Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cannot Cope Anymore, Physically Or Mentally.

charlotte-hall

Recommended Posts

charlotte-hall Apprentice
charlotte-hall
Posted

6 months of feeling ill, every single day. Nausea, tiredness, swollen throat, stomach pain, generally feeling rubbish. Missing loads of school and exams..

It's starting to effect me a lot now, I just feel like there's is no point in life anymore..just getting up to feel ill.

After 4 months gluten free still have a TTG level of 229 (normal is under 10)

No hope left anymore, starting to get depressed, and scared..I have massive emetophobia so feeling nauseous 24/7 is not a good thing at all!

Went to A&E, hospital said they couldnt do anything so got sent home..

Just really cannot cope.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dani nero Community Regular
dani nero
Posted

You haven't mentioned much about your lifestyle.. like what do you usually eat, what precautions have you taken to make sure you're completely gluten-free.

The way you're feeling now is directly related to your health situation, believe me! Depression and feelings of hopelessness are caused by whatever is making you feel ill. We'll need more details to be able to find out what is making you feel ill though :-)

cahill Collaborator
cahill
Posted

6 months of feeling ill, every single day. Nausea, tiredness, swollen throat, stomach pain, generally feeling rubbish. Missing loads of school and exams..

It's starting to effect me a lot now, I just feel like there's is no point in life anymore..just getting up to feel ill.

After 4 months gluten free still have a TTG level of 229 (normal is under 10)

No hope left anymore, starting to get depressed, and scared..I have massive emetophobia so feeling nauseous 24/7 is not a good thing at all!

Went to A&E, hospital said they couldnt do anything so got sent home..

Just really cannot cope.

You are 14 years old,, are your parents gluten free??

charlotte-hall Apprentice
charlotte-hall
Posted
  • Author

I'm 15, but no my house isn't gluten free

charlotte-hall Apprentice
charlotte-hall
Posted
  • Author

I usually eat toast on a morning, with butter from my own butter, no cross contamination there, and with my own toaster. Gluten free bread obviously. Then usually at school, a sandwhich, yet again with gluten-free bread and my own butter and usually cheese or chicken. Then for tea..meat and vegetables, keeping it simple.

Maggie Mermaid Apprentice
Maggie Mermaid
Posted

I usually eat toast on a morning, with butter from my own butter, no cross contamination there, and with my own toaster. Gluten free bread obviously. Then usually at school, a sandwhich, yet again with gluten-free bread and my own butter and usually cheese or chicken. Then for tea..meat and vegetables, keeping it simple.

How about giving up any type of bread-like product for a weekend and see how you feel? For breakfast, you could have eggs or fruit with yogurt.

Sounds like some hidden cross-contamination somewhere. Maybe toothpaste, mouthwash, or lip balm/lipstick products are not 100% gluten-free?

kareng Grand Master
kareng
Posted

I'm Curious.... what do your parents say about this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


charlotte-hall Apprentice
charlotte-hall
Posted
  • Author

I'm Curious.... what do your parents say about this?

Just struggling what to do, there seems to be no answer

kareng Grand Master
kareng
Posted

Just struggling what to do, there seems to be no answer

I meant, are they OK with the gluten-free thing? Do they keep any gluten in one place, away from your foods? Use separate colanders for your gluten-free pasta or fruit? No one in the house thinks its stupid and puts flour in your food? Have they checked any medications you take for gluten? No oats?

I'm trying to think of the things that have happened to others.

charlotte-hall Apprentice
charlotte-hall
Posted
  • Author

I have oats cut out totally, I have seperate pans and my own cutlery etc. And no, they all realise the seriousness so I dont think someone doing it on purpose would be the case

MitziG Enthusiast
MitziG
Posted

I am so sorry you are going through that. My daughter is 13 and has similar issues, and like you, major phobia of vomiting, which unfortunately, she does a lot. I would reccomend an elimination diet for now. Stick with very bland things- rice, chicken, fruit and veggies. Avoid dairy 100%. This can allow your gut to heal, and then you can try adding back one thing at a time. I promise you, this can get better!

As for the nausea, get some Braggs apple cider vinegar. Put a teaspoon in a glass of water and drink when your stomach hurts. It gives almost instant relief and really helps when my daughter is throwing up.

I know it is hard not to be discouraged, but it really will get better. Hang in there!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    2. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      Neg for HLA dq8 and dq2
    3. knitty kitty
      - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      How can you be negative for HLA? What markers did you have here? Curiouser and curiouser...
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

      Yes, I have noticed a big difference. I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me. At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university. I went gluten free. I...
    5. Wheatwacked
      - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      Yes, I would be good with the diagnosis. While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels. Recovery from either disease requires avoiding gluten. celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,746
    • Most Online (within 30 mins)
      7,748
    CarlyRenee
    Newest Member
    CarlyRenee
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Neg for HLA dq8 and dq2
    • knitty kitty
      GI DX celiac despite neg serology and no biopsy

      By knitty kitty · Posted

      How can you be negative for HLA?   What markers did you have here? Curiouser and curiouser...  
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      Yes, I have noticed a big difference.  I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me.  At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university.  I went gluten free.  I started taking vitamins according to my nutritional deficiency symptoms.  Vitamins worked.  My health improved.  Now I'm here to help others.  Celiac disease causes malabsorption which results in malnutrition.  Doctors don't recognize the symptoms of Celiac disease and malnutrition. Benfotiamine has been shown to promote intestinal healing and digestion, improves diabetes and neuropathy and much more.  TTFD (Thiamax or TTFD-B1 Max) helps with brain function, neuropathy and lots more.  Every cell in the body needs thiamine to make energy so the cell can function.  Without sufficient thiamine, mitochondria die.  Every cell also needs thiamine and the other B vitamins to make life sustaining enzymes.  Thiamine has antiviral and antibacterial properties.   We may not be getting sufficient thiamine from our diets if we eat a lot of carbohydrates.  The more carbs one eats the more thiamine is needed to process them into energy.  If there's insufficient thiamine, the body stores the carbs as fat. This is called high calorie malnutrition.   We may not be getting sufficient thiamine from our diets if we eat a gluten free diet.  Gluten free flours and processed foods are not required to be enriched nor fortified with vitamins and minerals like their gluten containing counterparts.  Meats are the best sources of thiamine, but some veggies (beans, potatoes, squash) and fruits (citrus and berries) contain some thiamine.    Explore thiamine more here: https://hormonesmatter.com/thiamine-deficiency-causes-problems/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Yes, I would be good with the diagnosis.  While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels.  Recovery from either disease requires avoiding gluten.  celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has to self repair in addition to the nutritional deficiencies.   Nonceliac Gluten Sensitivity Dr. Weston Price's research in the 1930s showed that diets rich in minerals and fat-soluble vitamins (A, D3, K2) promoted well-mineralized teeth, while deficiencies led to weaker enamel. Fatty liver, Intermittent diarrhea, Severe abdominal distension Choline deficiency causes abnormal deposition of fat in the liver, which results in a condition called nonalcoholic fatty liver disease. In some people, choline deficiency causes muscle damage. https://lpi.oregonstate.edu/mic/other-nutrients/choline    Choline is a large part if the bile salts for fat digestion, Acetycholine, a neural transmitter, mitochondria membrane structure, and along with folate, B12, and B6 recycles homocysteine  High homocysteine can damage artery linings. Low vitamin D levels are associated with increased symptoms of depression and anxiety,  autoimmune diseases and most of your symptoms.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.