Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab Results ... Have To Go Vegan


HauntedEyes

Recommended Posts

HauntedEyes Rookie

I just got my test results back today on my EnteroLab testing. I expected gluten, knew about egg, and suspected maybe corn, but I did NOT expect what I found out. Yes, I do have antibodies for all those, but I also have them for everything else they tested except to nuts and oats. I am new to suspecting gluten problems, and have been off gluten for about a month (biopsy was negative) except for some accidental cross contamination that made me very sick.

Test showed I have antibodies to:

gliadin (gluten)

casein (cow's milk)

soy

ovalbumin (chicken egg)

corn

rice

beef

tuna (so should avoid all seafood)

chicken

pork,

white potato (so should avoid all nightshades)

It sounds like I am going to have to go vegan! How do you cope with such a drastic change as having to cut out all the commonly used grains, and the commonly eaten meats, and also cut out the nightshades?! About all it leaves are some fruits and vegetables (of which from other testing elsewhere I know I am intolerant to


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MitziG Enthusiast

Enterolabs is controversial at best. I would not be convinced that such a restrictive diet is necessary for you. How long have you been gluten-free? I would personally try being gluten-free and casein free for a good 6 months and then see where you are before eliminating more foods.

Jestgar Rising Star

What were your actual test results?

cyberprof Enthusiast

I agree with Mitzi that you need time gluten-free to adjust. Enterolabs has its place (Ive used them) but theyre not fool-proof.

With your list of foods, I dont know that you could have a healthy, nutritious diet totally vegan with no protein sources like soy, nuts or dairy/eggs, no rice or corn, no beans or nightshades. If you are going to do that, you'll need the help of a registered dietician, not just an internet lab.

I know of a lot of celiac/gluten intolerants who underwent various tests and were told a long list of things that they couldn't eat. In the end, it turns out that their systems were messed up from long exposure to gluten, or else they had something else going on like lack of "good" gut bacteria (and needed to take probiotics) or had yeast overgrowth or things like that.

Gluten Free Goddess is one and Gluten Free Girl is another - these are both gluten-free/celiac food bloggers (google them) but both chronicled their experiences. You may in fact be intolerant of other things but I would suggest a basic elimination diet first.

Start with turkey (plain roasted no salt, pepper, spices or flavor), cooked green beans or zucchini, cooked pears, water. Eat this for a week or two and nothing else. Boring, I know. Then add in sweet potato only and eat a little bit for five-six days. Then add in cooked spinach. Or quinoa, millet or buckwheat (buckwheat is gluten-free). Only one at a time, only cooked veggies/fruit and follow the 5-6 day plan. At some point, add in salt and also add in oils, avacados, maybe oregano and basil. Add in beef, soy, eggs, fish, nightshades, potatoes and rice last and then only one at a time over like a month so you can be sure what reaction you are getting.

I guess it is possible that Enterolabs is correct, but I think your system is just on high-alert due to the gluten intolerance.

Let us know what happens.

ravenwoodglass Mentor

I agree with eliminating gluten, casein (dairy) and soy for now. When I was diagnosed my allergist did skin testing for allergies and I showed reactions to 98 out of 99 items he tested for. He later said this was a real clue for him that I was celiac. As he said my immune system was in 'hyperdrive' due to the celiac and that many of my other allergies would resolve. He was right by the time I had been on the diet for 6 months or so all but three of those allergies had disappeared and the three I was left with are very mild.

So do get on the diet strictly and avoid the big three I listed above and chances are you will be fine. After you have healed well then you could try adding dairy and soy back in at seperate times and see if you react. If you don't react after adding them back in for a week by eating them 2 or 3 times a day you will know they are safe for you to consume.

bartfull Rising Star

Turkey doesn't work if you are corn intolerant. Almost all turkeys are injected with "stuff", and that "stuff" almost always contains corn. I found out the hard way last Thanksgiving.

Chicken, on the other hand, usually is not injected with anything.

