Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten In Other Products Besides Food?


Skittles

Recommended Posts

Skittles Enthusiast

Do we only have to watch out for gluten in the things we ingest? Anything else like make up or creams?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BabsV Enthusiast

Anything that you ingest should be gluten free.

I've heard some doctors say to not worry about shampoo or cosmetics (except for anything you put on your lips because that will end up in your system) but I am much more cautious. I mean, I sing in the shower so shampoo/conditioner/soaps have a chance of getting in my mouth where I'd swallow them. Also, I feel better being cautious and using only gluten-free cosmetics, lotions, etc. Gluten made me a very very very sick person so I am not taking any chances that traces of it are going to sneak into my system if I can avoid it!

Gemini Experienced

Do we only have to watch out for gluten in the things we ingest? Anything else like make up or creams?

It is a personal choice issue, not a medical necessity. It all depends on your personal habits and whether you feel that they will contribute to ingesting gluten into your GI tract. I am a bath person and rarely take showers anyway.....much easier to not ingest soap in a bathtub vs. a shower.

I do not screen make-up and I am an extremely sensitive, diagnosed Celiac. Except for lipstick, lip products and body/hand cream, I have never found it necessary to give up the expensive make-up I use because of ingestion worries. You will also find that the pricier make-up generally does not contain gluten anyway, as wheat is a cheap filler. I've been doing this for 7 years and feel great and have extremely low antibody counts whenever I am re-tested. It can be done without too much problem but it all depends on how comfortable you feel about it.

woodnewt Rookie

Do we only have to watch out for gluten in the things we ingest? Anything else like make up or creams?

Pretty much need to watch out for anything that could end up in your mouth.

Going to emphasize dish washing soap, the kind you buy at the health food store in particular. Be wary of anything that says plant protein or extracts - it may be from vital wheat gluten.

Mom-of-Two Contributor

You need to watch your lotions in particular- think about putting it on your hands and then preparing a salad or cutting veggies- that type of thing.

Chap sticks or lip balms for sure, but I find it easier to just check my personal products- Dove products are gluten free, their body wash and shampoos, deodorants. Check your toothpaste!

I prefer to keep it all gluten free, just easier to rule out any potential issues. It's not too difficult really, and if you can't get your answer online, I have called and emailed about products.

Skittles Enthusiast

Pretty much need to watch out for anything that could end up in your mouth.

Going to emphasize dish washing soap, the kind you buy at the health food store in particular. Be wary of anything that says plant protein or extracts - it may be from vital wheat gluten.

wow I never even thought of dish soap! Thanks!!

Gemini Experienced

Pretty much need to watch out for anything that could end up in your mouth.

Going to emphasize dish washing soap, the kind you buy at the health food store in particular. Be wary of anything that says plant protein or extracts - it may be from vital wheat gluten.

I have never seen any dish washing soap that contained gluten. They may exist but I have never seen one. Also, do you not rinse your dishes well after washing or do you let the soap dry on the dish? That would be the only issue with dish washing detergent being a problem for a Celiac AND it would have to contain gluten.

This is a common sense issue more than anything else. Dish washing detergents for hand washing of dishes or the dishwasher are just not a concern, unless you do the above.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



woodnewt Rookie

I have never seen any dish washing soap that contained gluten. They may exist but I have never seen one. Also, do you not rinse your dishes well after washing or do you let the soap dry on the dish? That would be the only issue with dish washing detergent being a problem for a Celiac AND it would have to contain gluten.

This is a common sense issue more than anything else. Dish washing detergents for hand washing of dishes or the dishwasher are just not a concern, unless you do the above.

This is not a common sense issue. You would think it is but it's not. No one really suspects dish soap, and if gluten is in the dish soap, every day exposure WILL happen. I want people to be aware of this because I don't want anyone else to go through what I did because of dish soap.

The "cross contamination" issue that caused me to become extremely ill and lose over 40 lbs nearly three years ago was from dish washing soap. I am not the only person in my household with celiac disease, and another family member became even more ill than I did. At the time we knew something was wrong, but couldn't figure out what it was other than it felt like we were being poisoned, but there was NO gluten in any of the foods we were eating. We cut our diet cut down to nothing but fresh bananas, olive oil, and fresh meat at one point, and STILL weight loss, classic digestive symptoms, and worse. I was losing weight at 3-5 lbs a week, nonstop. This went on for almost 3 months until I was skeletal. Then I started going through all of our non-food products. The brand of dish washing soap we had switched to 3 months prior, and had been using exclusively for all those three months, listed plant protein on the label - when I looked up the ingredients on the company's online website - I discovered that the plant protein was sourced from wheat gluten. I don't know if the company has since changed their product label to list "gluten" as an ingredient instead of "plant protein" but I sure as heck hope they have.

