Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Honestly, I'm Stunned!


MitziG

Recommended Posts

MitziG Enthusiast

13 mos ago when I was dx, it thought- "oh good, now I should be able to lose weight and my face will clear up." It was a long slow road to feeling better, but gluten-free did wonders for me. I felt awake, alert and energetic for the first time in my life. But the weight didn't budge. I analyzed my diet, cut out most dairy products, stripped out the processed gluten-free foods (except for occasional pasta and bread) but still, nothing. In December, I went on a protein shake supplement/ meal replacement plan. It did wonders for feeling full and kicking cravings- but still, no weight loss, even at 1200 calories + hitting the gym regularly. And, my adult acne got way worse. I finally got a clue that dairy was making the acne worse, so swapped out my shakes for raw vegan ones that taste like dirt. Face seemed less inflamed, but still painful jaw breakouts. And no weight loss. 10 days ago I removed all traces of milk/casein/whey from my diet.

6 pounds has fallen off, even though I have been ravenously hungry and eating like a horse.

I have exactly 2 small remaining pimples on my jaw (I did have about 30)

And, yesterday I worked outside in my garden from 8 am until 9 pm without getting tired. Even after gluten-free took away my intense fatigue, I still had low stamina and had to rest often.

I went to bed at 12:30, woke up at 6 am today feeling right as rain!

I am beginning to think that the disease sttae of alll mankind is probably almost all food related!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

What we eat affects us so much more than we're ever aware? Once you figure out whjat doesn't agree with you, and avoid it, it can be life changing? Congrats to you on figuring it out. :D

Now..wanna come work in my garden?

rosetapper23 Explorer

I was diagnosed with celiac back in 2004, and I continued to have a weight problem regardless of following a gluten-free diet. It wasn't until last year when I read, "Primal Body, Primal Mind," that I finally found out what was causing my weight problem: I wasn't consuming enough healthy saturated fats and I was eating too much fruit and other carbs. Humans haven't evolved enough yet to digest grains, beans, soy, most dairy, and some fruits. I used to shun any and all fats because I figured that they'd make me fat, but we need healthy saturated fats to keep our brains and bodies healthy. Fats don't make us fat--carbs do because they cause a rise in insulin. You might try eating more avocados, nuts, nut butters, and organic butter and meats. The weight just fell off of me when I went on this diet (sometimes referred to as the Paleo diet), and the fat in my stomach area simply disappeared. I feel healthy and happy now, and maintaining my weight is easy. I know that the media and some health magazines bombards us with advice on going vegan or vegetarian, but these diets are contrary to what humans must eat to be haalthy. Of course, though, everyone is different, so I don't go around proseletyzing (sp?) about how people should eat....I'm just recommending this diet because it's worked for a number of us on this Forum.

MitziG Enthusiast

Actually, I have always eaten tons of good fat- my good cholesterol is always very high, my bad cholesterol quite low. I frequently eay avocados- just avococados, for a meal.

I have researched Paleo, and I think for the most part it is a healthy diet, but I don't believe in the evolutionary theory behind it, I think most people have trouble with digesting foods because our bodies have just broken down over time due to all the poisons in our air, food and water. I also suspect our advances in modern medicine, particularly antibiotics has done serious damage.

I appreciate you telling me about thw diet though, and if I didn't enjoy beans so much I would give it a try! ;) I don't have a ton of extra weight to lose- I just put on 20 lbs about 3 years ago and no amount of exercise or diet would budge the scale more than a pound or two. Even when I was running 10 miles a day, I didn't lose a pound! I am beginning to realize just how detrimental inflammation can be!

Another interesting side effect of cutting out casein- it seems to have killed my sweet tooth. I have constantly craved chocolate for years, and would do anything for a daily chocolate fix. I also always wanted a "sweet" taste throughout the day, which was of course counter-productive to losing weight. After. About day 5 of no casein my cravings just- left! I hope never to return!

anabananakins Explorer

I'm really glad to hear how much better you feel, though I'm not sure I really wanted to know, lol, since I have been trying to psyche myself up to go dairy free for ages. I just can't bear to, even though I suspect it would really help. Maybe this will inspire me. It sounds fabulous.

Angiekins Newbie

Rosetapper,

I've researched the Paleo diet as well, and it all just makes sense! I am currently reading "The Paleo Solution" By Robb Wolf, and its an amazing book,an easy read, and funny as well. I havent been diagnosed with Celiac, however I have a docs appt in a week. Ive suffered from digestive issues for what seems like forever...but regardless of the results I am cutting gluten, grains, and dairy out of my diet so hopefully I can feel normal again... :)

MitziG Enthusiast

Anabananakins- I know how you feel! I resisted it for a long time too. If I hadn't figured out the connection with my acne, I doubt I would have!

I tell myself it isn't like celiac- I don't necessarily have to give up all dairy, forever. I am planning on a six month stretch, and then trying to see if I can tolerate a little bit. I really miss real cheese!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

I like coconut and almond milk. One does not have to have dairy milk. There is life without it, if you are willing.

GFinDC Veteran

You might want to try Daiya cheese shreds. Pretty good stuff. Almond milk is good sub or hemp milk for regular milk.

Open Original Shared Link

GLUTEN FREE IN SLC Rookie

I don't understand how people with Celiac could be overweight. I myself was recently diagnosed with Celiac after loosing 40 pounds. Keep in mind I'm a male and weighed 160 and now I weigh 120 and people think I'm anorexic. I guess I must of had Celiac for years and got to that malabsorption state. I've been doing everything in my power to gain weight but its been so hard.

I'm happy for you being able to see the results you want. I wish that doctors would test for more intolerance's/allergies especially with those diagnosed with Celiac.

