Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy Today

MistyRG

Recommended Posts

MistyRG Apprentice
MistyRG
Posted

I had my intestinal biopsy done today. Preliminary report is that everything looks normal. I should be happy, but I am confused! I know we have to wait for the results for a definitve answer, but I guess I assumed they would see something.

Has anyone has a normal looking preliminary result followed by a positive biopsy?

I am also waiting on biopsy results of my rash. Is it possible to have the rash positive and maybe too early for intestinal issues?

I had 3 positive blood tests, including a positive EMA. Everyone says that is celiac specific showing damage, which is why I am confused with the "normal" report.

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


roxieb73 Contributor
roxieb73
Posted

I had my intestinal biopsy done today. Preliminary report is that everything looks normal. I should be happy, but I am confused! I know we have to wait for the results for a definitve answer, but I guess I assumed they would see something.

Has anyone has a normal looking preliminary result followed by a positive biopsy?

I am also waiting on biopsy results of my rash. Is it possible to have the rash positive and maybe too early for intestinal issues?

I had 3 positive blood tests, including a positive EMA. Everyone says that is celiac specific showing damage, which is why I am confused with the "normal" report.

Thanks!

I would wait for results. If you had a positive blood test I wouldn't worry about the biopsy. Could be they just got a bad sample. Everything I read says there are very few false positives. I would go with that. On another note can you describe your rash you had? I have had what I believe to be the celiac rash but it would be nice to compare notes. :D

ravenwoodglass Mentor
ravenwoodglass
Posted

You have had positive blood work so you do need the diet no matter what the biopsy results. Yes there have been folks that were told everything looked fine and then had the biopsy show up as positive but false negatives are not uncommon. You don't need to wait for the biopsy results and should get on the diet today.

MistyRG Apprentice
MistyRG
Posted
  • Author

My rash is extremely itchy red bumps. Some are clusters and some single. Some had fluid filled blisters. I have had 2 outbreaks, and they started on my elbows ans went up and down my arms. Then spread to my knees.

Pics.

DSC_5193.webp

DSC_5177.webp

Thank you for your replies! It is hard yo be patient!!

squirmingitch Veteran
squirmingitch
Posted

Misty, SURE looks & sounds like dh to me & I outta know! Go gluten free immediately! You now know you have the antibodies in your skin --- the rash is telling you that. Take it from me --- you don't want it to go any farther! It's going to take a while for the antibodies to leave your skin as it is; please quit gluten now & try to save yourself some grief.

Your blood work says you have celiac disease. Now the rahs is telling you that you have dh & dh = celiac disease. Your biopsy is a moot point now. You have celiac disease.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,824
    • Most Online (within 30 mins)
      7,748
    RuthD
    Newest Member
    RuthD
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      TTG IgA 0.30 U/ml: further tests?

      By RMJ · Posted

      Reference range 0.00 to 10.00 means that within that range is normal, so not celiac. There are other antibodies that can be present in celiac disease and they don’t all have to be positive to have celiac.  I’m sure someone else will post a link to an article describing them! Plus, if you are IgA deficient the celiac IgA tests won’t be accurate.
    • cristiana
      Gluten Intolerance And Low White Blood Cell Counts?

      By cristiana · Posted

      Great to have another UK person on the forum!   Re: blood tests, it sounds as if you are being well monitored but if you have any further concerns about blood tests or anything else, do not hesitate to start a new thread. Cristiana  
    • Lori Lavell
      The patient is positive for DQA1*05, one half of the DQ2 heterodimer

      By Lori Lavell · Posted

      Julia530 - I have the same gene structure and most of the symptoms you have experienced plus more.....I agree with you whole heartedly!! There are approximately 10 (NOT TWO) genes that can predispose a person to having Celiac Disease. I read in Pub Med that HLA DQA1:05  can result in Celiac Disease in approximately 1 in 875 people. While it is obviously more rare it is NOT BENIGN and should not go unnoticed. Go get the book "NO GRAIN, NO PAIN" and I highly suggest you read it cover to cover. It is written by a Chiropractor who quit his medical education when the VA wouldn't allow him to treat the Veterans with debilitating arthritis with a grain free diet. I have been grain free for over 10 years now.....the facts are we are being lied to! There is a form or gluten in every protein in every grain on the planet of which there are 1000 or more. Just because all they are testing for is the Gliadin in wheat is no excuse to report only partial facts. I became a Certified Function Nutrition Counselor who specializes in Celiac Disease other Autoimmune conditions. Lavell Krueger, CFNC - lavellnutrition    aol
    • lookingforanswersone
      TTG IgA 0.30 U/ml: further tests?

      By lookingforanswersone · Posted

      Hi, just looked and it doesn't list that. Says : Tissue Transglutaminase (IgA)  0.30 (results - negative) U/ml (Units ) Reference range 0.00 - 10.00
    • Suze046
      Gluten Intolerance And Low White Blood Cell Counts?

      By Suze046 · Posted

      Hey! Thanks and yes of course I’m posting from England. Thanks for the info 😊my count has been up and down for over a year and my platelets are slightly low too but have actually just increased again.
×
×
  • Create New...