Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kentucky

swittenauer

Recommended Posts

swittenauer Enthusiast
swittenauer
Posted

Just curious if anyone is from Kentucky or southern Indiana.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LisaR Newbie
LisaR
Posted

I'm from Murray, KY. LBL land.

kvogt Rookie
kvogt
Posted

We have a support group in Louisville. See www.glutenfreelouisville.org if you are interested. We're happy to help. We have folks come from as far as Lexington, Elizabethtown and others. The rest of KY seems to be wanting for support groups, unfortunately.

  • 2 weeks later...
swittenauer Enthusiast
swittenauer
Posted
  • Author

Thanks for the info kvogt! I'm just surprised I haven't run across any more people on here from KY.

ILOVEOMC Enthusiast
ILOVEOMC
Posted
:D The southern part of Dayton, Ohio. We go to Cincinnati a lot to visit my husband's family.
  • 4 months later...
falwell57 Newbie
falwell57
Posted

Just curious if anyone is from Kentucky or southern Indiana.

quote]

I am forming a celiac/gluten sensitivity support group in Lexington, starting in March. We will meet the 4th Thursday of the month at Good Foods Market/Cafe on Southland Drive, from 7-9. I hope even with the few I know of now, we can grow and help a lot of people in the Lexington/Georgetown area and the surrounding areas. We sure need one. Please contact me if you need help. Jan Falwell in Georgetown

tiredofdoctors Enthusiast
tiredofdoctors
Posted

YES!!!!!!!! I have been trying to find the support group for Louisville, KY -- I'm about to jump up and down -- except the little poodle on my lap is ALREADY mad at me for being on the computer :lol:

I had e-mailed two of the people listed a couple of times, but didn't receive a response, so just figured that the support group had fizzled out. This is really good to know. Will be looking up the website today . . . .

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 months later...
HayCobb Newbie
HayCobb
Posted

I am in Southeast Kentucky and have bought some products at Good Foods Market when I have been in Lexington. I wish that we could have some better choices on products here, but it a rural area. My daughter is 5 years old and has been diagnosed for about 2 years now. I have also found a good little store in Berea to get the chocolate chip cookies she loves. If anyone knows of a support group in SE KY, I would love to know about it.

  • 2 months later...
lucycampbell55 Rookie
lucycampbell55
Posted

I noticed there hasn't been any posts here for a while. Is anyone from KY still here? I live in the mountains of Southeastern ky and as far as I know I'm the only celiac.

I've been a member for a long time, just haven't posted in a long time.

Hope someone is still posting from KY.

Lucy

swittenauer Enthusiast
swittenauer
Posted
  • Author

Hi! I'm still posting. We are in Oldham County, Kentucky.

lucycampbell55 Rookie
lucycampbell55
Posted

Hi

Not exactly sure where that is. I'm from Letcher County. Near the KY/VA border. About 30 miles souteast of Hazard.

swittenauer Enthusiast
swittenauer
Posted
  • Author

We are just north of Louisville, Kentucky.

falwell57 Newbie
falwell57
Posted

Yes, our Support is up and going in Lexington. We are the GFLA - CDF (Gluten Free in the Lexington Area - a Celiac Disease Foundation Connections group. We meet monthly at Good Foods in Lexington on 3rd Thursday evenings at 7 pm. (July 27) We also have a great meeting scheduled for the 20th with Dr. Razvan Arsenescue of UK Digestive Center who will be speaking at Young Library Auditorium this coming Thursday, July 20 at 6:30 pm. Please email us at gfla-cdf@hotmail.com for more information. Our group is growing by leaps and bounds and we are here to help everyone in the area. Jan and Judy/Lexington

tiredofdoctors Enthusiast
tiredofdoctors
Posted

I'm from Louisville, KY. Had to laugh . . . I e-mailed the support group here in February, and finally got a response in June . . . . don't know if I'm interested in going or not.

lucycampbell55 Rookie
lucycampbell55
Posted

:D I guess their real busy. I think I might be a little bit to far away to attend the meetings. I'm 150 miles from Lexington and even further from Louisville. ;-)

I doubt if I could go if I was close enough. I don't go out much. I have a problem being around people. I pretty much stay at home except for church and grocery shopping when I can't get hubby to do it. Anyone else have this problem? It's gotten worse over the years.

