Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Those Who Gave Up Dairy...

Christine0125

Recommended Posts

Christine0125 Contributor
Christine0125
Posted

How long did you avoid dairy before reintroducing it and were you successful?

I've been officially gluten free since April but semi gluten-free since the beginning of the year (had to go back on for a challenge). I'm at the point I need to admit dairy is causing issues. I was in denial and ate gluten free pizza last night (don't worry - not dominos) and am now paying for it; same issue with a bowl of ice cream a week ago. Up until a few weeks ago I was enjoying dairy without significant issues (maybe a little heaviness in my stomach but very manageable and frankly worth the mild discomfort). Trying to look at the positive side, I'm hoping this is a sign that my system is healing as I've heard dairy intolerance is common early on after diagnosis.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

The first time I went off cow dairy it was at the same time as I went off gluten. It took a year until I could eat it again without a stomachache, though I'm not sure I tried sooner. I tolerated goat and sheep dairy that time.

I have been feeling poorly overall and went back off dairy again after eating it five years. I've been off dairy since last October. This time the reaction is fatigue and sometimes stomach trouble. I did OK with a little goat cheese last month and I can cook with ghee so that was six months. I tried some regular cheese yesterday and it made me nauseous though.

benXX Rookie
benXX
Posted

Google for "dangers of milk" and get shocked. You might not want to go back on dairy products now you have learned to do without.

Skylark Collaborator
Skylark
Posted

Google for "dangers of milk" and get shocked. You might not want to go back on dairy products now you have learned to do without.

Look in the legitimate medical literature (which does not show up on Google) and you will get an entirely different picture. Most of the health information on the Internet is garbage.

Gemini Experienced
Gemini
Posted

I hate to say this but I am still at the dairy "very light" stage and it ain't coming back for me. I do fine with small amounts like milk in my tea and a little cheese sprinkled on food but if I eat ice cream, pudding or any large hit of dairy, I may as well have taken a laxative. :huh: It's been 7 years so I no longer am upset about it. Going dairy light feels better for me anyway.

At least I can eat a little, where it counts.

benXX Rookie
benXX
Posted

Look in the legitimate medical literature (which does not show up on Google) and you will get an entirely different picture. Most of the health information on the Internet is garbage.

oooops our info on celiac is on the internet too ...

FWIW Asians and Africans seem to do very well without dairy

Skylark Collaborator
Skylark
Posted

oooops our info on celiac is on the internet too ...

FWIW Asians and Africans seem to do very well without dairy

Yep and a fair amount of wrong/inaccurate answers on the forum too. ;) There are quite a few of us who spend a lot of time and effort correcting misconceptions.

Agreed that some people seem to have a better genetic background to eat dairy than others.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted

How long did you avoid dairy before reintroducing it and were you successful?

I've been officially gluten free since April but semi gluten-free since the beginning of the year (had to go back on for a challenge). I'm at the point I need to admit dairy is causing issues. I was in denial and ate gluten free pizza last night (don't worry - not dominos) and am now paying for it; same issue with a bowl of ice cream a week ago. Up until a few weeks ago I was enjoying dairy without significant issues (maybe a little heaviness in my stomach but very manageable and frankly worth the mild discomfort). Trying to look at the positive side, I'm hoping this is a sign that my system is healing as I've heard dairy intolerance is common early on after diagnosis.

So, if I understand right you have gone 2-3 months gluten-free, then tried milk and had a problem with the milk. My suggestion is that you wait another 2-3 months and try again. Assuming you do not have a problem with milk, you still will need your gut to heal before it can handle it. Depending how bad you were, and how quickly you normally heal that could be as much as a year or two. (base on my reading of others experiences on this board) Every one is different.

Mom23boys Contributor
Mom23boys
Posted

I tend to agree with the no dairy crowd.

GFinDC Veteran
GFinDC
Posted

I can do a just a small amount of dairy but don't eat it regularly and don't buy it. It just doesn't work out too well for me. But there are plenty of options for dairy substitutes around these days. Some studies have said up to 18 months for healing of the villi. There is also the issue of gut flora being re-establsihed to process dairy. Probiotics can help with that. But everyone has to test for themselves to see how their own bodies react. We are not all the same.

Christine0125 Contributor
Christine0125
Posted
  • Author

So, if I understand right you have gone 2-3 months gluten-free, then tried milk and had a problem with the milk. My suggestion is that you wait another 2-3 months and try again. Assuming you do not have a problem with milk, you still will need your gut to heal before it can handle it. Depending how bad you were, and how quickly you normally heal that could be as much as a year or two. (base on my reading of others experiences on this board) Every one is different.

Yes... About 2 months gluten free since my last gluten challenge. I seemed to tolerate dairy without issue until the last 2 weeks. Of course it's right before vacation and gluten-free and dairy free will be even more challenging. Bummer! I am ready for a break thru without these roller coaster symptoms. The endoscopy showed subtotal villous atrophy but I am just not a patient person by nature.

deb445 Rookie
deb445
Posted

I'm not saying this to create conflict...I have found with personal experience breast feeding my children...what you eat, ends up in your milk. One little slip up in MY diet, would result in vomiting, rashes, gi distress in my son.

