Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Auto Immune Disorders

redgouramis

Recommended Posts

redgouramis Newbie
redgouramis
Posted

I was finally diagnosed as having celiac sprue with DH about 2 years ago by a chiropractor specially trained in muscle testing. I am curious, however, if anyone on this blog has found they have other auto-immune disorders? I already know I have low insulin and low thyroid and have migraine headaches with an aura. I take a supplement daily, one which dilates the veins and another which constricts the veins to prevent the migraines. Anyone else on this blog have this problem? Also, how do we find out if we have other auto immune disorders?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I was finally diagnosed as having celiac sprue with DH about 2 years ago by a chiropractor specially trained in muscle testing. I am curious, however, if anyone on this blog has found they have other auto-immune disorders? I already know I have low insulin and low thyroid and have migraine headaches with an aura. I take a supplement daily, one which dilates the veins and another which constricts the veins to prevent the migraines. Anyone else on this blog have this problem? Also, how do we find out if we have other auto immune disorders?

Hello and welcome! Have you been tested by a medical doctor or had a metabolic panel done? Have you had a full Celiac Panel taken?

Other auto immune issues are common. I would suggest you see a medical doctor, not a chiropractor.

IrishHeart Veteran
IrishHeart
Posted

Welcome!

I agree with Lisa.

Sorry, but Celiac is not diagnosed by a chiropractor or by muscle testing. There is no scientific or medical evidence to support this practice.

Celiac is DXed by blood panels and/or biopsy, medical history and genetic testing.

DH is DXed by biopsy of the area around the lesions.

You should be evaluated by a medical doctor who is knowledgeable about celiac disease so you can be tested for this and other AI diseases. See a Celiac-savvy GI or an endocrinologist.

But, yes to answer your question, many AI diseases are associated with celiac disease.

Skylark Collaborator
Skylark
Posted

It's not that hard to identify DH. Blisters? Itches like a SOB? Goes away off gluten? Bingo. ;)

I have Hashimoto's thyroid disease, which is autoimmune. There is a blood test for it. I don't know much about adult onset type 1 diabetes but I know that it's possible. Sounds like you need an endocrinologist, not a chiro.

SarahJimMarcy Apprentice
SarahJimMarcy
Posted

I have a hypothyroid.

  • 2 weeks later...
beachbirdie Contributor
beachbirdie
Posted

I was finally diagnosed as having celiac sprue with DH about 2 years ago by a chiropractor specially trained in muscle testing. I am curious, however, if anyone on this blog has found they have other auto-immune disorders? I already know I have low insulin and low thyroid and have migraine headaches with an aura. I take a supplement daily, one which dilates the veins and another which constricts the veins to prevent the migraines. Anyone else on this blog have this problem? Also, how do we find out if we have other auto immune disorders?

Yes, lots of people with celiac can have other autoimmune disorders. Autoimmune thyroid (Graves or Hashimoto's) are very common, as is Type 1 Diabetes. There are others that don't happen quite as often. I think autoimmune hepatitis is another one.

One specific test they can run is the anti-nuclear antibodies (ANA) which is a measure of autoimmunity but not specific for any disease. Usually an endocrinologist, rheumatologist, or GP would order them, don't know about chiropractor. Otherwise they can run more disease-specific tests, but then they'd want to do that on the basis of symptoms. Unless of course you're paying out of pocket. If there's no insurance company to fight with you might get a whole array of testing done...go to a place like Open Original Shared Link for more information about tests and what they look for.

There are lots of us with more than one autoimmune condition. <_<

nvsmom Community Regular
nvsmom
Posted

I take a supplement daily, one which dilates the veins and another which constricts the veins to prevent the migraines. .... Also, how do we find out if we have other auto immune disorders?

Those two meds sound contradictory... tricky.

I have idiopathic thrombocytopenic purpura ITP), which is a bleeding disorder in which the immune system destroys platelets (for blood clotting). I found out when... well, I wouldn't stop bleeding. :P I've heard ITP is linked to celiac but I'm not positive. For other disorders, you would have to test for tem specifically if they are suspected.

Good luck.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Those two meds sound contradictory... tricky.

I have idiopathic thrombocytopenic purpura ITP), which is a bleeding disorder in which the immune system destroys platelets (for blood clotting). I found out when... well, I wouldn't stop bleeding. :P I've heard ITP is linked to celiac but I'm not positive. For other disorders, you would have to test for tem specifically if they are suspected.

Good luck.

In this list of diseases and disorders associated with celiac disease, ITP is indeed listed---look under blood disorders. Just FYI.

Open Original Shared Link

nvsmom Community Regular
nvsmom
Posted

In this list of diseases and disorders associated with celiac disease, ITP is indeed listed---look under blood disorders. Just FYI.

Open Original Shared Link

Thanks, IrishHeart. I've heard they think there is a link, I just haven't found that they've proved it definitively... But I believe it probably is linked.

It's just so annoying to know that this other problem (ITP), that almost killed me, could have been prevented if my childhood doctors had been a bit sharper about my symptoms! I'm sure a LOT of people around here are in the same boat as me. :unsure:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

      You're right, doctors usually only test Vitamin D and B12. Both are really important, but they're not good indicators of deficiencies in the other B vitamins. Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer. The other B vitamins can only be stored for much shorter periods of time. Pyridoxine B 6 can...
    2. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron. I wondered how it was possible that I had celiac disease...
    3. knitty kitty
      - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment. The cow's body builds that Casein protein. It doesn't come from wheat. Casein can trigger the same reaction as being exposed to gluten in some people. This is not a dairy allergy (IGE mediated response). It is not lactose intolerance...
    4. trents
      - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the...
    5. Scott Adams
      - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,369
    • Most Online (within 30 mins)
      7,748
    Carole Eva
    Newest Member
    Carole Eva
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.