Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Auto Immune Disorders

redgouramis

Recommended Posts

redgouramis Newbie
redgouramis
Posted

I was finally diagnosed as having celiac sprue with DH about 2 years ago by a chiropractor specially trained in muscle testing. I am curious, however, if anyone on this blog has found they have other auto-immune disorders? I already know I have low insulin and low thyroid and have migraine headaches with an aura. I take a supplement daily, one which dilates the veins and another which constricts the veins to prevent the migraines. Anyone else on this blog have this problem? Also, how do we find out if we have other auto immune disorders?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I was finally diagnosed as having celiac sprue with DH about 2 years ago by a chiropractor specially trained in muscle testing. I am curious, however, if anyone on this blog has found they have other auto-immune disorders? I already know I have low insulin and low thyroid and have migraine headaches with an aura. I take a supplement daily, one which dilates the veins and another which constricts the veins to prevent the migraines. Anyone else on this blog have this problem? Also, how do we find out if we have other auto immune disorders?

Hello and welcome! Have you been tested by a medical doctor or had a metabolic panel done? Have you had a full Celiac Panel taken?

Other auto immune issues are common. I would suggest you see a medical doctor, not a chiropractor.

IrishHeart Veteran
IrishHeart
Posted

Welcome!

I agree with Lisa.

Sorry, but Celiac is not diagnosed by a chiropractor or by muscle testing. There is no scientific or medical evidence to support this practice.

Celiac is DXed by blood panels and/or biopsy, medical history and genetic testing.

DH is DXed by biopsy of the area around the lesions.

You should be evaluated by a medical doctor who is knowledgeable about celiac disease so you can be tested for this and other AI diseases. See a Celiac-savvy GI or an endocrinologist.

But, yes to answer your question, many AI diseases are associated with celiac disease.

Skylark Collaborator
Skylark
Posted

It's not that hard to identify DH. Blisters? Itches like a SOB? Goes away off gluten? Bingo. ;)

I have Hashimoto's thyroid disease, which is autoimmune. There is a blood test for it. I don't know much about adult onset type 1 diabetes but I know that it's possible. Sounds like you need an endocrinologist, not a chiro.

SarahJimMarcy Apprentice
SarahJimMarcy
Posted

I have a hypothyroid.

  • 2 weeks later...
beachbirdie Contributor
beachbirdie
Posted

I was finally diagnosed as having celiac sprue with DH about 2 years ago by a chiropractor specially trained in muscle testing. I am curious, however, if anyone on this blog has found they have other auto-immune disorders? I already know I have low insulin and low thyroid and have migraine headaches with an aura. I take a supplement daily, one which dilates the veins and another which constricts the veins to prevent the migraines. Anyone else on this blog have this problem? Also, how do we find out if we have other auto immune disorders?

Yes, lots of people with celiac can have other autoimmune disorders. Autoimmune thyroid (Graves or Hashimoto's) are very common, as is Type 1 Diabetes. There are others that don't happen quite as often. I think autoimmune hepatitis is another one.

One specific test they can run is the anti-nuclear antibodies (ANA) which is a measure of autoimmunity but not specific for any disease. Usually an endocrinologist, rheumatologist, or GP would order them, don't know about chiropractor. Otherwise they can run more disease-specific tests, but then they'd want to do that on the basis of symptoms. Unless of course you're paying out of pocket. If there's no insurance company to fight with you might get a whole array of testing done...go to a place like Open Original Shared Link for more information about tests and what they look for.

There are lots of us with more than one autoimmune condition. <_<

nvsmom Community Regular
nvsmom
Posted

I take a supplement daily, one which dilates the veins and another which constricts the veins to prevent the migraines. .... Also, how do we find out if we have other auto immune disorders?

Those two meds sound contradictory... tricky.

I have idiopathic thrombocytopenic purpura ITP), which is a bleeding disorder in which the immune system destroys platelets (for blood clotting). I found out when... well, I wouldn't stop bleeding. :P I've heard ITP is linked to celiac but I'm not positive. For other disorders, you would have to test for tem specifically if they are suspected.

Good luck.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Those two meds sound contradictory... tricky.

I have idiopathic thrombocytopenic purpura ITP), which is a bleeding disorder in which the immune system destroys platelets (for blood clotting). I found out when... well, I wouldn't stop bleeding. :P I've heard ITP is linked to celiac but I'm not positive. For other disorders, you would have to test for tem specifically if they are suspected.

Good luck.

In this list of diseases and disorders associated with celiac disease, ITP is indeed listed---look under blood disorders. Just FYI.

Open Original Shared Link

nvsmom Community Regular
nvsmom
Posted

In this list of diseases and disorders associated with celiac disease, ITP is indeed listed---look under blood disorders. Just FYI.

Open Original Shared Link

Thanks, IrishHeart. I've heard they think there is a link, I just haven't found that they've proved it definitively... But I believe it probably is linked.

It's just so annoying to know that this other problem (ITP), that almost killed me, could have been prevented if my childhood doctors had been a bit sharper about my symptoms! I'm sure a LOT of people around here are in the same boat as me. :unsure:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    4. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,544
    • Most Online (within 30 mins)
      7,748
    PatientOne
    Newest Member
    PatientOne
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.