Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unsafe List


NickMcKinnis

Recommended Posts

NickMcKinnis Rookie

I think it's about time I get an updated list of unsafe ingredients and was wondering if anyone here might have one they would be willing to share?

I am trying to teach my roommates how to cook for me, so I thought I might hang up a list.

Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

Nick, at the top of every section, there is a FAQ section that you may find helpful! the safe foods list is there, too.

Also, check this out:

It's in this thread too and a bunch of other ideas that may help. That way, I do not have to bore everyone again with my lengthy post. :lol:

Cheers,

IH

kareng Grand Master

It's pretty simple:

read ingredients. If it has any of these, you can't have it:

Wheat

Flour( unless it says rice, etc)

Rye

Barley

Malt

Barley malt

Versions of wheat like couscous, spelt, durum, einkorn https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

The most important part is to read the ingredients. Wheat must be listed in the US and Canada.

NickMcKinnis Rookie

Great, thanks Irishheart,kareng! I have it down pretty well but I wanted something I could hang up on the fridge for my less informed roommates(who are trying their darndest despite their ignorance).

VydorScope Proficient

It might be better to just label all the food in your place for them. Keep it simple like "Good" and "Bad." Then they just look at the label you put on the package and know. It means you have to intercept everything that comes in the kitchen, but it might be the best way in this case. If nothing else as a stop gap till they are better educated.

kareng Grand Master

You could get colored duct tape. Stick in on everything that is safe. At my house, if it has a red tape on the butter tub, no one else used it without permission. Same with PB, etc.

Lisa Mentor

You could get colored duct tape. Stick in on everything that is safe. At my house, if it has a red tape on the butter tub, no one else used it without permission. Same with PB, etc.

Yes! I used red and green sticky dots in my early days.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Nick wanted a safe list because he says his friends are trying to cook for him.

This is tricky business, Nick. Do you have your own cookware, utensils, colander, cutting board? They need to use THOSE if they prepare the ingredients.

We can tell you safe ingredients, but then, the prep part could "undo" all that with CC.

Karen turned me onto the flexible ones, like this:

Open Original Shared Link

and you can have your own set aside for your food prep. I gave one to my friends to use when they have me over to their houses.

They come 4 to a pack--great for travel.

IrishHeart Veteran

Check things like these below for WHEAT. As Karen said, they will be labeled.

Candies

French fries

Gravies

Imitation meat or seafood

processed luncheon meats

Salad dressings

Sauces, including soy sauce

Seasoned rice mixes

Seasoned snack foods, such as potato and tortilla chips

Self-basting poultry

Soups and soup bases

Vegetables in sauce

One more thought, Nick--the toaster?

Are you sharing one? You need your own or you can get toaster bags.

Karen turned me on to these too for use while traveling.

Open Original Shared Link

NickMcKinnis Rookie

Wow great ideas all over the place...

I was aware of the need for gluten free kitchenware and for the most part I have those but I could definitely use more. I love the idea of those toaster bags.

You all rock, I ask for a hand and get the whole arm!

IrishHeart Veteran

You all rock, I ask for a hand and get the whole arm!

:lol:

Well, some of us are a tad "mother-hennish" and tend to go overboard with the advice. (ok, that's usually me doing that. Guilty.)

So, did we forget anything? Just holler. (just use your inside voice, please.)

and I have to say, for a newbie, wow you are remarkably flexible and taking this all in stride with good humor (I've seen some of your posts.) So, good for you, kiddo.

lovegrov Collaborator

While I would never advise people not to check ingredients in anything, IrishHeart, I would also argue that at least two items on your list -- luncheon meats and self-basting poultry -- don't really deserve a special warning. At least in my part of the U.S., I can't think of more than one or two sandwich meats that might still have gluten and they are ones that are rarely seen (I think one has beer in it and the other is some gross mixture of various body parts and what looks like fat chunks). And while my memory isn't as good as it used to be, I simply can't remember EVER finding a self-basting poultry (turkey) that has gluten.

richard

IrishHeart Veteran

While I would never advise people not to check ingredients in anything, IrishHeart, I would also argue that at least two items on your list -- luncheon meats and self-basting poultry -- don't really deserve a special warning. At least in my part of the U.S., I can't think of more than one or two sandwich meats that might still have gluten and they are ones that are rarely seen (I think one has beer in it and the other is some gross mixture of various body parts and what looks like fat chunks). And while my memory isn't as good as it used to be, I simply can't remember EVER finding a self-basting poultry (turkey) that has gluten.

richard

Good points, Richard.

