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Recommendation For Me

razzle51

By razzle51
in Dermatitis Herpetiformis

Recommended Posts

razzle51 Apprentice
razzle51
Posted

I have this rash but very little on my arms . My Dr. said Aqua Phor works well on it.. you can get it at almost any store over the counter . said to shower get out wet put cream on while you are wet , then blot dry... It works for me.... thanks

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Di2011 Enthusiast
Di2011
Posted

Hi Razzle,

Tell us more about your rash and your history. Any recommendations are appreciated. Your history and how you came to be here on this forum are of interest to all of us. You only have to tell us what you want/need!

razzle51 Apprentice
razzle51
Posted
  • Author

well rash has now spread to chest , legs and few on my face . I got a referal to skin dr for tues . dr thinks it is Dermatitis Herpetiformis

My history is I have Chiari malformation and Syringomyelia .. which connective tissue disorders are common. I had decompression surgery in 1999. I do have Osterpurioise (SP) Roz

Di2011 Enthusiast
Di2011
Posted

From what I have read Aqua Phor is petroleum based. I personally would not use it or recommend it. DH is a mysterious beast and pretty much anything foreign (un-natural) as petroleum I avoid. Let us know how your appointment goes on Tuesday.

What does your rash look like?

razzle51 Apprentice
razzle51
Posted
  • Author

Little tiny blisters that pop open and bleed . Itches terrible ..

Di2011 Enthusiast
Di2011
Posted

Sounds a lot like mine and my son's. Let us know how your appointment goes tomorrow.

razzle51 Apprentice
razzle51
Posted
  • Author

well dr said I do have Dermatitis Herpetiformis and to let it run its course about another 3 weeks to a month ... No med yet except a cream .... He also said Aquaphor is fine to use agter showering

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JaneWhoLovesRain Enthusiast
JaneWhoLovesRain
Posted

Raz - did your doctor take a biopsy? Your descriptions sound so much like mine but I can't even get a doctor to consider DH. They are so sure this isn't my problem.

Jane

razzle51 Apprentice
razzle51
Posted
  • Author

yes he did take a Biopsy and said it will be 7 -10days to come back

Di2011 Enthusiast
Di2011
Posted

Wow .. wow .. wow.. this is a much different story than any other people post on here... at least in my time on here.

Please be sure to (if you are willing of course) post the derms name and clinic. There will be others that may be able to access him. I checked with the forum moderators a few months ago and we are allowed to share names of docs etc ((don't do email/phone numbers etc on the public forum)). In general you should probably avoid bagging the bads ones. But the goods ones need to be shared loudly and widely. Please.

razzle51 Apprentice
razzle51
Posted
  • Author

Biopsy did come back DH... My dr is in Sioux city , Iowa ..

squirmingitch Veteran
squirmingitch
Posted

Congratulations on an actual dyed in the wool dx razzle!

Di2011 Enthusiast
Di2011
Posted

Lucky you razzle :) You should put up a new DH post and let people know the doc's name and location. ((I checked with moderators and there is no problem with doing so))

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