Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten In Other "gluten-free" Grains?


otnemem

Recommended Posts

otnemem Rookie

I came across this, from a certain store's preface to their gluten-free list:

"Some gluten sensitive individuals can tolerate buckwheat, millet, amaranth, quinoa, teff, and/or sorghum. Because of the individuality of tolerance, this list does not include foods containing these foods. You should try them, one at a time only after your strict gluten free diet has eliminated all gluten-related symptoms, and only if your doctor approves. If you add any of these to your diet, observe carefully for obvious as well as subtle symptoms of intolerances."

Is this true? Because I've been doing pretty well and am having major issues today after eating a bunch of home-baked amaranth pumpkin muffins last night and this morning. All ingredients were gluten-free, and so I was really confused as to why I'm feeling sick. Anyone have any info about this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

I've been told that not a lot is known about some of these other flours and to use them with caution. I eat buckwheat with no problems.

kabowman Explorer

I have problems with gluten-free foods if I eat too much of one thing. One or two I can handle, half a pan of brownies will make me sick for days. Even when all the products in the brownies are perfectly safe for me to eat.

The lesson, don't overdo and don't wait too long to satisfy your sweet tooth!!!!

Rachel--24 Collaborator

I tried buckwheat flour and had a major reaction. It was right before I went gluten-free so I hadnt even begun healing yet. I'm scared to try any of the flours now. Maybe when all my symptoms are gone and I'm feeling 100% I'll give it another try.

Carriefaith Enthusiast
I tried buckwheat flour and had a major reaction.
Sometimes buckwheat flour is mixed in with wheat flour, which may have been the cause of your reaction. 100% buckwheat flour is gluten-free.
Rachel--24 Collaborator
Sometimes buckwheat flour is mixed in with wheat flour, which may have been the cause of your reaction. 100% buckwheat flour is gluten-free.

<{POST_SNAPBACK}>

Carrie,

It was Bob's Red Mill...suppossed to be gluten-free and processed in a room away from the gluten flours....I suppose it could still be contaminated or I'm just hyper-sensitive...who knows. <_<

Bette Explorer

Yeah I just recently had a problem with buckwheat see :

Open Original Shared Link

At this point I am not sure if I am sensitive to buckwheat or the Arrowhead Mills flour is contaminated??? Since it affected both me and my daughter I think the flour might be cross contaminated. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nevadan Contributor

Did your muffins happen to contain butter or other casein/lactose ingredients? I found that I am also sensitive to these as well as gluten, and I hear this is pretty common at least at first after going gluten-free. Two or three gluten-free choc chip cookies made with butter are enough to set off my symptoms.

George

Claire Collaborator
I tried buckwheat flour and had a major reaction. It was right before I went gluten-free so I hadnt even begun healing yet. I'm scared to try any of the flours now. Maybe when all my symptoms are gone and I'm feeling 100% I'll give it another try.

<{POST_SNAPBACK}>

Hello Rachel - strange that you had a reaction to buckwheat as it is not a grain - not even in the grass family. It is a berry. You could just be allergic to it. Certainly it has no gluten. Claire

Rachel--24 Collaborator
Hello Rachel - strange that you had a reaction to buckwheat as it is not a grain - not even in the grass family. It is a berry. You could just be allergic to it. Certainly it has no gluten.  Claire

<{POST_SNAPBACK}>

Yeah...I know it doesnt contain gluten. Its just processed in a facility where gluten containing flours are processed as well...so buckwheat CAN be contaminated with gluten even though it doesn't naturally contain gluten.

Bette Explorer

Yeah Rachel,

I have to agree, depending on what brand, as I found out it can be contaminated with other flours, unless it is a100 percent dedicated line.

I loved the pancakes, so if you come across a buckwheat flour without the risk of cross contamination let me know ;)

Bette

Japsnoet Explorer

I’m on a rotation diet and I eat buckwheat, millet, amaranth, quinoa, sorghum and rice without any trouble. I think what often happens is that your systems is very sensitive when you can’t eat gluten and that it easily gets irritated. In my case it is. By eating a variety I believe on can prevent building up an allergy against a grain. That is the only way I have been able to keep my intolerance and allergies under control. So far in Australia they are very strict when a product states it is gluten free, no trace of gluten is allowed. I have not had any problem with cross contamination in any of the above products. Our food labelling laws are very strict, but a real lifesaver if you have food intolerances. :rolleyes:

Bonnie Explorer

I had a problem with buckwheat when I first when gluten-free. Now 5 months down the line I am absolutely fine with it - the flour and puffed cereal. Perhaps you just need more time to heal?

Japsnoet, just had to say, I followed your advice and not only baked bread with Sorghum and Maize Meal (with success) but I tried quinoa. Quinoa is probably the best thing I have found on this diet! :lol: It is so tasty and I am using it instead of rice (as I am intolerant). Just wanted to say thanks!

Yvonne

Carriefaith Enthusiast
Carrie,

It was Bob's Red Mill...suppossed to be gluten-free and processed in a room away from the gluten flours....I suppose it could still be contaminated or I'm just hyper-sensitive...who knows.