Open Original Shared Link

After the dish soap and all dish scrubs were replaced, the weight loss stopped. This 3-month nightmare took me nearly a year to recover from, and frankly, based on the way I have to eat now to feel "normal," I would say I have not truly recovered.

I wash ALL my dishes well and rinse in hot water until they are squeaky clean. There is never any visible soap residue on any of the dishes. Traces of the gluten were somehow getting into our food.

The concern is VERY real.

Skittles Enthusiast

This is not a common sense issue. You would think it is but it's not. No one really suspects dish soap, and if gluten is in the dish soap, every day exposure WILL happen. I want people to be aware of this because I don't want anyone else to go through what I did because of dish soap.

The "cross contamination" issue that caused me to become extremely ill and lose over 40 lbs nearly three years ago was from dish washing soap. I am not the only person in my household with celiac disease, and another family member became even more ill than I did. At the time we knew something was wrong, but couldn't figure out what it was other than it felt like we were being poisoned, but there was NO gluten in any of the foods we were eating. We cut our diet cut down to nothing but fresh bananas, olive oil, and fresh meat at one point, and STILL weight loss, classic digestive symptoms, and worse. I was losing weight at 3-5 lbs a week, nonstop. This went on for almost 3 months until I was skeletal. Then I started going through all of our non-food products. The brand of dish washing soap we had switched to 3 months prior, and had been using exclusively for all those three months, listed plant protein on the label - when I looked up the ingredients on the company's online website - I discovered that the plant protein was sourced from wheat gluten. I don't know if the company has since changed their product label to list "gluten" as an ingredient instead of "plant protein" but I sure as heck hope they have.

Open Original Shared Link

After the dish soap and all dish scrubs were replaced, the weight loss stopped. This 3-month nightmare took me nearly a year to recover from, and frankly, based on the way I have to eat now to feel "normal," I would say I have not truly recovered.

I wash ALL my dishes well and rinse in hot water until they are squeaky clean. There is never any visible soap residue on any of the dishes. Traces of the gluten were somehow getting into our food.

The concern is VERY real.

Well thank you very much for the info Woodnewt.. I would never have thought of that but really it does make sense!

cblackb1 Newbie

Do we only have to watch out for gluten in the things we ingest? Anything else like make up or creams?

I check everything and am completely gluten free. My dogfood for my dogs is gluten free as well as their treats, my makeup and shampoo/ laundry detergent. Why take the risk??

Gemini Experienced

This is not a common sense issue. You would think it is but it's not. No one really suspects dish soap, and if gluten is in the dish soap, every day exposure WILL happen. I want people to be aware of this because I don't want anyone else to go through what I did because of dish soap.

The "cross contamination" issue that caused me to become extremely ill and lose over 40 lbs nearly three years ago was from dish washing soap. I am not the only person in my household with celiac disease, and another family member became even more ill than I did. At the time we knew something was wrong, but couldn't figure out what it was other than it felt like we were being poisoned, but there was NO gluten in any of the foods we were eating. We cut our diet cut down to nothing but fresh bananas, olive oil, and fresh meat at one point, and STILL weight loss, classic digestive symptoms, and worse. I was losing weight at 3-5 lbs a week, nonstop. This went on for almost 3 months until I was skeletal. Then I started going through all of our non-food products. The brand of dish washing soap we had switched to 3 months prior, and had been using exclusively for all those three months, listed plant protein on the label - when I looked up the ingredients on the company's online website - I discovered that the plant protein was sourced from wheat gluten. I don't know if the company has since changed their product label to list "gluten" as an ingredient instead of "plant protein" but I sure as heck hope they have.

Open Original Shared Link

After the dish soap and all dish scrubs were replaced, the weight loss stopped. This 3-month nightmare took me nearly a year to recover from, and frankly, based on the way I have to eat now to feel "normal," I would say I have not truly recovered.

I wash ALL my dishes well and rinse in hot water until they are squeaky clean. There is never any visible soap residue on any of the dishes. Traces of the gluten were somehow getting into our food.

