Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Support Group In Boston


jenna

Recommended Posts

jenna Newbie

Hi

this is my first time here.

new to celiac-can someone pls email me re: a supt group in boston area-actually live in watertown


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sb4480 Newbie
Hi

this is my first time here.

new to celiac-can someone pls email me re: a supt group in boston area-actually live in watertown

<{POST_SNAPBACK}>

Hi Jenna,

I live in Reading but I would be totally willing to be an email buddy until you find a group. I'm looking for one as well.

Steph

Stephberry2002@yahoo.com

jenvan Collaborator

Hey ladies! Here is info I could find on you for boston groups--just contact them and ck it out. Good luck!

Group: The Healthy Villi, Boston Chapter, CSA/USA

City: Boston

Contacts:

Ann Dodds-Frerichs

84 Mill St.

Westwood, MA 02090

781-255-9033

Nola Ford

6 Ellery Square

Cambridge, MA 02138

617-547-1828

Marjorie Rogers

28 Bacon St.

Natick, MA 01760

508-653-5465

Internet:

Marjorie Rogers, mwrogers67@aol.com

Danna Feldgoise, gooseink@BITWISE.NET

Nixie Raymond, raymond@world.std.com

Updated: 10 Mar 2001

Group: Children's Celiac Support Group

City: Boston

Contacts:

Laurie A. Higgins

GI/Nutrition, Hunnwell grd

Children's Hospital

300 Longwood Ave.

Boston, MA 02115

Tracy Keegan

617-355-2127

Internet:

Laurie A. Higgins, Higgins@a1.tch.harvard.edu

Tracy Keegan, eaglekeeg@aol.com

WWW: WWW.childrenshospital.org/celiac

Updated: 21 Mar 2003

Chaula Hopefisher, Pittsfield

413-499-4380, hopefisher@chaula.com

CSA Healthy Villi Boston Chapter #67 Click here for this chapter's Website

Greater Boston Celiac/DH Support Group, Inc. Chapter phone #: 617-262-5422 toll-free: 1-888-4-CELIAC

CSA Massachusetts & Rhode Island Celiac Support Group for Children and Adults, Too #72 Click here for this chapter's Website

Mary Arruda, West Greenwich, RI

401/385-9175

Tanis E. Collard, Attleboro

508/399-6229, csgc@ix.netcom.com

  • 2 years later...
fruhead Newbie

hi there,

Unfortunately, I am unable to find **any** local support groups in Boston. :unsure: I am aware of The Healthy Villi (and joined a month or so ago)...their meetings are OUTSIDE the general Boston area. I understand this is due to traffic volume issues. However, this poses a problem to people (like me!) who do not own a car. :(

Is there a way to get a Boston group going? Actually **IN** the city of Boston...or at the very least, accessible by the MBTA system? (Preferably by train, not by bus.)

Otherwise, if anyone attends the Healthy Villi meetings, would they be willing to give us car-less folk a ride to the meetings?

I am at wits' end looking for a support group. I was just diagnosed earlier this year and mostly have a grip on it, but I would still like a support system of folks who have gone through the same illness as me.

thank you,

Lisa

melmak5 Contributor

I am in Cambridge and in the same "no car" situation.

Maybe if there are enough people who post in this thread we could all meet up and go from there.

rbh Apprentice

Hi Lisa -- unfortunately I can't be of help in getting to the Healthy Villi meeting as we probably won't go this time. However, I did want to let you know that the Not Your Average Joe's Restaurant in Watertown is very willing to accommodate gluten free diners. Apparently, they are in the midst of planning a specific gluten free menu too, but even now they are very friendly. (I live in Newton)

Rochelle

carriecraig Enthusiast

I used to love going to Not Your Average Joe's in Needham (where I worked) and Watertown (where I lived)! I haven't been there since before I was diagnosed and used to LOVE eating their bread with that olive oil/garlic/cheese dipping sauce.

I now live in NJ, but I'm glad to know that NYAJ is going to have a gluten-free menu - it will be good for when I visit.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rbh Apprentice
I used to love going to Not Your Average Joe's in Needham (where I worked) and Watertown (where I lived)! I haven't been there since before I was diagnosed and used to LOVE eating their bread with that olive oil/garlic/cheese dipping sauce.

I now live in NJ, but I'm glad to know that NYAJ is going to have a gluten-free menu - it will be good for when I visit.

The dipping sauce for the bread itself is gluten free, so if you bring your own bread, they will mix up the sauce.

  • 3 weeks later...
melmak5 Contributor

Would anyone seriously be interested in meeting up in/around Boston?

  • 3 months later...
superbeansprout Rookie

Would anyone seriously be interested in meeting up in/around Boston?

Hi there, so I know this thread has been not answered in a while, but if anyone out there in Boston or thereabouts is still interested in getting together, I'm game. My name is Liz, I work in Medford (there is a Not Your Average Joe's in my office complex!) and it's accessible by MBTA orange line at Wellington Station. I am also willing to travel around the city and to the south shore as well, as I live in Marshfield...and have a car...so if anyone hears of a good support group, and wants to go, I'm willing to carpool. Or if we just want to start our own group, we can do that too!

Nina12488 Rookie

I am in college during the school year... but am from Hull, MA! If a support group does get started around the Boston area... let me know!

sallyterpsichore Explorer

Darn it, I just lost my post. Anyway, I live in Brookline, work in JP, and am a member of the Healthy Villi, but also am dependent on public trans. I was thinking awhile ago about starting a dinner group with local celiacs in the area, but have since added other things to my platter and don't have enough time anymore for that, really.

However, I'd be very open to meeting up with all of you. We could just head downtown and grab a bite at Legals or PF Changs. None of my friends have celiac and they're probably sick of hearing about it! :D

There's also a place out by me in Washington Square that has Redbridge and are aware of celiac disease and know enough about the diet to be able to make gluten free stuff, I've heard.

Looking forward to meeting you all!

~Sally

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - olivia11 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      26

      My journey is it gluten or fiber?

    2. - olivia11 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      26

      My journey is it gluten or fiber?

    3. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      suggest gluten free food

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      26

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,791
    • Most Online (within 30 mins)
      7,748

    blondebomber
    Newest Member
    blondebomber
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • olivia11
      This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.
    • olivia11
      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.
    • olivia11
      Thanks for asking  I’m mainly looking for gluten-free staples and snacks. Any recommendations for brands or go-to items would be appreciated.
    • xxnonamexx
      sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble ones fat soluble. So I guess 100MG as you suggested of Life Extension contains Benfotiamine and Thiamine Hydrochloride. and the Objective Nutrients Thiamax contains TTFD.     would work for me.
    • Rogol72
      I put on over 12kg by eating protein with every meal, 3 to 5 times a day. Eggs, Chicken, Tuna, Turkey etc. I stay away from too much red meat as it can be inflammatory. Scott is correct. I've come across a bunch of Coeliac PT's on Tiktok and Instagram. They all say the same thing, the key is getting enough protein and consistency.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.