Skylark Collaborator

It sounds like you simply have a lot of false positive results on this sort of intolerance testing. You can't be intolerant to everything. I'd start a food diary and choose my lowest scoring foods, whatever they are. I'd see how I feel after a week, or two at the most since it will be a restrictive diet. Then I would add back other foods one at a time, eating plenty of the food and allowing a couple days for a delayed reaction. I bet you can tolerate a lot of the foods the testing identified.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HauntedEyes Rookie

Yes, I do understand some of these things may go away with time if I remain off gluten. Fortunately, my results on the test were at the low end of reactive. But I suspect I'm one of those folks who is in immunological and nutritional "exhaustion." I had two typed pages of symptoms pointing to celiac or gluten intolerance when I approached my doctor two months ago, and was feeling about dead when I walked in to his office to ask for a biopsy (which of course came back negative, but he admits he may not have biopsied the right place or may not have gone far enough in). I did get a diagnosis of non-specific chronic gastritis out of the biopsy, though, and a little erosive gastritis. He put me on Zantac for the gastritis, and I nearly wound up in the hospital because I was having some of those severe side effects that indicate liver damage. The only thing that kept me out of the hospital was it was a holiday weekend and I figured out it was the Zantac; stopping the Zantac immediately stopped the side effects.

I have been off of gluten for two months now and have noticed improvements, but still feel like there are other food problems. I have known for two years about my chicken egg allergy (via blood test, I'm allergic and intolerant to white and yolk), so that has been out of my diet for years now. I eat quail or duck egg when I can get hold of them. I did begin to suspect chicken because of some reflux, but wasn't sure if it was from that or from having some other food I knew I should be avoiding.

The blood test two years ago had me just shy of being allergic to corn, so I do trust the EnteroLab results saying I'm reacting.

I've been avoiding tomatoes and peppers for several months now because I do get reflux bad with them, but had thought maybe it was the acid. I recently have been getting occasional stomach problems with potatoes, so suspected it was a problem. So again, I do think the EnteroLab result on the nightshades is correct.

Sometimes I've had problems with milk, but it hasn't been a frequent food item, just sometimes a bowl of cereal or ice cream. Again, because of my "sometimes problems" the test is probably correct there.

Since going gluten-free, I'd been eating more rice, which has been giving me some GI issues. It's the rice, beef, pork, and tuna in the EnteroLab results that surprised me. I don't like tuna, so probably have had it only once or twice over the last few years, though I do eat tilapia when I cook fish. Do I need to avoid tilapia since I reacted to tuna and tuna is supposed to be one of those fish that is least likely to trigger an immune response?

From that old blood test, I did turn up mildly intolerant to several foods, which sadly are some of my favorite foods, which I have been careful with over the last two years. Those include chicken eggs, avocado, asparagus, crab, garlic, sesame, banana, blueberries, celery, and a few others. I am severely intolerant to coffee according to that test, and need to treat it as an allergy, but I've never had a cup of coffee beyond the tiny bit in a cup of milk at a tea party when I was a kid, so that one doesn't concern me.

bartfull Rising Star

I doubt if this is it, but there was a thread here a few days or so ago about tick bites causing meat allergies. Here is one of the news articles about it:

Open Original Shared Link

cyberprof Enthusiast

Turkey doesn't work if you are corn intolerant. Almost all turkeys are injected with "stuff", and that "stuff" almost always contains corn. I found out the hard way last Thanksgiving.

Chicken, on the other hand, usually is not injected with anything.

That's too bad. I wonder if there are sources for "natural" turkey w/out injections? At the farmers market near me, you can get meat and eggs direct from the farmers and it might be a way to get something untreated.

Skylark Collaborator

So the bloods agree with your symptoms? That's a hard situation. People claim that GAPS and SCD diets help with leaky gut and intolerances. Open Original Shared Link and Open Original Shared Link if you're curious.

Lamb is low-allergenic, and very few people are sensitized to exotic meats like bison. They're expensive but maybe a couple servings a week would help with your nutrition. I tolerate sheep and goat dairy much better than cow.

GFweightlifter Newbie

Don't forget about lamb, bison, and yes, even ostrich. Preferable grass fed meats if you can find it. Based on my own research I'm not a believer in vegetarian or vegan diets. I think you lose out on some very vital nutrients (especially fats from animal sources- I do not believe in the lipid hypothesis either) that can be helpful with getting your health back. I personally eat a diet high in animal protien and fats and feel a lot healthier when I do compared to when I eat too many carbs or vegetable oils.

Of course I understand that many of us have food sensitivities that make our diets restricted (I have fruit and veggie restrictions)and would totally understand if someone had tried everything possible and had no choice but to go vegan/vegetarian but at least give some grass fed lamb or bison a try first. Or if your lucky you can find someone to sell you some venison- where I live a lot if people hunt, not sure if they do where you are.

