Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Your Dh Do This?

RashyA

By RashyA
in Dermatitis Herpetiformis

Recommended Posts

RashyA Apprentice
RashyA
Posted

Okay so my dh is really bad on my chest. Finally my face and elbow have cleared up :)

But I was wondering if this is normal. When my dh flares up they get white pus and clear fluid. When they dry which takes forever btw! They leave a really dark circle but Incan squeeze them and it's almost like a clear blackhead comes out? I know this is disgusting but I just gotta know :unsure:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lovegrov Collaborator
lovegrov
Posted

Doesn't sound like mine (when I had it).

richard

squirmingitch Veteran
squirmingitch
Posted

Nor mine.

SPJandE Newbie
SPJandE
Posted

Doesn't sound anything like my son's either.

RashyA Apprentice
RashyA
Posted
  • Author

Doesn't sound anything like my son's either.

Okay so maybe it could be acne amongst my dh. The only thing is they appear when I get glutened along with the my face and elbows and itch like crazy :(

TriciaW Newbie
TriciaW
Posted

My son's DH does not have any white discharge, only clear fluid (like a blister), then scabs, then purplish scar after. However, I am gluten sensitive, and once I figured it out and went gluten-free, my acne cleared up entirely! Amazing. So, maybe you are right, maybe gluten is causing not only the DH rash, but also acne breakouts.

Okay so my dh is really bad on my chest. Finally my face and elbow have cleared up :)

But I was wondering if this is normal. When my dh flares up they get white pus and clear fluid. When they dry which takes forever btw! They leave a really dark circle but Incan squeeze them and it's almost like a clear blackhead comes out? I know this is disgusting but I just gotta know :unsure:

razzle51 Apprentice
razzle51
Posted

yep just clear liquid

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Di2011 Enthusiast
Di2011
Posted

Hi RashyA,

I broke out in head to toe Dh after nine months working in a bakery.

1 year gluten free and my DH is now what is probably considered 'widespread but healing' and "normal presentation". 12 months ago it was literally head to toe. The only place it hasn't been is the soles of my feet (touch wood). And I've seen it on me in every way that posters have described on this forum. There is no normal. This is where medical "symptoms" cause DH sufferers such a problem. There is no normal.

I am 39 and was always itchy scratchy. Ingrown hairs on the legs, itchy face, rosacea, adult acne (mild and infrequent but always in exactly the same spots), back of arm bumps, itchy back etc etc.

I always avoid glutens (in hindsight). Avoided breakfast, didn't like pasta/pizza, avoided sandwiches/pie/cake/biscuits etc etc etc.

At the worst, a year ago, my DH (in hindsight - it was so bad I barely slept for months so memory hazy) was just a skin maze of lesions. Everywhere just itched like crazy. Even seemingly lesion clear areas itched/burned.

Since then, over the past months, it has evolved to resembled all those manifestations described here on this forum and that I've seen on the derm/medical sites I've spent hundreds of hours scanning. Small tiny bumps that are like a mini white or black head. Small pimple like bumps. Small black head like bumps. Medium like bumps that can be white/black head like or fluid (clear to amber colour) filled. Medium size ones the same as the previous. The larger ones that can be similar to the others mentioned but just a bit bigger. Ones of various size that (especially in my more recent healing) that just seem to appear, sort of dry out and once itched over go away.

No normal.

My hands/feet tend to be a bit different to the rest. They tend to be more clustered. Lots of linear or circular (several very nearby that appear in a linear or something like circular pattern). These have been most problematic is some ways. The linear in particular seem to appear along my "life lines" ie those lines (like those you see on fingerprint) and then tend to crack and split. I spent a fortune on bandaids until a few months ago. Intensely itchy but in a different way to the others. Deep and burning.

There is a 'white bit' in all of these lesions that once "out" (itched/gone) relieves most if not all of the itch. Tends to be hard, sometime seems to be dry/hard skin but actually isn't.

Infection/Pus I haven't had too many problems with despite the extent of the DH. I've had a little bit (maybe tiny bit is a better description - twice in mild form in 12 months) but I have had nothing even vaguely like infection despite the extent of my raw wounds. I think*think the immune system is so overloaded how could it possibly be too worried about a bit of dirt?! :) Not sure why but there are some things you should be aware of. I made sure (and still do) to clean my fingernails regularly ((ie at least 3-4 times a day)) - this is really important. Regular showers etc as you'd expect. Food handling and then itching is a BIG no-no. As is itching then food handling of course :)

Hope this is "disgusting" enough to match what you thought your own to be :)

cougie23 Explorer
cougie23
Posted

:blink: At this point...when the disscusion involves Celiacs....ANYTHING is possible! :lol:

Persoally...I don't have those symtoms, but the teen across the street has "wheat allergies" as well as dairy...and SHE has SEVERE acne! If she eats gluten...her acne gets REALLY bad! My son has a dairy intolerance...and if HE ingests dairy....besides stomache and intestinal problems...breaks out severely on his face and back..(he's 22).

I've heard of others having a symilar reaction....Its quite possible to have a acne-like reaction to eating gluten...especially if your body can't handle it! :o:)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Ginger38
      - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away
    2. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of...
    3. Ginger38
      - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this. He couldn’t guarantee me a negative biopsy meant ...
    4. Scott Adams
      - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until...
    5. Scott Adams
      - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,472
    • Most Online (within 30 mins)
      7,748
    731049
    Newest Member
    731049
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      My only proof

      By Mari · Posted

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      Challenges eating gluten before biopsy

      By Ginger38 · Posted

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      Challenges eating gluten before biopsy

      By Scott Adams · Posted

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      Stomach hurts with movement

      By Scott Adams · Posted

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.