Lucy

swittenauer Enthusiast
swittenauer
Posted
  • Author

That must be tough. When did this begin?

lucycampbell55 Rookie
lucycampbell55
Posted

About 10 years ago. I got to the point that I would start having a panic attack if I was out. I had to quit my job and haven't been able to work since. I've been on Paxil for the last 18 months and have been able to go out more but I still have panic attacks for no reason once in a while. No where near as bad as before.

swittenauer Enthusiast
swittenauer
Posted
  • Author

Do you have a supportive family? I hope so! That must be a terrible thing to go through on top of celiac. Hopefully we can swap info & learn something from each other.

  • 2 months later...
spunky Contributor
spunky
Posted

Hi Y'all!

I'm in Northern Ky right now. We used to live in SE KY, down along the KY/TN border, back several years ago. I saw the mention of panic attacks, plus SE kY. Back in my 20's down in the mountains down there I began to have panic attacks so bad I couldn't hold down a job. I eventually found a psychologist at the local Comp Care (do they still have those????) who treated me for a year with a method called "flooding". He would go to places with me and we'd just hang around somewhere until the panic attack hit me hard, and then he would force me to stay there until it subsided a little bit. After about a year of that, I got to the point where I could manage the attacks myself, I would tell myself in a public place (or my husband would help tell me) that the panic wouldn't kill me and would subside. After many years, it finally completely left me. Now we live close to Cincinnati and attend big crowded baseball games, etc. I have hints of feeling a little uncomfortable at first, but it subsides and then I am very comfortable to be there.

These days I've discovered on my own that i have a pretty bad gluten problem...had ongoing intestinal issues for several years which became intolerable by a year ago. I've been gluten free for 8 monhts now, and the intestinal issues are clearing up pretty much. However, in my readings about gluten I did see panic attacks mentioned more than once, and am now wondering if this could have been some early warning sign in me that gluten was doing some damage????

Regardless, the biggest lesson I learned during that year of "flooding" was that if you leave the situation during the panic attack, you reinforce the panic reaction. And if you stay and let it wear off before you leave the situation, you eventually weaken that reaction. At least that's how it worked in me, and that's what the psychologist was hoping for.

Mellie Newbie
Mellie
Posted

Hello fellow Kentuckians!!! :) I'm from Louisville too! I haven't been diagnosed yet with the gluten intolerance but the Dr's said to try the gluten-free diet for about a week and I'm getting ready to do that...just so overwhelming!!! Anyway I had just heard about the group here in louisville and hope to attend a meeting next time. I'll have to look it up and put it on my calendar! ;)

btw my name is Mel and I'm 28. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Caligirl57
      - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
      34

      Severe severe mouth pain

      Thank you Knitty Kitty, what type of doctor would diagnose Barrett’s esophagus? What is involved in the testing? Thanks!
    2. Claudia Perkinson
      - Claudia Perkinson commented on Scott Adams's article in Gluten-Free Travel
      1

      Top Celiac Disease Travel Destinations and How to Eat Gluten-Free Abroad

      I had a wonderful experience in Istanbul last Spring. Before I left home, I purchased cards written in Turkish explaining that I had celiac and explaining what I could not eat. The restaurant owners were so accommodating and caring. I stayed well the entire time we were in Istanbul.
    3. knitty kitty
      - knitty kitty replied to Ginger38's topic in Related Issues & Disorders
      23

      Shingles - Could It Be Related to Gluten/ Celiac

      @Ginger38, Are you taking a B Complex vitamin? Vitamin D? Thiamine in the form TTFD or Benfotiamine? I think increasing my B Complex vitamins and taking additional Thiamine and Vitamin C and zinc helps along with the Lysine.
    4. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      34

      Severe severe mouth pain

      There's simple dietary changes that can be done to improve Barrett's esophagus. There are vitamins that improve Barrett's esophagus --- most of the B vitamins! Reducing sugary foods and drinks will help. A diet high in simple carbohydrates can deplete Thiamine and other B vitamins needed to process them into energy. Eating green leafy vegetables helps...
    5. Bogger
      - Bogger replied to Bogger's topic in Related Issues & Disorders
      2

