Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ahh! Obsessing About Other Problems Now!

123glldd

Recommended Posts

123glldd Collaborator
123glldd
Posted

Guys I am totally freaking out....

#1 I've had anxiety issues most of my life...just putting that disclaimer out there. I KNOW I am overreacting....I just keep..."what if" ing.

#2 When i got my enterolab results...my fat content was 332..normal was below 300. My husband was about 700-800. It stated that Biliary Cirrhosis and pancreatic problems can cause that..or simply malabsorption due to celiac...or even just a high fat diet.

#3 For a few nights there I was waking up with tummy pain and nausea around the same time every night.

Okay..the past two nights i've been okay. *knock on wood*

So....I've not been feeling great and my husband suggested I do a UTI test. Well, the UTI test strips we have also have bilirubin on it..which of course is to do with the liver. I did 3 tests to be sure of my results. 2 were a color that didn't even match any of the colors on the comparison chart the last one was normal.

Blood tests I had in november 2011 showed all within range results for total bilirubin...albumin....alkaline phosphatase, ALT and AST....

So here's the thing...I'm still freaking out! Thinking about gallstones and blockages of bile ducts....please someone tell me i'm crazy and probably fine? lol *bangs head off the desk*

Yeah I really hate anxiety.... <_<

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tom Contributor
tom
Posted

Well I dunno if you're crazy, but ya REALLY ARE probably fine. :)

lynnelise Apprentice
lynnelise
Posted

I wouldn't say your are crazy. All I can say is that I wouldn't worry too much about a blocked bile duct. Symptoms are usually pretty severe. My husband had one and he was doubled over in pain, the whites of his eyes started turning yellow, and his urine was day-glo orange!!!

Couldn't hurt to see your regular doctor and ask for some labs though!

ravenwoodglass Mentor
ravenwoodglass
Posted

I agree you should talk to your doctor about your concerns. If your DH hasn't seen a doctor yet to figure out why his FF score was so high it would be a good idea if he did.

123glldd Collaborator
123glldd
Posted
  • Author

Thanks guys. In the bilirubin topic I created I wrote out my experience with the doctor today..here is what i wrote in that topic:

I just got back from the doc and he felt around my abdomen..didn't feel anything weird and asked me if it hurt....i always feel a little uncomfy having my abdomen pressed on but nothing hurt at all. There was a trace small amount of billirubin in my urine he said but he thinks at worse it's probably gilberts syndrome. He said starvation (i think? and i haven't been eating much the past couple days) and stress (i've been pretty stressed) can cause slightly elevated levels? I mean he said it was apparently VERY slight. So i dunno...he's sending me for a full abdomenal ultrasound which i think should show something even if it's autoimmune as i guess they'd see the damage? i dunno... he and the nurse both felt that damage causing that probably wouldn't come on so quickly...my levels in november 2011 were great. which is why he feels gilberts could be what might be happening if anything which he says is not life threatening and is just something that happens sometimes. I mean..i know i COULD have had this my whole life...i mean..i've never tested billirubin on my own before so i have nothing to compare it to. I'm still a little scared but...i would guess if it was stones he'd prably of felt SOMETHING? hell..i should have if i had them but i didn't feel a thing so who knows.

So I'm gonna try and relax and enjoy memorial day weekend ....hopefully i can get my mind off the worry....i have horrible anxiety.. hopefully the more i stay away from gluten the better my anxiety will get (hopefully non existent). I agree my hubby needs to get checked as well. We have such a limited budget all the tests are killing us. *sighs* AND he just had surgery in march for a pilonidal cyst. Hoorah...isn't life grand? heh

ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks guys. In the bilirubin topic I created I wrote out my experience with the doctor today..here is what i wrote in that topic:

I just got back from the doc and he felt around my abdomen..didn't feel anything weird and asked me if it hurt....i always feel a little uncomfy having my abdomen pressed on but nothing hurt at all. There was a trace small amount of billirubin in my urine he said but he thinks at worse it's probably gilberts syndrome. He said starvation (i think? and i haven't been eating much the past couple days) and stress (i've been pretty stressed) can cause slightly elevated levels? I mean he said it was apparently VERY slight. So i dunno...he's sending me for a full abdomenal ultrasound which i think should show something even if it's autoimmune as i guess they'd see the damage? i dunno... he and the nurse both felt that damage causing that probably wouldn't come on so quickly...my levels in november 2011 were great. which is why he feels gilberts could be what might be happening if anything which he says is not life threatening and is just something that happens sometimes. I mean..i know i COULD have had this my whole life...i mean..i've never tested billirubin on my own before so i have nothing to compare it to. I'm still a little scared but...i would guess if it was stones he'd prably of felt SOMETHING? hell..i should have if i had them but i didn't feel a thing so who knows.

