling from non painful stimuli). The muscle spasms only started after diagnosis, and it seems to only happen when I am severely glutened. It’s only happened twice, but it definitely makes me nervous when it happens.    In regard to the pizza, thats what i saw after i got sick from it. I’m still trying to figure out how to switch to ALL certified gluten-free goods.    for the dressing, here is the ingredient list:  WATER, VEGETABLE OIL, VINEGAR, SUGAR, GARLIC, SALT, RED BELL PEPPER, ONION, CONCENTRATED LEMON JUICE, XANTHAN GUM, POTASSIUM SORBATE, HERBS, CALCIUM DISODIUM EDTA, MONOACETIN, SPICES. and the link: https://www.kraftheinz.com/en-CA/kraft/products/00068100903577-zesty-italian-salad-dressing  
    • trents
      Welcome to the forum, @annamarie6655! Are the muscle spasms and joint aches a new pattern of reaction to gluten or have you experienced these in the past? Concerning DeGiorno's "gluten-free" pizza, we have had many reports from celiac.com members of gluten reactions from consuming this product. I believe it is one of those "gluten-free" products that is made from wheat (speaking of the crust component) that has been processed in such a way as to remove most of the gluten. The FDA regs allow food companies to use the claim "gluten-free" as long as the product contains no more than 20ppm of gluten. This works for most celiacs but not for those on the more sensitive end of the spectrum. There is another industry standard known as "Certified Gluten-Free" that is stricter, requiring no more than 10ppm of gluten. Certified Gluten-Free products use the "GFCO" logo. Concerning the salad dressing, could you list the ingredients in another post or link it? There are certain other ingredients besides gluten commonly used in gluten-free manufactured food items to give them acceptable textures that give a lot of celiacs problems. 
    • annamarie6655
      Hello, so I was diagnosed with Celiacs about 8 months ago. After being diagnosed, I have been trying very hard to maintain a completely gluten-free (and celiac safe) diet.  Two of the main times I had a huge reaction, it was from: - gluten-free Digiorno Pizza w Pepperoni - Kraft Zesty Italian Dressing (this was in canada if that changes anything) Both are marked as gluten-free. Following eating these items, I had a severe bout of diarrhea, uncontrollable and heavy muscle spasms throughout my whole body, and aching throughout every joint.   If these are both gluten-free, why would I be reacting to them? Should I be worried about a separate allergy?  In regards to the muscle spasms, should I follow up with someone about that?
×
×
  • Create New...