Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Abdominal Pain

JaimiK

Recommended Posts

JaimiK Newbie
JaimiK
Posted

I was diagnosed with Celiac disease 5 years ago. I am on a 100% gluten-free diet, and have been for 5 years. I eat very healthy & am in overall great health. I have chronic, unexplained stomach pain, in the epigastric region. I've had an upper GI and abdominal ultrasounds, all normal. I'm on Dexilant & Carafate for GERD, but I'm not so sure that's causing my pain, as the meds don't seem to work. I'm at the end of my rope with this chronic pain that seems to have no apparent cause. I take Levsin or Bentyl to try to help it, but that barely touches the pain. Sometimes I'll go a month with no stomach ache, then I'll have one every day for 2 weeks.

Does anyone else with Celiac disease just have their stomach hurt, even with no gluten? Is it possible that Celiac disease can just cause stomach pain, like other diseases cause headaches?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BabsV Enthusiast
BabsV
Posted

I was diagnosed with Celiac disease 5 years ago. I am on a 100% gluten-free diet, and have been for 5 years. I eat very healthy & am in overall great health. I have chronic, unexplained stomach pain, in the epigastric region. I've had an upper GI and abdominal ultrasounds, all normal. I'm on Dexilant & Carafate for GERD, but I'm not so sure that's causing my pain, as the meds don't seem to work. I'm at the end of my rope with this chronic pain that seems to have no apparent cause. I take Levsin or Bentyl to try to help it, but that barely touches the pain. Sometimes I'll go a month with no stomach ache, then I'll have one every day for 2 weeks.

Does anyone else with Celiac disease just have their stomach hurt, even with no gluten? Is it possible that Celiac disease can just cause stomach pain, like other diseases cause headaches?

I have abdominal pain that they can't find a cause for...it is epigastric. Have been scoped, ultrasound, CT scan, etc. Nothing shows up. Currently I'm on 20mg amitriptyline in the evening which makes allows me to function at a somewhat normal level but I've only had a handful of pain-free days in the last year.

I've been doing some research and while reading about the enteric nervous system found some mention of new research being done, mostly in the context of those who are considered to suffer IBS, where inflammation in the gut (gee, hmmm, maybe from undiagnosed Celiac Disease since my debilitating pain started 3 months prior to diagnosis?) messes up the enteric nervous system and how it conveys messages of pain. Sometimes people seem to feel pain from just normal gut function. Anyway, I'm starting to wonder if this could part of the pain problem I've been having. It is a really new field of study...

From what I've read they have shown cognitive behavior therapy helps some patients deal with the pain. Some have responded to hypnosis. Stress is also supposed to make it worse.

1desperateladysaved Proficient
1desperateladysaved
Posted

I went grain free in order to get control of my body. There also could be other food intolerances that you may want to consider. Get better soon, please.

  • 3 weeks later...
tams676 Newbie
tams676
Posted

I have been gluten free since December of 2011. I just recently went to the ER for pains in my right side. We have not been able to find the problem. I am wondering if it is the same thing. I am not too excited to do more testing, because it always costs so much and we find out nothing. I am sorry for you, but it gives me hope that i may just have to live with it.

TTNOGluten Explorer
TTNOGluten
Posted

I have not posted in quite some time out of frustration, mostly because I have been depressed about my situation and lack of improvement. I have been gluten free for nearly a year, and have had more tests than humanly possible in one year, including 4 EGD's, my biopsies and labs have normalized more than 6 months ago, yet I have been left with persistent 24/7 abdominal pain in the epigastric region that radiates into my back and right rib cage. I have been to some of the most respected Gi docs, and they have absolutely no explanation for my constant pain. Even after having my gallbladder out, the pain is constant. I now live a life of existence. Last year prior to the start of this I was quite possibly one of the healthiest guys I know, and didn't take so much as an occasional motrin. Now I am on chronic narcotics to function and continue to work and take care of my kids, and they just barely take the edge off. I have constant pain, and no it is not cross contamination, it is constant everyday of my life every minute of every day, day and night, with completely now normal labs and biopsies. I have modified my diet from every conceivable fashion, including lactose, you name it and not a stitch of improvement. So I feel your pain, I wish to god someone had any insight into this, as my life has basically been ruined and there are many days when I wonder if I am going to make it. I cannot imagine that my body will hold up for another year feeling like this

icm Apprentice
icm
Posted

Have you done a CDSA (complete digestive stool analysis) test?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,538
    • Most Online (within 30 mins)
      7,748
    Josiemc
    Newest Member
    Josiemc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.