Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Photos Of Mild Dh

lizk

By lizk
in Dermatitis Herpetiformis

Recommended Posts

lizk Rookie
lizk
Posted

I found this link of what I would consider "mild" DH (except maybe the back photo, that looks kind of severe) and thought I would post because I've had a hard time finding photos that don't look pretty severe. Most photos of DH don't look like what I have (and I'm still not sure if I have DH), but these look very similar to what I have - especially the first photo. Anyway, just thought I'd post in case it helps anyone.

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

I found this link of what I would consider "mild" DH (except maybe the back photo, that looks kind of severe) and thought I would post because I've had a hard time finding photos that don't look pretty severe. Most photos of DH don't look like what I have (and I'm still not sure if I have DH), but these look very similar to what I have - especially the first photo. Anyway, just thought I'd post in case it helps anyone.

Open Original Shared Link

Excellent link. This will help people. Almost all of the photos you find on the net are so severe that they are quite hard to even look at & people with less severe dh than those photos can be easily confused.

gulfcoastnana Newbie
gulfcoastnana
Posted

Thank you for posting this... I wish that I would have taken photos when my rash was at its worst...

at first i was told i had shingles... then after taking a course of steriods...it came back with a vengence... dr said its a food allergy..

before i made it to a allergy dr i found some photos of wheat rash...(DH) and it looked like what i had went gluten free... started clearing up...

so now while the dr's may not agree with me i know the only way to keep the itchy skin away is staying gluten free

Di2011 Enthusiast
Di2011
Posted

I think the definition of "mild" DH is so much up for debate.

I've been watching my 9 year olds DH develop over the past year.

My DH went full blown a year ago.. when I went to work in a bakery. I'd always been gluten lite without a thought. Didn't like breakfast, pasta, pizza etc. Was always itchy/scratchy and had "ingrown hairs" and 'adult pimples' etc etc. I think there is definitely 'mild' DH which in my definition is just itchy. Medium is definitive lesions ("mosquito bites"). This is where my son is at.

The full blown DH though is extreme, ugly, and mentally challenging. Just ask me what I've been through.

DH needs to be scientifically researched as a skin condition with a range of presentations.

It presents differently in different areas of my body. There is no 'normal'.

If you feel like mosquitos are biting (in winter) or acid is being sprayed on your skin then DH is a probability.

lizk Rookie
lizk
Posted
  • Author

I think the definition of "mild" DH is so much up for debate.

I've been watching my 9 year olds DH develop over the past year.

My DH went full blown a year ago.. when I went to work in a bakery. I'd always been gluten lite without a thought. Didn't like breakfast, pasta, pizza etc. Was always itchy/scratchy and had "ingrown hairs" and 'adult pimples' etc etc. I think there is definitely 'mild' DH which in my definition is just itchy. Medium is definitive lesions ("mosquito bites"). This is where my son is at.

The full blown DH though is extreme, ugly, and mentally challenging. Just ask me what I've been through.

DH needs to be scientifically researched as a skin condition with a range of presentations.

It presents differently in different areas of my body. There is no 'normal'.

If you feel like mosquitos are biting (in winter) or acid is being sprayed on your skin then DH is a probability.

I'm sorry you had such a tough time of it. Does your son have multiple "mosquito bite" looking lesions in one place? Or is it one here or there? I had some that were very tiny blistery looking things and lately I have had larger "bug bite" looking ones that are usually (not always) on matching sides of my body. They usually just present as one, but for example on my ankle last week I had 3 or 4 in a cluster. And yes sometimes the skin just burns or sort of generally itches and then a tiny bump will appear.

lizk Rookie
lizk
Posted
  • Author

Oh and I would say for the past 6 months I have been "itchy/scratchy" as well and have bumps on the back of my thighs that itch that I thought were ingrown hairs or something. The burning sensation you mention I don't think I've heard before and is what I feel sometimes because I have described it as almost feeling having a sunburn when it gets itchy.

Thank you for your replies!

gulfcoastnana Newbie
gulfcoastnana
Posted

I have always had back bumps...(pimples) and under the bra line rash( thought it was heat rash) thighs chalked it up to many things ingrown hairs ect.... but now i must say i the only way to describe the warning that a break out is coming is a burning like being sunburnt and having a jellyfish tossed on your skin....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Mine starts itching and feels like an abrasion - then it comes on fast.

In retrospect I've had a dozen or so different types of lesions. Would be funny if it wasn't sad - so many that were probably DH but I wrote off as something else.

And I have a sneaking suspicion the herpes Whitlow on my hand as a child wasn't - yep, I'm betting that was my first DH.

itchy Rookie
itchy
Posted

I concur with above.

Especially the comment about photographing the lesions when they are bad. Mine are almost cleared up and it will be difficult to persuade future physicians that I am coeliac, or how bad the rash really was. I have met complete scepticism from the medical community for fifteen years, and when I had the best evidence of coeliac I failed to record it!

I frequently get burning or itching sensations in the areas where former outbreaks occurred. Lately nothing materialises from these. Am I just below the threshhold for an outbreak? Is it just a bodily reaction to the factors that are still in my skin? Hard to say.

dani nero Community Regular
dani nero
Posted

Those don't look so mild to me.. Mine are ant-bite size, and they only scar if I break the skin.

Di2011 Enthusiast
Di2011
Posted

Hi Dani,

I think you are probably lucky you discovered your gluten/DH condition whilst younger than many of us. I was always itchy/scratchy, 'ingrown hairs' type and avoided gluten full foods without making the connection. I went to work in a bakery about 18months ago and 9 months later I broke out in full blown head to toe DH. All in one 6 hour shift. Out of necessity I have had to be extremely strict with diet and bathroom/cleaning etc. I never eat out. Black tea is the only thing I've ordered in the past 12 months :(

Be sure you keep strict. You young ones would really want to avoid skin like mine!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,896
    • Most Online (within 30 mins)
      7,748
    Judy M
    Newest Member
    Judy M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      How Come Gluten Didnt Bother Me In Italy

      By trents · Posted

      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.