MitziG Enthusiast

Yes it seems bizarre, but it happens a lot. Different theories as to WHY. Some think it is because our body "hoards" calories as a survival mechanism when it is nutrient depleted. Others say that the body will store fat to insulate vital organs from "toxins"- or what it thinks are toxins.

All I know is that with 30 years of celiac, frequent vomiting and diarrhea AND 20 years of bulimia, I was NEVER underweight, ever.

I restricted to 220 calories a day for over a year and managed to hit my goal weight of 140 lbs (I am 5' 10")

Compulsive exercising did nothing.

13 mos of very healthy gluten-free eating with no dairy and few processed foods- didn't lose a pound.

I cut out trace milk protein less than 3 weeks ago and suddenly 10 lbs falls off. Go figure.

I switched to almond milk a year ago- love it. Daiya cheese is ok- but the cheese I miss is more along the lines of stinky feta, creamy swiss and crusty Parmesan!

eatmeat4good Enthusiast

I was a 200 lb Celiac at my sickest.

Diagnosed with fibromyalgia....with sores...

Yeah, it was Celiac DH.

The first year gluten free...didn't want to give up dairy but I was losing weight and getting healthier...so I didn't worry about it.

Started to suspect dairy.

Went dairy free at one year gluten free...pretty much exactly like you...

found that dairy made me sick if I ate it.

Went Paleo...and the total transformation happened.

Muscle started to grow where I never had muscle before....abs...thighs...calves...forearms...

I'm only 5 ft... have battled weight and fatigue all my life.

On Paleo it took only 6 months to get super trim...and I don't work out at all...other than regular daily tasks.

I eat way more than I ever have in my life!

I got to 100 lbs and started to get scared....I felt great! But losing that much weight...when you are used to being plump is kinda concerning. I added dairy back about 3 weeks ago.

Doesn't bother my stomach at all.

Loved eating cheese, cream in my coffee, ice cream, all that stuff.

I have gained about 6 lbs....

But I feel like crap.

Going back to dairy free.

Paleo without dairy plus avocados for me!!!!

Thanks for your post...I can relate.

Lori2 Contributor

What we eat affects us so much more than we're ever aware? Once you figure out whjat doesn't agree with you, and avoid it, it can be life changing? Congrats to you on figuring it out. :D

But that's just the problem. How do you figure out what doesn't agree with you? I've been keeping a food journal for over a year and I still can't figure some of it out. Eliminated rice several months ago and that was a big help, but there's still something--but what?

That GF Girl Rookie

This is encouraging for me...I have been gluten-free for 2yrs but battling fatigue like crazy still. Brain fog better but now dealing with other food sensitivities that have come up: Egg Yolks, Yeast, Almonds and Walnuts, Milk, Cheese and Oh my gosh my Chiobani Greek Yogert! I am losing weight and can't afford to get too low. Struggling to do this for 6 mos to see how I can add enough protein which for my age/wt they said 81 grams. Wow that's alot. I hate beans and am a super picky eater...I can do cashews but have depended upon my almond butter etc. Now no bread etc! Any ideas to sneak in some gluten-free dairy free choc once in a while? How does one tell if it has dairy in it...like a candy bar? I am having trouble with snack foods that have protein since I relied upon dairy so much.! I had planned on doing this for 6 mos and then trying to reintroduce these every 4th day...we'll see now....Thoughts anyone?

Bubba's Mom Enthusiast

This is encouraging for me...I have been gluten-free for 2yrs but battling fatigue like crazy still. Brain fog better but now dealing with other food sensitivities that have come up: Egg Yolks, Yeast, Almonds and Walnuts, Milk, Cheese and Oh my gosh my Chiobani Greek Yogert! I am losing weight and can't afford to get too low. Struggling to do this for 6 mos to see how I can add enough protein which for my age/wt they said 81 grams. Wow that's alot. I hate beans and am a super picky eater...I can do cashews but have depended upon my almond butter etc. Now no bread etc! Any ideas to sneak in some gluten-free dairy free choc once in a while? How does one tell if it has dairy in it...like a candy bar? I am having trouble with snack foods that have protein since I relied upon dairy so much.! I had planned on doing this for 6 mos and then trying to reintroduce these every 4th day...we'll see now....Thoughts anyone?

I got to the point where I was getting bad reactions to more and more foods. I got a hydrogen breath test to see if I had small intestine bacterial overgrowth (SIBO). It's very common in Celiacs. I tested positive, and was told mine is severe. I was told that we react to more and more foods because the bacteria emit toxins into our blood stream/brain as they rob our bodies of nutrients.

For anyone reacting to more and more foods I highly recommend getting the test!

That GF Girl Rookie

So how does one do this hydrogen breath test? And what do you do if you find you have this bacterial overgrowth?

Lori2 Contributor

I got to the point where I was getting bad reactions to more and more foods. I got a hydrogen breath test to see if I had small intestine bacterial overgrowth (SIBO). It's very common in Celiacs. I tested positive, and was told mine is severe. I was told that we react to more and more foods because the bacteria emit toxins into our blood stream/brain as they rob our bodies of nutrients.

For anyone reacting to more and more foods I highly recommend getting the test!

What do you do to deal with SIBO? Do probiotics help? What kind of foods can you eat?

MitziG Enthusiast

gluten-free girl- your standard chocolate bars/ chips all have dairy in them. Several brands of semi-sweet chocolate chips that don't though. Enjoy Life also makes dairy free chocolate bars (Boom Choco Boom) which are good- taste a lot like a Nestle Crunch bar.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,548
    • Most Online (within 30 mins)
      7,748

    KandiWoods
    Newest Member
    KandiWoods
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.