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Celiac/lactose - Breastfeed Vs. Bottle


SmileyKylie

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SmileyKylie Rookie

I am a diagnosed Celiac-Lactose Intolerant. My Doctor does not have much experiece with my condition. Has anyone else received medical advise about a Celiac-Lactose Intolerants breast milk nutrients? I am debating if my nutrient levels will be inferior to formula. Since pregnancy, I have developed low levels of calcium and become Hypo-thyroid.

Or does anyone know where you could find this medical information? There is a lot of information on the web, but I haven't found any medical journals or etc on the topic.


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tarnalberry Community Regular

Kellymom.com has the information you need, and cites all of their sources in their articles.

Unless you are *severely* malnourished (think famine in a third world country), your body prioritizes your baby and your milk over you. With the exception of a few things (vitamin D, for instance), milk levels do not change in any significance without serious deficiency. Not to mention it is COMMON for some nutrient levels to go down during pregnancy (as is developing hypothyroid).

Keep taking your supplements, keep eating a well rounded diet, and your milk will be absolutely, totally fine. Not to mention it will have the antibodies, probiotics, and other micronutrients that your baby cannot get anywhere else.

  • 2 weeks later...
jebby Enthusiast

I agree. There is some decent research that providing breastmilk can help delay the onset of celiac disease in children who are genetically predisposed. Make sure that you take a prenatal vitamin and vitamin D and that your thyroid levels stay stable while you are breast feeding. Good luck with your pregnancy!!

Dumpling Newbie

I was undiagnosed Celiac while pregnant and had an awful time. My husband started making me smoothies with extra silky tofu, fruit & calcium OJ, that got me through it!! I also received help from a homeopathic doctor/nurse/midwife long distance~ a friend of a friend kind of thing. She had me eating rice noodles with broth & ginger to settle my stomach. In the end I gained only 7 pounds and had a low birth weight baby. That was almost 21 years ago :D! He was difficult to breastfeed, but I perused and I do not regret it at all. He is a healthy college man now (I can't believe I just called my baby, a man :o ) He is a little slower on physical growth, but doing very well otherwise!! My other pregnancies were better because I learned how to eat and demand better care for myself. You may want to call around and look for a doctor who has experience with celiacs. I wish I knew then, what I know now. Lots of luck & happiness to you!!

  • 1 month later...
SGWhiskers Collaborator

And remember all the antibodies and bonding hormones that breast milk has that are not in formula.

come dance with me Enthusiast

Even in Third World countries, it's better to breastfeed than not. Bubs get all they need from it. My daughter showed no symptoms of coeliac disease until about 7, and was breastfed until she was 3, so I'm really glad she had that to start with.

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      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
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      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
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