Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fooding And Appointment Issues


dani nero

Recommended Posts

dani nero Community Regular

I'm not sure about it yet, but I think that the cashews were what was making me aggressively irritated. I haven't had them for a week and was feeling fine, then had a few this morning and snapped at hubs when he got home from work, then had anxiety for most of the day. If it really was the cashews, would they be having this effect so quickly? I ate them at 10am, and got irritated at around 4pm, then anxious after that.

I am also wondering.. WHY cashews?!

On a side note, I was feeling so hopeless and couldn't take the fatigue and lousiness any longer, so I called the clinic a week ago, and asked them if that appointment I took some time in march (which they said was going to be in april, and then somewhere in may) was ever going to happen.. and it wasn't going to happen until June because "the queue was really long" X( So we complained so much until they gave me a squeeze-in appointment on the 23rd.

Now that it's a squeeze in appointment, I feel that the doctor will be under so much pressure that I will have to make the best of what little time I'm going to have to explain my problems to him / her.. and what if they tell me nothing's wrong.. then I'll have to wait another quarter of a year to get another appointment with another clinic X(

Just a week left and I'm completely anxious about it, so I've developed a plan. Regardless of the test results, I'll be talking the doc into giving me suitable probiotics that are gluten and lactose free.. and I'll be telling my family that I've been diagnosed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Alwayssomething Contributor

I pieced together today that cashews were bothering me too! I realized it a week or so ago, but thought it was the brand that they were cross contaminated, so I waited a week and tried another brand and flavor (first ones were honeyroasted) it had no cross cantamination warning and no wheat ingredients ate some yesterday and today and had a reaction both days. It is the only thing I can associate with it, so no more cashews for me. What I wonder for me is it a Iodine issue?

dani nero Community Regular

I pieced together today that cashews were bothering me too! I realized it a week or so ago, but thought it was the brand that they were cross contaminated, so I waited a week and tried another brand and flavor (first ones were honeyroasted) it had no cross cantamination warning and no wheat ingredients ate some yesterday and today and had a reaction both days. It is the only thing I can associate with it, so no more cashews for me. What I wonder for me is it a Iodine issue?

I don't think cashews are high in iodine.. maybe the salted ones might be?

The ones I've been eating are sold raw and plain.. I either ate them the way they were or roasted them myself in sunflower oil and ate them unsalted.

squirmingitch Veteran

Dani is right. Cashews in & of themselves are very low iodine. Dani --- are you sure your cashews (even though raw) have not been cc'd anywhere along the line? And yes, cashews could be your problem as could any food. you know how celiacs come up with the darndest food issues. This may pass in time or it could remain -- who knows?

I think it's a capital idea to tell your family you have been diagnosed in light of the resistance they have had to the idea of your having celiac. That will take a lot of stress off of you on that score.

You realize that b/c you've been gluten-free that the tests are more likely to be neg, than anything else right?

I understand your apprehension about being squeezed in. Just make careful notes of your symptoms as well as your gluten-free trial & results. Along with the probiotic you need to think of anything else you will need a script for from the doc. Such as gluten-free & salicylate free Acetaminophen &/or Naproxen for those times when you need a pain reliever.

Alwayssomething Contributor

Thanks for the iodine information Dani and squirmingitch.

squirmingitch Veteran

Anytime, any question Alwayssomething. And if we can't answer it someone else can.smile.gif

JaneWhoLovesRain Enthusiast

I just posted something about cashews before reading your post. I've been feeling off a few days and looked at all my labels to make sure I wasn't getting any gluten in me. The cashew label says "may contain trace amounts of . . . . wheat." I would guess there is some cc in manufacturing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dani nero Community Regular

you need to think of anything else you will need a script for from the doc. Such as gluten-free & salicylate free Acetaminophen &/or Naproxen for those times when you need a pain reliever.

Critically true! I had actually forgotten about that because I haven't been getting headaches recently, so thanks :-)))

I don't have any of the cashews at home atm, so I'll check for contamination next time I'm at the market. I don't think I was getting glutened though because it goes away quickly when I stop them, and it doesn't agitate my DH.

squirmingitch Veteran

YVW Dani. And pain relievers aren't just for headaches. Who knows when one is going to twist an ankle or whatever & need the med.

dani nero Community Regular

YVW Dani. And pain relievers aren't just for headaches. Who knows when one is going to twist an ankle or whatever & need the med.

I'm also going to ask for a doctor's note stating that I need to bring my own food .. I thought it would be a good idea after reading the thread about sea-world :-)

squirmingitch Veteran

You are right. Good thinking!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,044
    • Most Online (within 30 mins)
      7,748

    Emj 86
    Newest Member
    Emj 86
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.