The concern is VERY real.

Sorry.....unless you are eating soap, it's not an issue. I have yet to see any Celiac organization warn about dishwasher soap and there should not be any soap residue on plates from hand washing or running through a dishwasher. If there is, then better rinsing needs to be done. It is a common sense issue. However, if people want to believe that you can be glutened from dish soap, that's their choice.

I was also skeletal when diagnosed so I was in the same place as you. The company that sells that particular soap does not need to put "gluten" on the label as who would be eating soap? They are not required to label it as such.

woodnewt Rookie

Sorry.....unless you are eating soap, it's not an issue. I have yet to see any Celiac organization warn about dishwasher soap and there should not be any soap residue on plates from hand washing or running through a dishwasher. If there is, then better rinsing needs to be done. It is a common sense issue. However, if people want to believe that you can be glutened from dish soap, that's their choice.

I was also skeletal when diagnosed so I was in the same place as you. The company that sells that particular soap does not need to put "gluten" on the label as who would be eating soap? They are not required to label it as such.

Wow. This response is just inconsiderate and downright vicious. I explained what happened to me and then you attack my integrity? Why? I went through hell, my other family member went through a chain reaction of health issues and HAS NOT recovered - he is still going through hell, and you tell me this is either an in-your-head "if you want to believe it that's your choice" or I must have been washing dishes poorly and "eating soap"?

Please, go use this soap exclusively for washing dishes for all your meals, home prepared 3-4 times a day, all cups, spoons, forks, knives if you feel there is ZERO RISK of any contamination. This is not a one time exposure to soap with gluten but a 3-month constant exposure. It's bad enough to have to deal with CC issues from foods. The company SHOULD put wheat on their label if they are using it as an ingredient; it is deceptive not to. And on a side thought, based on this logic, what about someone who gets an anaphylactic reaction to wheat - as long as dishes are washed well, is it safe use dish soaps with wheat ingredients? I would think not.

mamaupupup Contributor

I appreciate every personal experience on this forum, including yours, woodnewt. Thank you very much for pointing out the dishsoap issue. I will check ours first thing in the am!

I am all for reducing gluten in as many places as possible. We have tried to remove gluten from every aspect of our children's lives (including toiletries, play makeup, etc.). We feel that if they have a solid "clean" environment at home, the cross-contamination which exists outside our home and often is beyond our control will impact their bodies to a lesser degree.

I hope this one makes you all smile...

On a more amusing note, my husband has a tropical saltwater aquarium. He was a bit annoyed when I asked if the flake fish food has gluten. He thought there was no way it did. A few days later he proudly held up new cans of gluten free fish food declaring that all of his previous fish food does have gluten. He promptly gathered up the old stuff and is passing the contaminated food off to friends for their non-gluten-free fishies. When my husband was out of town, I was on fish duty. As I fed the fish their wonderful pure seaweed and brine shrimp dinner it was a feeding frenzy--it was as if the fish were saying, "This is the BEST fish food I've ever tasted!" They were so so happy -- clearly the fish are less foggy on a gluten free diet! It was a riot, I almost videotaped it!

...and, no, our kids weren't eating the fish food...but they did often pick up the cans of food, help feed the fish, then come to dinner...we always encouraged handwashing, but things slip through the cracks...we are all much more relaxed now that we have fewer points of gluten around...off to check out the soap :) Thank you!!!

squirmingitch Veteran

woodnewt, I'm wondering if you use/d the soapy dishrag to wash the counter tops down as so many of us do?

ravenwoodglass Mentor

woodnewt, I'm wondering if you use/d the soapy dishrag to wash the counter tops down as so many of us do?

There is also the issue of residue being left on your hands after washing the dishes. How many of us wash our hands with a for sure safe hand soap after washing the dishes. My feeling has always been better safe than sorry when it comes to gluten exposure and since there are so many safe alternatives it just makes sense to me to use one of them.

woodnewt Rookie

I use paper towels, not soapy dishrags to wipe counters. Also doubt the soap being left on hands was the issue. It would not explain the other family member who does not do dishes. I am not the one who cooks and prepares his food.

