Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fooding And Appointment Issues


dani nero

Recommended Posts

dani nero Community Regular

I'm not sure about it yet, but I think that the cashews were what was making me aggressively irritated. I haven't had them for a week and was feeling fine, then had a few this morning and snapped at hubs when he got home from work, then had anxiety for most of the day. If it really was the cashews, would they be having this effect so quickly? I ate them at 10am, and got irritated at around 4pm, then anxious after that.

I am also wondering.. WHY cashews?!

On a side note, I was feeling so hopeless and couldn't take the fatigue and lousiness any longer, so I called the clinic a week ago, and asked them if that appointment I took some time in march (which they said was going to be in april, and then somewhere in may) was ever going to happen.. and it wasn't going to happen until June because "the queue was really long" X( So we complained so much until they gave me a squeeze-in appointment on the 23rd.

Now that it's a squeeze in appointment, I feel that the doctor will be under so much pressure that I will have to make the best of what little time I'm going to have to explain my problems to him / her.. and what if they tell me nothing's wrong.. then I'll have to wait another quarter of a year to get another appointment with another clinic X(

Just a week left and I'm completely anxious about it, so I've developed a plan. Regardless of the test results, I'll be talking the doc into giving me suitable probiotics that are gluten and lactose free.. and I'll be telling my family that I've been diagnosed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Alwayssomething Contributor

I pieced together today that cashews were bothering me too! I realized it a week or so ago, but thought it was the brand that they were cross contaminated, so I waited a week and tried another brand and flavor (first ones were honeyroasted) it had no cross cantamination warning and no wheat ingredients ate some yesterday and today and had a reaction both days. It is the only thing I can associate with it, so no more cashews for me. What I wonder for me is it a Iodine issue?

dani nero Community Regular

I pieced together today that cashews were bothering me too! I realized it a week or so ago, but thought it was the brand that they were cross contaminated, so I waited a week and tried another brand and flavor (first ones were honeyroasted) it had no cross cantamination warning and no wheat ingredients ate some yesterday and today and had a reaction both days. It is the only thing I can associate with it, so no more cashews for me. What I wonder for me is it a Iodine issue?

I don't think cashews are high in iodine.. maybe the salted ones might be?

The ones I've been eating are sold raw and plain.. I either ate them the way they were or roasted them myself in sunflower oil and ate them unsalted.

squirmingitch Veteran

Dani is right. Cashews in & of themselves are very low iodine. Dani --- are you sure your cashews (even though raw) have not been cc'd anywhere along the line? And yes, cashews could be your problem as could any food. you know how celiacs come up with the darndest food issues. This may pass in time or it could remain -- who knows?

I think it's a capital idea to tell your family you have been diagnosed in light of the resistance they have had to the idea of your having celiac. That will take a lot of stress off of you on that score.

You realize that b/c you've been gluten-free that the tests are more likely to be neg, than anything else right?

I understand your apprehension about being squeezed in. Just make careful notes of your symptoms as well as your gluten-free trial & results. Along with the probiotic you need to think of anything else you will need a script for from the doc. Such as gluten-free & salicylate free Acetaminophen &/or Naproxen for those times when you need a pain reliever.

Alwayssomething Contributor

Thanks for the iodine information Dani and squirmingitch.

squirmingitch Veteran

Anytime, any question Alwayssomething. And if we can't answer it someone else can.smile.gif

JaneWhoLovesRain Enthusiast

I just posted something about cashews before reading your post. I've been feeling off a few days and looked at all my labels to make sure I wasn't getting any gluten in me. The cashew label says "may contain trace amounts of . . . . wheat." I would guess there is some cc in manufacturing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dani nero Community Regular

you need to think of anything else you will need a script for from the doc. Such as gluten-free & salicylate free Acetaminophen &/or Naproxen for those times when you need a pain reliever.

Critically true! I had actually forgotten about that because I haven't been getting headaches recently, so thanks :-)))

I don't have any of the cashews at home atm, so I'll check for contamination next time I'm at the market. I don't think I was getting glutened though because it goes away quickly when I stop them, and it doesn't agitate my DH.

squirmingitch Veteran

YVW Dani. And pain relievers aren't just for headaches. Who knows when one is going to twist an ankle or whatever & need the med.

dani nero Community Regular

YVW Dani. And pain relievers aren't just for headaches. Who knows when one is going to twist an ankle or whatever & need the med.

I'm also going to ask for a doctor's note stating that I need to bring my own food .. I thought it would be a good idea after reading the thread about sea-world :-)

squirmingitch Veteran

You are right. Good thinking!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,594
    • Most Online (within 30 mins)
      7,748

    kathleenconley
    Newest Member
    kathleenconley
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.