Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello Everyone!


jswog

Recommended Posts

jswog Contributor

Hi! I'm sure many of you are new enough to not remember me. I've lurked a bit, but haven't really posted much for quite a while now. I've been busy visiting the boards at Babycenter.com! I'm now 36 weeks pregnant and give all the credit to going gluten free (and, thereby, to you all here as well for all of the help and support you gave me in doing so). If anyone is interested, I can share the whole testimonial (I have posted it on the pregnancy board here...), but there are definately too many things to think it's coincidence. Hubby and I have a little boy due August 19 who looks to be developing 100% perfectly, despite my age and a few other potential issues. I'm also maintaining iron and other levels even throughout the pregnancy better than I have at any other point in my life. I have had severe morning sickness and am still on prescription meds to keep it under control. We're totally looking forward to meeting our new little man in just a few short weeks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

Congratulations and welcome back!! I do remember you. I'm so happy for you and your husband. You are going to be so busy now you won't believe it! But feel free to post your testimonial because you had quite a road as I recall and it may be of help to someone who is struggling like you did. Hope all continues to go well for you and thanks for letting us know how you are doing!

lynnelise Apprentice

I do remember you being on the boards! Congrats on your pregnancy! :)

1974girl Enthusiast

Congratulations! Fertility issues is the main reason that keeps me going gluten-free with my silent celiac dd. So glad it all is working out. I hope you will try to breast feed. There is a lot if research that shows that may help protect the development of celiac and type 1 diabetes. I did not do it with my 1st and she got celiac. I did for a year with #2 and she is fine despite still having the genes. So just try! No regrets like me!

Jestgar Rising Star

Yay!!!!

We really should have a bulletin board or sumpin' of all 'our' babies. :huh:

GottaSki Mentor

Thanks for sharing your great news.

Welcome Back and Congratulations!

IrishHeart Veteran

I remember you very well --and I am so very happy for you, J!!!

yaaaay!! Congrats!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Yay!!!!

We really should have a bulletin board or sumpin' of all 'our' babies. :huh:

I second that!

Roda Rising Star

I remember you too. I was wondering when the baby would come. He'll be here before you know it!! So happy for you.

Roda Rising Star

Congratulations! Fertility issues is the main reason that keeps me going gluten-free with my silent celiac dd. So glad it all is working out. I hope you will try to breast feed. There is a lot if research that shows that may help protect the development of celiac and type 1 diabetes. I did not do it with my 1st and she got celiac. I did for a year with #2 and she is fine despite still having the genes. So just try! No regrets like me!

I'm very pro breastfeeding and think it was the best choice for both of my boys. I cherrish the times we had alone bonding. My youngest son would nurse and play with my hair. To this day when he is tired or not feeling well he plays with it. So sweet.

Well, I breast fed my celiac son for 16 months. In hindsite I think he had celiac as a baby but didn't show positive on blood work until he was almost 6 years old. He was first tested when he was 3 after I was diagnosed. All his symptoms as a baby and toddler make sense now. I was unknowingly gluten light while breastfeeding for the first 10 months. I avoided dairy, rice, oats, and tree nuts. He reacted to all of those. I ate a lot of fresh fruit/veggies and meat but was not gluten free. I also fed him barley cereal.

Oldest son was breastfed for 14 months. He is not celiac but is non celiac gluten intolerent.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      heaps of hope!

    2. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

    3. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,994
    • Most Online (within 30 mins)
      7,748

    KimberlyS
    Newest Member
    KimberlyS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • wellthatsfun
      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.