And I think with that being said, all the grain sludge that cows consume, inevitably ends up in their milk.

IF you are sensitive ( I think it has been established that some are more sensitive than others...) then I would recommend coconut milk or almond milk as opposed to dairy.

But, I fear this is not a popular belief or topic.

Sorry - had to share.

If you're concerned about not getting enough calcium, isn't it funny how the countries that eat the MOST dairy (for calcium) have the lowest bone density? It is very curious.

lucky28 Explorer
lucky28
Posted

I haven't given up dairy BUT I rely heavily on lactose enzyme pills and probiotics. I am very, very sensitive and usually have to take at least 1 pill even for a little butter on a potato or a cup of yogurt etc. But after 10 months gluten-free I was pleasantly surprised last night when we made gyros with feta cheese and greek yogurt sauce, didn't take any enzyme and I was fine!! No reaction what-so-ever! A small step, I know I can't do more than that yet (last week I ate a yogurt pop and had horrible pain!) But hoping I'm on my way! ;)

Skylark Collaborator
Skylark
Posted

I'm not saying this to create conflict...I have found with personal experience breast feeding my children...what you eat, ends up in your milk. One little slip up in MY diet, would result in vomiting, rashes, gi distress in my son.

And I think with that being said, all the grain sludge that cows consume, inevitably ends up in their milk.

IF you are sensitive ( I think it has been established that some are more sensitive than others...) then I would recommend coconut milk or almond milk as opposed to dairy.

But, I fear this is not a popular belief or topic.

I'm a little surprised that you would post false and frightening rumors in a thread where we are talking about misinformation on the Internet. <_< Maybe you were trying to help my point? Cows have a wildly different digestive system from humans and they fully digest grains and grasses. Studies have shown that there is no trace of the grains cows eat in their milk.

love2travel Mentor
love2travel
Posted

It took six months for me. I still limit my dairy to aged cheeses (or goat's cheese).

deb445 Rookie
deb445
Posted

Enzymes only seemed to work for a few months.

Christine0125 Contributor
Christine0125
Posted
  • Author

I haven't given up dairy BUT I rely heavily on lactose enzyme pills and probiotics. I am very, very sensitive and usually have to take at least 1 pill even for a little butter on a potato or a cup of yogurt etc. But after 10 months gluten-free I was pleasantly surprised last night when we made gyros with feta cheese and greek yogurt sauce, didn't take any enzyme and I was fine!! No reaction what-so-ever! A small step, I know I can't do more than that yet (last week I ate a yogurt pop and had horrible pain!) But hoping I'm on my way! ;)

YAY! Thanks for sharing. I am happy for you.

deb445 Rookie
deb445
Posted

I'm a little surprised that you would post false and frightening rumors in a thread where we are talking about misinformation on the Internet. <_< Maybe you were trying to help my point? Cows have a wildly different digestive system from humans and they fully digest grains and grasses. Studies have shown that there is no trace of the grains cows eat in their milk.

Truly, my experience is not false.

If I slipped up in my diet while I was breastfeeding, (I kept a journal) I would spend the night rubbing tummies, backs, cleaning up vomit and changing diapers that couldn't contain what they should have.

I haven't intended to offend - I just wonder if there is still science that hasn't been discovered yet, because this has been my experience.

And since I thought the thread was about dairy - not misinformation on the net - I maintain that coconut milk and almond milk has been a great subsitute in our house.

Skylark Collaborator
Skylark
Posted

Truly, my experience is not false.

If I slipped up in my diet while I was breastfeeding, (I kept a journal) I would spend the night rubbing tummies, backs, cleaning up vomit and changing diapers that couldn't contain what they should have.

I haven't intended to offend - I just wonder if there is still science that hasn't been discovered yet, because this has been my experience.

And since I thought the thread was about dairy - not misinformation on the net - I maintain that coconut milk and almond milk has been a great subsitute in our house.

Yes, stuff comes through human breast milk. You can't extend it to grains coming through cows milk though. Cow dairy is completely safe in terms of being gluten-free, even if the cow is being fed wheat.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. TheDHhurts
      - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Prana Organics no longer GFCO-certified

      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what...
    2. cristiana
      - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK. Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs. If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend...
    3. trents
      - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods". Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy...
    4. Dizzyma
      - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her on a full gluten free diet. my concerns are that she wasn’t actually physically s...
    5. Scott Adams
      0

      Better-Than-Takeout Gluten-Free Chicken Fried Rice

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,924
    • Most Online (within 30 mins)
      7,748
    Jimlock
    Newest Member
    Jimlock
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • TheDHhurts
      Prana Organics no longer GFCO-certified

      By TheDHhurts · Posted

      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what protocols/standards/testing they have in place. The person that wrote back said that they are now certifying their gluten free status in-house, but that she couldn't answer my questions related to standards because the person with that info was on vacation. Not very impressed, especially since it still says on their website that they are GFCO-certified. Buyer beware!
    • cristiana
      Newly diagnosed mam to coeliac 11 year old

      By cristiana · Posted

      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Newly diagnosed mam to coeliac 11 year old

      By trents · Posted

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.