My worst gluten reaction ever (over two weeks and the worst stomach pain) was after eating a bagged salad with Bob's Red Mill flaxseed. It was the first time that I had the flaxseed. I have been terrified of both products ever since... I think that it is interesting that you had a reaction after eating a Bob's Red Mill product too, which makes me wonder if it is contaminated <_<

Kasey'sMom Enthusiast

Carriefaith,

Hummm my dd hasn't had flax seed in a while because she kept reacting to it. I though maybe she was allergic to flax. The brand of flas was Bob's Red Mill. I read a post that some of their products are done in a dedicated area and some are not. Does anyone know for sure about Bob's?

Thanks! :)

Carriefaith Enthusiast
Carriefaith,

Hummm my dd hasn't had flax seed in a while because she kept reacting to it. I though maybe she was allergic to flax. The brand of flas was Bob's Red Mill. I read a post that some of their products are done in a dedicated area and some are not. Does anyone know for sure about Bob's?

I almost wonder if some of their stuff is contaminated... If no one knows for sure, I think I may contact the company and ask, since some of us are getring sick from it. I would sure like to know! But in the meantime, I am avoiding all of their products.

Has anyone else had problems with Bob's Red Mill?

Rachel--24 Collaborator
I almost wonder if some of their stuff is contaminated... If no one knows for sure, I think I may contact the company and ask, since some of us are getring sick from it. I would sure like to know! But in the meantime, I am avoiding all of their products.

Has anyone else had problems with Bob's Red Mill?

<{POST_SNAPBACK}>

From what I understand they have a dedicated line for the gluten-free products and they are in a seperate room from the other flours. I remember someone posting that they knew someone who had toured the facility and said that flour was flying around everywhere and contamination seemed likely. <_< I never reacted to the flaxmeal I used but the buckwheat flour got me bad.

Carriefaith Enthusiast
I remember someone posting that they knew someone who had toured the facility and said that flour was flying around everywhere and contamination seemed likely.
ooo that doesn't sound good <_<

I found this on their website:

"Bob’s Red Mill stone grinds flours in a dedicated room for the production of its gluten-free line and performs batch testing before processing and after packaging. The company adheres to the Codex Alimentarius standard – the international gluten-free food standard for manufacturers. While the current Codex gluten-free standard specifies a gluten limit of 200 parts per million (ppm), Bob’s Red Mill’s gluten-free products consistently fall below 20 ppm."

So.. from reading that, it seems like their gluten free products can contain very small amounts of gluten.

Rachel--24 Collaborator

I think if there is some contamination...its very small. Maybe after I'm healed I wouldn't notice it?? When I tried buckwheat I wasn't "officially" on the gluten-free diet but had eliminated all grains....my system was extremely sensitive at that time but I didn't know I had gluten intlerance yet. Maybe a tiny bit just set me off or maybe I was just reacting to a new grain being introduced into my very messed up and sensitive digestive system. :huh:

skbird Contributor

Carrie - do you have any problem with citric acid? I can't eat most of the bagged salads as they are washed in a veggie rinse with citric acid (not listed on the label, BTW, but from experience I know which brands are ok now). I get gastro symptoms as well as migraine and some other reactions, too. My local Outback restaurant uses the stuff, too.

Additionally, is there any chance the bagged salad manufacturer also bags salads with croutons? Some of the brands I've seen locally will have a little packet inside with croutons, maybe this particular salad didn't have those but others processed could, could be cross-contamination there?

I haven't had any problems with flax, personally, so can't speak to that.

Stephanie

Carriefaith Enthusiast
Carrie - do you have any problem with citric acid?
I don't think so, but I don't think I've been tested for an allergy to it.

Additionally, is there any chance the bagged salad manufacturer also bags salads with croutons? Some of the brands I've seen locally will have a little packet inside with croutons, maybe this particular salad didn't have those but others processed could, could be cross-contamination there?

I used to eat these salads all the time with no problems except the time that I had that flax seed on it. I don't think any of the salads have croutons (I will look into it). That is why I though it my have been the flax seed that was contaminated. I am super sensitive to gluten since I also have a wheat allegy, so the smallest tiniest bit of gluten really bothers me.

Bette Explorer

Regarding the Arrowhead Mills Buckwheat flour:

I contacted Arrowhead Mills and this was their response :

Thank you for taking the time to contact us regarding our Buckwheat Flour. We strive to maintain the highest quality products and appreciate your patronage.

The Buckwheat flour is wheat and gluten free. The items which bear the label "gluten free" or "made with gluten free ingredients" are formulated and tested to be gluten free (below the detectable limit of 10ppm).

The Hain Celestial Group's labeling declares major allergens (peanuts, soybeans, milk, eggs, fish, crustaceans, tree nuts, and wheat) and we follow the U.S. FDA's regulations. In addition, our labeling always declares gluten containing ingredients. We recognize the serious nature of the allergen issue and we strive to minimize risk.

Both major and minor ingredients of all products, as well as all processing procedures and equipment, are closely scrutinized and all potential allergen issues as determined by the Hain Celestial Group are declared on our labeling.

We assure you, the consumer, that strict manufacturing processes and procedures are in place and that each manufacturing facility has active allergen control programs.

Thank you for your continued support of The Hain Celestial Group. If we can be of further assistance, please feel free to contact us at 1-800-434-4246, Monday through Friday from 7AM - 5PM Mountain Time.

Sincerely,

George

Consumer Relations

Ref # 1118426

So now I am really confused. Maybe it is an allergic reaction, but it affected both me and my daughter so that's a little strange that we both are allergic. By the other post it sounds like Bob's Red Mills can cause problems too, although I have used their flax seed for a couple of years now and have not had a problem

.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.