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      Thanks for your reply I’m a nearly 69yr old female. My only medications are Fosamax and Lamotrigine for seizures. Thank you for that drugs.com link! There are soooo many common side effects for Reclast and almost nothing for Fosamax. Since it’s working well and I haven’t had any side effects from Fosamax (stomach bleeding, pain or upset) my d...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,083
    • Most Online (within 30 mins)
      7,748
    AASpahic
    Newest Member
    AASpahic
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Caligirl57
      Severe severe mouth pain

      By Caligirl57 · Posted

      Thank you Knitty Kitty, what type of doctor would diagnose Barrett’s esophagus? What is involved in the testing? Thanks!
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      @Ginger38,  Are you taking a B Complex vitamin?  Vitamin D?  Thiamine in the form TTFD or Benfotiamine? I think increasing my B Complex vitamins and taking additional Thiamine and Vitamin C and zinc helps along with the Lysine.  
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      There's simple dietary changes that can be done to improve Barrett's esophagus.  There are vitamins that improve Barrett's esophagus --- most of the B vitamins! Reducing sugary foods and drinks will help.  A diet high in simple carbohydrates can deplete Thiamine and other B vitamins needed to process them into energy. Eating green leafy vegetables helps.  Green leafy vegetables are high in Folate and Riboflavin.       Dietary sugar and Barrett’s esophagus https://pmc.ncbi.nlm.nih.gov/articles/PMC5725502/#:~:text=The major finding of the,and sugar consumption [13].     Dietary intake of vegetables, folate, and antioxidants and the risk of Barrett's esophagus https://pubmed.ncbi.nlm.nih.gov/23420329/    Intakes of dietary folate and other B vitamins are associated with risks of esophageal adenocarcinoma, Barrett's esophagus, and reflux esophagitis https://pubmed.ncbi.nlm.nih.gov/24132576/    Associations between dietary folate intake and risks of esophageal, gastric and pancreatic cancers: an overall and dose-response meta-analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC5689728/     Dietary vitamin B intake and the risk of esophageal cancer: a meta-analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC6225909/#:~:text=A statistically significant%2C inverse association,an increased risk of EC.    Intake of Dietary One-Carbon Metabolism-Related B Vitamins and the Risk of Esophageal Cancer: A Dose-Response Meta-Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC6073467/    Dietary riboflavin deficiency induces ariboflavinosis and esophageal epithelial atrophy in association with modification of gut microbiota in rats https://pubmed.ncbi.nlm.nih.gov/32458157/    Association of Vitamin D and Parathyroid Hormone With Barrett's Esophagus (parathyroid needs Pyridoxine B6) https://pubmed.ncbi.nlm.nih.gov/30180151/   "let food be your medicine, let medicine be your food. "
    • Bogger
      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      By Bogger · Posted

      Thanks for your reply I’m a nearly 69yr old female. My only medications are Fosamax and Lamotrigine for seizures. Thank you for that drugs.com link! There are soooo many common side effects for Reclast and almost nothing for Fosamax. Since it’s working well and I haven’t had any side effects from Fosamax (stomach bleeding, pain or upset) my doctor recommends it first over Reclast. Reclast is introduced into a vein thus bypassing the stomach which avoids all those stomach issues. But, once it’s in me, it’s there for a year or so. Any complications can’t be undone. With Reclast, I’m concerned about not being able to treat dental issues, several weeks of bone pain and the chance, although rare, of kidney damage. Plus all those other dozens of common side effects. It’s a very effective drug but looks pretty complicated to deal with. Hopefully I’m not just being a big chicken. In 2018 I fell and broke my ankle in two places. It took three screws to put it back together which is normal for that surgery. There was no mention of any difficulty or signs of bone loss. Thanks to my dog, I fell about a month ago onto a concrete floor with thin carpet. I landed on my left hip, then my spine, one vertebrae at a time, then clunked my head on the door frame. Twisted my wrist too. It was all in slow motion waiting to feel a crack that didn’t happen. Went to the ER tho. Amazingly, I didn’t even see any bruises. Thanks again for that link. I need to read through it some more. My doctor’s appt is next week when I’ll make the big decision.   
    • trents
      Severe severe mouth pain

      By trents · Posted

      But for someone with Barrett's like @Charlie1946, long term PPI therapy might be necessary. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.