So I'm gonna try and relax and enjoy memorial day weekend ....hopefully i can get my mind off the worry....i have horrible anxiety.. hopefully the more i stay away from gluten the better my anxiety will get (hopefully non existent). I agree my hubby needs to get checked as well. We have such a limited budget all the tests are killing us. *sighs* AND he just had surgery in march for a pilonidal cyst. Hoorah...isn't life grand? heh

It sounds like your doctor isn't really concerned with this. Since you are newly diagnosed and celiac can impact liver function you may want to ask the doctor what he is looking for with the ultrasound and/or if you can hold off on it and recheck when you have been gluten-free for a bit. The liver issues may resolve on their own gluten free and if you are risking finacial difficulties you want to be sure he isn't ordering the test 'just to set your mind at ease'.

GFinDC Veteran
GFinDC
Posted

Did you see the part about photo therapy in the link to bilirubin testing in the other thread? It said the treatment for babies is a light blanket and it helps change the bilirubin in to a more easily eliminated form. I thought that was very interesting. So maybe if you get out and enjoy the holiday weekend and get some nice sun time you will reduce your bilirubin score. Maybe. Or at least have a nice weekend. :-)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


123glldd Collaborator
123glldd
Posted
  • Author

I actually really want the test as the anxiety is doing more harm to me than anything right now....so i'm going in on tuesday morning.

Also I was told about the light therapy....I am gonna try that this weekend yes :) I always feel better on a sunny day :)

123glldd Collaborator
123glldd
Posted
  • Author

Well I took another test this morning..it MIGHT have been a bit lighter than it was before the weekend. I'm going for the ultrasound tomorrow morning. A little nervous but..something I noticed was....the weekend i felt great....we got home and within a couple hours i got a bit of a tummy ache...but when i took my anti anxiety meds (clonazepam) it subsided so i think it might be psychological/ stress for the tummy aches..the bilirubin i'm still unsure but the sunlight might have helped that. I'll be doing another urine test in the morning before i go in for the ultrasound. I was outside most of the day today.

GFinDC Veteran
GFinDC
Posted

Well good, feeling better is great! :) Getting some sun also helps with vitamin D levels. So that might be something to have checked.

123glldd Collaborator
123glldd
Posted
  • Author

Well good, feeling better is great! :) Getting some sun also helps with vitamin D levels. So that might be something to have checked.

Oh I was put on nutrimetrix vitamin D3 +k2 last november for a month..every day. Then every other day there after. and YES i felt better. But now that i'm completely gluten free it may be really starting to kick in. But really there is nothing like being outside in the fresh (or semi fresh ? lol) air.

I had my ultrasound today....AND got the results about an hour ago. Everything is perfect. No gallstones...my gallbladder..liver...kidneys..pancreas...apparently they all look perfect. So either the bilirubin was a result of celiac or i have gilbert's syndrome but there is certainly nothing there physically it seems. I cried I was so relieved. No seriously....big weight off my shoulders.

GFinDC Veteran
GFinDC
Posted

Great news Krista! :) Celiac can cause a whole lot of symptoms, but the nice thing is usually they resolve on the gluten-free diet. Once we stop poisoning our bodies, things just tend to get better. :)

123glldd Collaborator
123glldd
Posted
  • Author

Great news Krista! :) Celiac can cause a whole lot of symptoms, but the nice thing is usually they resolve on the gluten-free diet. Once we stop poisoning our bodies, things just tend to get better. :)

For sure. I am guessing I either have Gilbert's Syndrome like my Doctor theorized or maybe I'm not just gluten sensitive but full blown celiac (I think i heard in someone elses thread that's what would possibly cause it?) and had increased bilirubin like some others did. I did another test strip yesterday morning before i went as I had to use the washroom when I woke up and the bilirubin area was much lighter than it was when I first took the test...it probably is to do with the gluten...it seemed to be getting better anyhow. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Flash1970
      - Flash1970 commented on Scott Adams's article in Additional Concerns
      1

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

      He should have gotten millions. How much is your life worth?
    2. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

      @cristiana, I react the same way. Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies. This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies. We have opioid receptors throughout our...
    3. knitty kitty
      0

      About Celiac Remission

    4. TheDHhurts
      - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing...
    5. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated. So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly. I came off dairy completely next and it worked like a charm...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748
    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      need help understanding testing result for Naked Nutrition Creatine please

      By TheDHhurts · Posted

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      Insomnia help

      By cristiana · Posted

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      nothing has changed

      By wellthatsfun · Posted

      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.