I have never seen a turkey with gluten in it myself. And if it had wheat it would be labeled.

I know that mortadella and some other deli meats may be a problem.

FWIW, I found that short list I posted right here:

Source: Thompson T. Celiac Disease Nutrition Guide, 2nd ed. Chicago: American Dietetic Association; 2006.

from National Digestive Diseases

Information Clearinghouse (NDDIC)

Open Original Shared Link

Maybe they should update it??

IrishHeart Veteran

Nick.

Looks like someone made a PDF PRINTABLE one from the link Karen and I gave you. It's the one Scott has here on the site.

May be easier to read and have handy.

Open Original Shared Link

lovegrov Collaborator

I know that since 2006 a few deli meats that used to have gluten have been changed. I think deli meat is just one of those things, like hot dogs and sausages, that folks simply assume might have some sort of wheat filler even though that's rarely or never the case.

richard

IrishHeart Veteran

I know that since 2006 a few deli meats that used to have gluten have been changed. I think deli meat is just one of those things, like hot dogs and sausages, that folks simply assume might have some sort of wheat filler even though that's rarely or never the case.

richard

I agree. I have never seen any meats with it up here in NY anyway.

BabsV, a member on here, is living in Poland right now and she says ALL those types of processed meats there have it.

KMMO320 Contributor

I assumed they all did too. My sis in law is Celiac.and told.me they did, hot dogs did and.chickens/turkeys. She also told me a lot of cream does, which.I havent found.to be true, as.well as Blue Cheese.

She also told me modified food starch, whether it says.corn.or.not.

I actuly think she is just super sensitive, so far Im not.

IrishHeart Veteran

I assumed they all did too. My sis in law is Celiac.and told.me they did, hot dogs did and.chickens/turkeys. She also told me a lot of cream does, which.I havent found.to be true, as.well as Blue Cheese.

She also told me modified food starch, whether it says.corn.or.not.

I actuly think she is just super sensitive, so far Im not.

No, cream does not have wheat in it.

All those products you listed do not have gluten in them, but if they did include wheat starch, they would have to be labeled.

By law in the US, if modified food starch is from wheat, it must state so on the label. It may be identified as modified wheat starch, modified starch (wheat) or it may

kareng Grand Master

If blue cheese is on there, it should not be, at least in the US. From what people ave told me, in the UK most hot dog type things have gluten. Canada has some. The US doesnt seem to have any. I think it's a country or cultural preference. Always read the ingredient. You never know when some company will decide its a great idea to add wheat. :P

KMMO320 Contributor

So in general, in the US at least..modified.food starch is ok...so long as it doesnt say wheat

Lisa Mentor

So in general, in the US at least..modified.food starch is ok...so long as it doesnt say wheat

Yup :)

KMMO320 Contributor

Yup :)

cool <_<

Since becoming gluten-free a few weeks ago, I have been getting used to reading labels..And I get so mad when I see so many added things, unpronouncable additives, and etc. I think to myself..NO WONDER people are more unhealthy than ever!!

When people say things to me like "Why is it all of a SUDDEN it seems everyone is allergic to Gluten, Gluten is just the new bad guy, the new "thing""

I say to them..have you SEEN what is in our food these days?? things that were not around 20-50 years ago. What do you think will happen to people when they constantly eat synthetic, mass prodouced food? it seems like common sense..we are not MEANT TO EAT LIKE THIS!!

I want to scream. The more I learn, the more fearful I get for my children's health.

So sad.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    2. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    3. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,260
    • Most Online (within 30 mins)
      7,748

    sbr
    Newest Member
    sbr
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.