Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Outrageous Things Doctors Have Told Me


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

*My dentist noticed the enamel off of my teeth by 1990.

*A dentist, in alarm, said you have allergies big time. 199-.

*My Obstetritian told me she thought I had 5% of my bone mass left at age about 25.

All of the above were given without advice or information about what to do. It was totally mysterious and I shrugged it off.

My chiropractor told me that my metabolism was more out of balance than people that had had chemotherapy. 1993.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Razzle Dazzle Brazell Enthusiast

*My dentist noticed the enamel off of my teeth by 1990.

*A dentist, in alarm, said you have allergies big time. 199-.

*My Obstetritian told me she thought I had 5% of my bone mass left at age about 25.

All of the above were given without advice or information about what to do. It was totally mysterious and I shrugged it off.

My chiropractor told me that my metabolism was more out of balance than people that had had chemotherapy. 1993.

Wow! I think doctors are either too busy or do not want to admit they are less than Gods and dont know everything.

I also have had enamel deficiency since I was middle school. I am now almost twenty-two. I had hyperlordosis that was completely ignored for years and no one even mentioned as well as a degenerated disc at the base of my spine that no one mentioned despite a gazillion xrays. I found out recently on out of pocket trip to a chiropractor.

dilettantesteph Collaborator

I also had enamel problems since forever. A local dentist spoke to our celiac support group recently. They are trying to educate dentists so that they will point their patients with certain celiac indicators such as enamel problems towards testing for celiac disease.

slee11211 Apprentice

Doctor told me that 9 mos of what seemed like food sickness was IBS, that I'd have it for life, and to go join a support group.

After birth of my son, I went from a size 10 to a size -2 in about 6 months...then in another 6 month back up to a size 12!

Another doctor told me that I just had chronic reflux, put me on higher and higher doses of meds, finally put me under to take a look and didn't see a thing related to celiac.

At that time, I had chronic urticaria all over my body for 3 yrs....constant sinus infections, caught every single cold etc that came my way via my son (young), depression (not diagnosed PPD, just "anxiety")

Went to an allergist through all this, came up allergic to soooo much, and he said "you seem to be allergic to something called gluten", "what's that?", "oh, it's just this sticky part in a wheat product, nothing to be concerned about" (and he completely brushed it off, so it didn't sound so important to me)..."oh, and you're also completely allergic to milk. and eggs", "so what are the hives from?", "it would appear that you're allergic to cats, it's definitely from that", "FOR THREE YEARS??", "yes"....I got up to leave, and he says this as I'm half way out the door, "Oh! You should also know that your Vit D levels are almost non-existent! Bye!"

All this info goes back to my INSANELY POPULAR NYC Doctor, who people wait for months to see, who is written about extensively in New York Mag.....and he does't come up with a THING. Nothing.

Yes, it's incredibly frustrating that a mere few months later, and a naturopathic CELIAC doc does the right blood test and what do you know...raging Celiac and thyroid issues.

Razzle Dazzle Brazell Enthusiast

Doctor told me that 9 mos of what seemed like food sickness was IBS, that I'd have it for life, and to go join a support group.

After birth of my son, I went from a size 10 to a size -2 in about 6 months...then in another 6 month back up to a size 12!

Another doctor told me that I just had chronic reflux, put me on higher and higher doses of meds, finally put me under to take a look and didn't see a thing related to celiac.

At that time, I had chronic urticaria all over my body for 3 yrs....constant sinus infections, caught every single cold etc that came my way via my son (young), depression (not diagnosed PPD, just "anxiety")

Went to an allergist through all this, came up allergic to soooo much, and he said "you seem to be allergic to something called gluten", "what's that?", "oh, it's just this sticky part in a wheat product, nothing to be concerned about" (and he completely brushed it off, so it didn't sound so important to me)..."oh, and you're also completely allergic to milk. and eggs", "so what are the hives from?", "it would appear that you're allergic to cats, it's definitely from that", "FOR THREE YEARS??", "yes"....I got up to leave, and he says this as I'm half way out the door, "Oh! You should also know that your Vit D levels are almost non-existent! Bye!"

All this info goes back to my INSANELY POPULAR NYC Doctor, who people wait for months to see, who is written about extensively in New York Mag.....and he does't come up with a THING. Nothing.

Yes, it's incredibly frustrating that a mere few months later, and a naturopathic CELIAC doc does the right blood test and what do you know...raging Celiac and thyroid issues.

That is insane! It is ironic that medical doctor is the highest regarded profession and yet many of them dont pay any attention to what they are doing with people. It is like ordering soup and getting a bowl full of broth, a bowl of carrots, a bowl of uncooked chicken, a bowl of spices... It just makes no sense to me. We got each other though on this forum and we have to be our own advocates. I hope you and the OP get well.

Razzle Dazzle Brazell Enthusiast

I also had enamel problems since forever. A local dentist spoke to our celiac support group recently. They are trying to educate dentists so that they will point their patients with certain celiac indicators such as enamel problems towards testing for celiac disease.

That is very good. I wish my dentist would have thought, "This is odd; this girl is only ten and has enamel deficiency."He just mentioned it to me after my complaining of my teeth staying stained even though i dont drink tea or coffee.

catsmeow Contributor

I have a severe wheat allergy.

I had one allergy doctor refuse to do food allergy testing on me, and told me that I have Vasomoto allergies (allergies without a cause), and I would be sick for the rest of my life, no medications would help, and he could do nothing for me, and there was nothing I could do about it. :blink:

Another doctor told me that my anaphylactic reactions were menopausal symptoms....LMAO. Wheat induced menopause....OMGosh!!! I'm not even in menopause. Someone quick, write a case study about me, I'm a medical anomaly!!! :P

Finally, another doctor tested me for food allergies and said, you have a severe wheat allergy and must be gluten free for life and carry an epi-pen. :)

Thank you for this thread, I needed some humor today....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient
Thank you for this thread, I needed some humor today....

Your welcome, It is best to take things with some humor. It is better than crying about it. :lol:

catsmeow Contributor

Thank you for this thread, I needed some humor today....

Your welcome, It is best to take things with some humor. It is better than crying about it. :lol:

You are right, I like humor better. I've cried plenty!!! :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    2. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

    3. - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    4. - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    5. - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,837
    • Most Online (within 30 mins)
      7,748

    Juliane
    Newest Member
    Juliane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.