Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cycling Symptoms


Nen

Recommended Posts

Nen Explorer

I don't know if this sounds possible for something like celiac, I've been keeping a journal for about the past year.

I get these phases where I feel bad (Sinus problems, near constant one sided dull head pain/pressure, achy and stiff, fatigued, odd nerve problems on same side of body as dull head pain/pressure, nausea).

These phases last about a couple weeks, then for a week or two I feel GREAT, then its back to feeling bad again for a couple weeks, then I feel GREAT like a new person for a week or two. I've never heard of anything that can cycle through like this. Can celiac symptoms come and go with that much frequency?

I thought maybe allergies, but even allergy meds don't really help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sora Community Regular

I don't know if this sounds possible for something like celiac, I've been keeping a journal for about the past year.

I get these phases where I feel bad (Sinus problems, near constant one sided dull head pain/pressure, achy and stiff, fatigued, odd nerve problems on same side of body as dull head pain/pressure, nausea).

These phases last about a couple weeks, then for a week or two I feel GREAT, then its back to feeling bad again for a couple weeks, then I feel GREAT like a new person for a week or two. I've never heard of anything that can cycle through like this. Can celiac symptoms come and go with that much frequency?

I thought maybe allergies, but even allergy meds don't really help.

I am allergic to wheat and chemicals and have these symptoms. They come and go and range from one extreme to another pain wise. It depends on the amount of exposure. It took me nearly four years to figure out that it was allergies for me.

It's possible you have allergies, maybe try another type of allergy pill?

It also sounds like it might be migraines?

Others may have more ideas and hopefully you can figure it out soon.

birdie22 Enthusiast

My symptoms are different than yours, but yes, I experienced symptom cycling. I too had been tracking and my headaches, bloating, and heartburn would happen almost always 1 week prior to ovulation and again 1 week prior to my period and each time the symptoms would last 2-3 days. I thought it was purely hormonal. This went on for quite a while and then the symptoms started happening with more and more frequency and the cycling just about disappeared.

Nen Explorer

Thanks for the replies. I just keep trying different things and hope something sticks.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      27

      My journey is it gluten or fiber?

    2. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.