GFweightlifter Newbie

Oops I just re- read skylark's post about lamb and bison...obviously I'm not the first to suggest it lol. My bad. But at least I suggested deer and ostrich I guess haha

Skylark Collaborator

Oops I just re- read skylark's post about lamb and bison...obviously I'm not the first to suggest it lol. My bad. But at least I suggested deer and ostrich I guess haha

Don't worry. I think it's great when we offer similar advice! Less confusing. I also agree with you about how difficult it is to maintain health on a vegetarian diet, particularly without animal fats.

HauntedEyes Rookie

I live in an area with a lot of hunting, so I periodically get venison from friends. In fact, I had a venison roast this past week, but I suspect I'm sensitive to it because I got reflux from it every time I ate it. Bison/buffalo won't be hard to find, just expensive.

But I should be able to get hold of some other game meats. A friend even gave us some squirrel once (and, yes, it is actually quite good, just not a lot of meat), and my mother-in-law said beaver is really, really good but it can only be eaten if it was trapped in a particular way (hunting rules). I'm told possum is not so good, despite the Clampetts on Beverly Hillbillies always talking about possum pie. I was teasing my husband last night that I could eat alligator, if I could get some shipped in from the south. Frog legs or rabbit might be an option, too. I occasionally see those for sale. Lamb is hard to find around here, mainly only seen around holidays.

For poultry, I can also eat quail, duck or goose. I do eat quail and duck eggs when I can get them, due to my chicken egg allergy. Does anyone know, is cornish game hen same as chicken (i.e., just a variety of small chicken), or is it a different fowl, like duck or goose, so safe to eat?

Skylark Collaborator

My understanding is that cornish game hens are a variety of chicken, usually killed younger than broilers.

Good luck with the exotic meats and to look into some leaky gut healing diets.

Chad Sines Rising Star

I think everyone's advice makes sense based on what many of us feel when we "realize" we have celiac. At first, your gut is often fried and you seem to be intolerant of many things. For me it is constant soy and dairy. When I have been glutened add eggs and alcohol (very light drinker) to that list. As it heals up, the eggs and alcohol go away in about 2 weeks. The others have not cleared up yet.

As the others have said, I bet if you baby your gut for a little while you will quickly see a lot of things go away. Whenever I am in that bad gut place, I do the SCD diet and it helps a lot rather quickly.

bartfull Rising Star

Cornish game hens are their own breed. They are nasty, mean birds - I knew someone who raised them once. And they are DESIGNED not to ever "grow up". If they aren't slaughtered when they are young, they will continue to grow until their little legs break because they aren't bred to get that big, and their leg bones aren't strong enough to hold their full adult wieght.

I used to love cornish hens until I saw what they were like and how they are raised. Now I can't stomach them.

I have also heard (don't know if it's true or just an old wives tale) that rabbit is so hard to digest that if you had to live on it you would die. They say it takes more energy to digest them than you get out of eating them. Now, I know you are going to be eating other things, but if they really ARE that hard to digest, maybe they are something all of us with digestive problems should avoid?

Skylark Collaborator

I have also heard (don't know if it's true or just an old wives tale) that rabbit is so hard to digest that if you had to live on it you would die. They say it takes more energy to digest them than you get out of eating them. Now, I know you are going to be eating other things, but if they really ARE that hard to digest, maybe they are something all of us with digestive problems should avoid?

You are thinking of "rabbit starvation". It's used to illustrate that people can't live on only lean protein. At the end of winter, it was possible for settlers to be out of fresh foods, tallow, or grain. Rabbits were easy to catch, but they are lean to begin with and very lean at the end of winter and don't have enough fat to live on. You could eat all the rabbits you could catch and you'd just get sicker.

If you're eating a normal diet, rabbit is a good lean meat that is plenty easy to digest and IMO quite tasty. (Sorry, bunnies!)

cyberprof Enthusiast

You are thinking of "rabbit starvation". It's used to illustrate that people can't live on only lean protein. At the end of winter, it was possible for settlers to be out of fresh foods, tallow, or grain. Rabbits were easy to catch, but they are lean to begin with and very lean at the end of winter and don't have enough fat to live on. You could eat all the rabbits you could catch and you'd just get sicker.

If you're eating a normal diet, rabbit is a good lean meat that is plenty easy to digest and IMO quite tasty. (Sorry, bunnies!)

I am in awe of your science knowledge, Skylark. Very useful.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,948
    • Most Online (within 30 mins)
      7,748

    Stephanie94
    Newest Member
    Stephanie94
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.