Dish soap is supposed to be amphipathic with one end of the molecule hydrophobic sticking to the oils on dirty dishes and the other end hydrophilic being washed away by water. With this dish soap, there were hardly any suds at all. If a person had used this soap at all, they’d understand that it’s not quite like "traditional" (petroleum-based) dish soaps. It's likely the 'eco-friendly' soap residue wasn’t completely washing away despite good dish washing, related to chemical composition.

mamaupupup>> I don't have any fish, but it seems probable that most fish food would be gluten based (most pet foods are). Didn't know gluten-free fish food exists, but it makes sense! What lucky fish you have. I'm sure their fish flakes/bits taste marvelous. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - daniellelawson2011 replied to daniellelawson2011's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Lab results

    2. - trents replied to daniellelawson2011's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Lab results

    3. - daniellelawson2011 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Lab results

    4. - Joe R replied to Joe R's topic in Related Issues & Disorders
      2

      Immunologist Referral if IgA Deficient

    5. - nanny marley replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Help needed


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,695
    • Most Online (within 30 mins)
      7,748

    NeonCrest1
    Newest Member
    NeonCrest1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • daniellelawson2011
      Thank you for the welcome and reply. The first test was tissue transglutaminase IGA and it was normal. The second test just simply says IGA and it was 638. You definitely answered my question, it sounds like im negative for celiac since the 1st test was normal, and that another condition has caused the abnormal result of the IGA. That's exactly what I was wondering. Im almost positive I have MS and I've read results are higher like that with early onset. Or it could be IBS. Hopefully the visit with the neurologist will give me even more answers and point to a final diagnosis. I really appreciate you taking the time to reply and for helping. Thank you so much!
    • trents
      Welcome to the forum, @daniellelawson2011! First, we need to deal with terminology here. When you refer to the "ttg" test I take that to mean the ttg-iga. And when you refer to the "iga" test I take that to mean total iga since the magnitude of the score would suggest that. Total iga is not a test for celiac disease per se. It is run in order to check for iga deficiency. If you are iga deficient, then the ttg-iga and other iga tests that are specific for celiac disease will be abnormally low and this would potentially produce false negatives. You are not iga deficient but, rather, your total iga is abnormally high. This can suggest underlying health conditions, some of them can be serious in nature.  https://labs.selfdecode.com/blog/high-iga/ "High IgA usually points to chronic infections or inflammation, though many disorders can raise its levels. High IgA does not cause symptoms. People show symptoms from their underlying health problem." One thing I might add and that is you must have been eating normal amounts of gluten for weeks/months prior to the blood draw for antibody testing. Testing while on a gluten free or gluten reduced diet will not yield valid results. Also, here is a primer outlining the various antibody tests that can be ordered to check for celiac disease:  
    • daniellelawson2011
      After struggling with many different symptoms for years with no diagnosis, I decided to do my own research and I stumbled upon an article about celiac disease. I asked my PCP to order a ttg and iga. The results: the iga was high at 638. The ttg was negative. Of course I will discuss with my doctor, but i would like to hear from people that have went through the process of diagnosis to maybe give me some insight on what this means and where to go from here. Also of note, i had a brain mri which showed white lesions which arent typical at 44 years old. I have many MS symptoms. I go to the neurologist on Tuesday, but just curious if anyone knows if there is a correlation between iga and MS. I appreciate any help! Thanks!
    • Joe R
      Thank you for your advice. I appreciate the help. 
    • nanny marley
      Thankyou so much for your reply I decided to skip the senna has I've already had very loose stools last few days I've cut my portions down on the low fiber diet too and drinking lots of liquid has I just thought it would be wise to listen to myself too I've probably already done wat the senna would of done myself naturally by drinking clear apple juice which if not on the diet I would have to avoid anyways has I don't tolerate many fruit juices so I'm sure I've done the right thing I did try to contact the department on my letter but weirdly enough it was ringing but then after a while saying wrong number 🤷 but again I'm positive I've done the right thing I'm going to take today very lightly too with low portions and more liquids so yes thankyou for that advise I am very nervous but I have had time to think and read other peoples experiences and not all are bad there is some good advise and reassuring information from people who do these all the time so I'm trying my best to be positive so I can at least settle my mind knowing im doing this to help my own health has this year has been a rollercoaster for me cutting out gluten and lactose was a good idea but I still get flare ups and other symptoms so it definitely is worth a check like you said it was the calprotein that prompted the doctor to refer me again thankyou for your reply it's means a lot for someone to take the time to listen and respond and give uplifting advise  especially to me just now has I'm a bundle of nerves inside getting closer to tomorrow prep so thankyou for that 🙏
×
×
  • Create New...