Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Little Wins That Other People Don't Get


Adalaide

Recommended Posts

Adalaide Mentor

So I was in the kitchen this morning with my husband. He was microwaving his last breakfast sandwich (yay!) and I was getting my morning cottage cheese, flax and fruit. I looked at him and said I should have started eating flax a long time ago and he asked why. I was like, I've never pooped so much like a normal human being in my life. I said this with a huge smile on my face, genuinely excited. He looked at me as if I'd just been the victim of an alien abduction. :lol: I had to come here and share because at least you guys will get it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular

Hey, first time I went a whole week with normal poo I had a party. I get it!

RonSchon Explorer

I will look forward to that day. I was just diagnosed last week, after about 14 years of ever increasing symptoms. The toilet was a first warning sign for me. My wife (ex wife now, yes, it cost my marriage) would be so upset at how much time I spent in the bathroom.

Adalaide Mentor

It gets better Ron! My GI symptoms improved greatly over the 6ish months since my dx but it wasn't until I added the flax that have truly felt normal in that department.

I'm so sorry that it ruined your marriage. It's a real jerk-detector and the people who have relationships that have endured are truly lucky. I hope you find at least some symptoms resolve quickly for you.

sharilee Rookie

So I was in the kitchen this morning with my husband. He was microwaving his last breakfast sandwich (yay!) and I was getting my morning cottage cheese, flax and fruit. I looked at him and said I should have started eating flax a long time ago and he asked why. I was like, I've never pooped so much like a normal human being in my life. I said this with a huge smile on my face, genuinely excited. He looked at me as if I'd just been the victim of an alien abduction. :lol: I had to come here and share because at least you guys will get it.

The first time I had a normal bowel movement after being diagnosed with celiac I was so excited and even more excited when I went several days in a row without an attack. I wanted to throw a party.

sharilee Rookie

I will look forward to that day. I was just diagnosed last week, after about 14 years of ever increasing symptoms. The toilet was a first warning sign for me. My wife (ex wife now, yes, it cost my marriage) would be so upset at how much time I spent in the bathroom.

It does get better with time. I have been gluten free since late February and it took about three months for things to start to return to normal. I still have problems but not every day like I was, now I will go several days with no problems. I am sorry it cost you your marriage, any type of illness can put a strain on marriage.

KMMO320 Contributor

I went gluten-free for 3 weeks and during that time I felt like a real, normal human being. When I went to the bathroom it was normal, and I wasnt sitting there in agonizing pain with gut wrenching cramps like I am used to.

I would come out of the bathroom with tears in my eyes. It felt like the greatest accomplishment to have a normal movement.

I am now back on gluten because my dr said she did not see any reason to go gluten-free...needless to say, I am switching docs but that also means keepin gluten in my system for a few more weeks in case of further testing.

I miss those "normal" days. It is amazing how quickly the cramping comes back :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skittles Enthusiast

Ohh my God I can only imagine how you must feel! I have been gluten free for 2 months and am having a little bit better bowel movements but I cannot wait until I am actually regular, I told my friends we are having a big party! haha.. I haven't tried the flax yet though but I am going to get on it asap! :)

goblue2014 Newbie

7 months gluten free and I still don

IrishHeart Veteran

Well, I am doing the happy dance for you. :lol: I will, in fact, stand up and applaud you right now...hold on....(sounds of IH clapping wildly)

I know you were not super crazy about the ground flax seed idea, but we told ya it would do the trick! That stuff is full of fiber and omega 3's. It's a win-win.

And for what it is worth, I knew where every bathroom was within a 150 mile radius of my home. I have had D or C since I was a babe.

I have had to resort to a lined wastebasket and the side of the road in the great outdoors on occasion. Just peachy. :rolleyes:

When very ill from the celiac, I went and went and went and then... did not. For days. Pain? OY!

Until now. Between the flax, the probiotics and being gluten-free and healing from the celiac damage, I am right as rain for the first time in my entire life.

So, whoohoo and thank the universe for little victories (that are really pretty big indeed!) :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,987
    • Most Online (within 30 mins)
      7,748

    Paula Burlando
    Newest Member
    Paula Burlando
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.