Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Auto Immune Disorders

redgouramis

Recommended Posts

redgouramis Newbie
redgouramis
Posted

I was finally diagnosed as having celiac sprue with DH about 2 years ago by a chiropractor specially trained in muscle testing. I am curious, however, if anyone on this blog has found they have other auto-immune disorders? I already know I have low insulin and low thyroid and have migraine headaches with an aura. I take a supplement daily, one which dilates the veins and another which constricts the veins to prevent the migraines. Anyone else on this blog have this problem? Also, how do we find out if we have other auto immune disorders?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I was finally diagnosed as having celiac sprue with DH about 2 years ago by a chiropractor specially trained in muscle testing. I am curious, however, if anyone on this blog has found they have other auto-immune disorders? I already know I have low insulin and low thyroid and have migraine headaches with an aura. I take a supplement daily, one which dilates the veins and another which constricts the veins to prevent the migraines. Anyone else on this blog have this problem? Also, how do we find out if we have other auto immune disorders?

Hello and welcome! Have you been tested by a medical doctor or had a metabolic panel done? Have you had a full Celiac Panel taken?

Other auto immune issues are common. I would suggest you see a medical doctor, not a chiropractor.

IrishHeart Veteran
IrishHeart
Posted

Welcome!

I agree with Lisa.

Sorry, but Celiac is not diagnosed by a chiropractor or by muscle testing. There is no scientific or medical evidence to support this practice.

Celiac is DXed by blood panels and/or biopsy, medical history and genetic testing.

DH is DXed by biopsy of the area around the lesions.

You should be evaluated by a medical doctor who is knowledgeable about celiac disease so you can be tested for this and other AI diseases. See a Celiac-savvy GI or an endocrinologist.

But, yes to answer your question, many AI diseases are associated with celiac disease.

Skylark Collaborator
Skylark
Posted

It's not that hard to identify DH. Blisters? Itches like a SOB? Goes away off gluten? Bingo. ;)

I have Hashimoto's thyroid disease, which is autoimmune. There is a blood test for it. I don't know much about adult onset type 1 diabetes but I know that it's possible. Sounds like you need an endocrinologist, not a chiro.

SarahJimMarcy Apprentice
SarahJimMarcy
Posted

I have a hypothyroid.

  • 2 weeks later...
beachbirdie Contributor
beachbirdie
Posted

I was finally diagnosed as having celiac sprue with DH about 2 years ago by a chiropractor specially trained in muscle testing. I am curious, however, if anyone on this blog has found they have other auto-immune disorders? I already know I have low insulin and low thyroid and have migraine headaches with an aura. I take a supplement daily, one which dilates the veins and another which constricts the veins to prevent the migraines. Anyone else on this blog have this problem? Also, how do we find out if we have other auto immune disorders?

Yes, lots of people with celiac can have other autoimmune disorders. Autoimmune thyroid (Graves or Hashimoto's) are very common, as is Type 1 Diabetes. There are others that don't happen quite as often. I think autoimmune hepatitis is another one.

One specific test they can run is the anti-nuclear antibodies (ANA) which is a measure of autoimmunity but not specific for any disease. Usually an endocrinologist, rheumatologist, or GP would order them, don't know about chiropractor. Otherwise they can run more disease-specific tests, but then they'd want to do that on the basis of symptoms. Unless of course you're paying out of pocket. If there's no insurance company to fight with you might get a whole array of testing done...go to a place like Open Original Shared Link for more information about tests and what they look for.

There are lots of us with more than one autoimmune condition. <_<

nvsmom Community Regular
nvsmom
Posted

I take a supplement daily, one which dilates the veins and another which constricts the veins to prevent the migraines. .... Also, how do we find out if we have other auto immune disorders?

Those two meds sound contradictory... tricky.

I have idiopathic thrombocytopenic purpura ITP), which is a bleeding disorder in which the immune system destroys platelets (for blood clotting). I found out when... well, I wouldn't stop bleeding. :P I've heard ITP is linked to celiac but I'm not positive. For other disorders, you would have to test for tem specifically if they are suspected.

Good luck.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Those two meds sound contradictory... tricky.

I have idiopathic thrombocytopenic purpura ITP), which is a bleeding disorder in which the immune system destroys platelets (for blood clotting). I found out when... well, I wouldn't stop bleeding. :P I've heard ITP is linked to celiac but I'm not positive. For other disorders, you would have to test for tem specifically if they are suspected.

Good luck.

In this list of diseases and disorders associated with celiac disease, ITP is indeed listed---look under blood disorders. Just FYI.

Open Original Shared Link

nvsmom Community Regular
nvsmom
Posted

In this list of diseases and disorders associated with celiac disease, ITP is indeed listed---look under blood disorders. Just FYI.

Open Original Shared Link

Thanks, IrishHeart. I've heard they think there is a link, I just haven't found that they've proved it definitively... But I believe it probably is linked.

It's just so annoying to know that this other problem (ITP), that almost killed me, could have been prevented if my childhood doctors had been a bit sharper about my symptoms! I'm sure a LOT of people around here are in the same boat as me. :unsure:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies...
    2. Scott Adams
      - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted...
    3. Wheatwacked
      - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

      Have you had your 25(OH)D vitamin D blood level checked? Vitamin D deficiency occurs in 40 - 60% of western societies. It is even more common in Celiac Disease because of malabsorption syndrome. Appropriate intake of vitamin D or skin production from sun, increases the absorbtion rate of Calcium.and phosphorus, two minerals crucial to...
    4. Wheatwacked
      - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Some backup to my statement about gluten and milk. Some background. When my son was born in 1976 he was colicky from the beginning. When he transitioned to formula it got really bad. That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease...
    5. trents
      - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,386
    • Most Online (within 30 mins)
      7,748
    TByrd
    Newest Member
    TByrd
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      Shingles - Could It Be Related to Gluten/ Celiac

      By trents · Posted

      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.