Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello Everyone!

jswog

By jswog
in Coping with Celiac Disease

Recommended Posts

jswog Contributor
jswog
Posted

Hi! I'm sure many of you are new enough to not remember me. I've lurked a bit, but haven't really posted much for quite a while now. I've been busy visiting the boards at Babycenter.com! I'm now 36 weeks pregnant and give all the credit to going gluten free (and, thereby, to you all here as well for all of the help and support you gave me in doing so). If anyone is interested, I can share the whole testimonial (I have posted it on the pregnancy board here...), but there are definately too many things to think it's coincidence. Hubby and I have a little boy due August 19 who looks to be developing 100% perfectly, despite my age and a few other potential issues. I'm also maintaining iron and other levels even throughout the pregnancy better than I have at any other point in my life. I have had severe morning sickness and am still on prescription meds to keep it under control. We're totally looking forward to meeting our new little man in just a few short weeks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eatmeat4good Enthusiast
eatmeat4good
Posted

Congratulations and welcome back!! I do remember you. I'm so happy for you and your husband. You are going to be so busy now you won't believe it! But feel free to post your testimonial because you had quite a road as I recall and it may be of help to someone who is struggling like you did. Hope all continues to go well for you and thanks for letting us know how you are doing!

lynnelise Apprentice
lynnelise
Posted

I do remember you being on the boards! Congrats on your pregnancy! :)

1974girl Enthusiast
1974girl
Posted

Congratulations! Fertility issues is the main reason that keeps me going gluten-free with my silent celiac dd. So glad it all is working out. I hope you will try to breast feed. There is a lot if research that shows that may help protect the development of celiac and type 1 diabetes. I did not do it with my 1st and she got celiac. I did for a year with #2 and she is fine despite still having the genes. So just try! No regrets like me!

Jestgar Rising Star
Jestgar
Posted

Yay!!!!

We really should have a bulletin board or sumpin' of all 'our' babies. :huh:

GottaSki Mentor
GottaSki
Posted

Thanks for sharing your great news.

Welcome Back and Congratulations!

IrishHeart Veteran
IrishHeart
Posted

I remember you very well --and I am so very happy for you, J!!!

yaaaay!! Congrats!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Yay!!!!

We really should have a bulletin board or sumpin' of all 'our' babies. :huh:

I second that!

Roda Rising Star
Roda
Posted

I remember you too. I was wondering when the baby would come. He'll be here before you know it!! So happy for you.

Roda Rising Star
Roda
Posted

Congratulations! Fertility issues is the main reason that keeps me going gluten-free with my silent celiac dd. So glad it all is working out. I hope you will try to breast feed. There is a lot if research that shows that may help protect the development of celiac and type 1 diabetes. I did not do it with my 1st and she got celiac. I did for a year with #2 and she is fine despite still having the genes. So just try! No regrets like me!

I'm very pro breastfeeding and think it was the best choice for both of my boys. I cherrish the times we had alone bonding. My youngest son would nurse and play with my hair. To this day when he is tired or not feeling well he plays with it. So sweet.

Well, I breast fed my celiac son for 16 months. In hindsite I think he had celiac as a baby but didn't show positive on blood work until he was almost 6 years old. He was first tested when he was 3 after I was diagnosed. All his symptoms as a baby and toddler make sense now. I was unknowingly gluten light while breastfeeding for the first 10 months. I avoided dairy, rice, oats, and tree nuts. He reacted to all of those. I ate a lot of fresh fruit/veggies and meat but was not gluten free. I also fed him barley cereal.

Oldest son was breastfed for 14 months. He is not celiac but is non celiac gluten intolerent.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,247
    • Most Online (within 30 mins)
      7,748
    Jbamf8791
    Newest Member
    Jbamf8791
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Hypothetical question about antibodies

      By knitty kitty · Posted

      @Zuma888, The antibodies produced in response to gluten are made in the intestines.  When the body is provoked sufficiently, the antibodies overflow out of the intestines and into the blood stream.  Once in the blood stream, the antibodies can be measured with tTg IgA tests.  Three grams of gluten per day for two weeks minimum is enough gluten to make you feel the symptoms of having been glutened, but the antibodies are not in sufficient quantity to be measured in the blood. Ten grams of gluten per day for a minimum of two weeks is required to get the anti gluten antibodies at a high enough level in the blood stream to be measured by tTg IgA tests. So, no, occasional cross contamination or (heaven forbid) intentional cheat days will not be sufficient for tTg IgA testing.  You will still be making antibodies which will still be causing inflammation and damage to the intestines and body.  Histamine is released as part of the immune response to gluten.  High histamine levels lead to food sensitivities, brain fog, and body aches.   The damage done to the gastrointestinal tract affects the absorption of essential vitamins and minerals.  Malabsorption of fats can cause changes in stools.  Insufficient absorption of vitamins and minerals can cause damage to other organs like the thyroid if it can't get enough Selenium, iodine, iron, zinc, and Thiamine.  Brain fog and fatigue can be caused by low Thiamine and other B Complex vitamins.  Vitamin D is needed to regulate the immune system.  One gene is all that's needed to develop Celiac disease.  I know a Celiac diagnosis is a change that can be difficult to get your head around.  Many people go through the five stages of grief.  One stage is "bargaining".  Sounds like you're stuck there.  Every little cheat counts to your detriment.  But sticking to a gluten free diet, makes every meal a success.   Read the comments below the article... Best wishes!  Keep us posted on your progress!
    • Scott Adams
      Hypothetical question about antibodies

      By Scott Adams · Posted

      No, I would not say this at all. If you were diagnosed with celiac disease and were gluten-free for a while, you could have gone into remission. Everyone's body is different, and some celiacs may be able to get regular contamination and not end up with damaged villi and positive antibody tests, while others who ingest tiny amounts will relapse and have full blown symptoms and flattened villi.  Only a full gluten challenge would reveal where you are at this point. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Inflammation and Menier’s disease link?

      By Scott Adams · Posted

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Pablohoyasaxa
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By Pablohoyasaxa · Posted

      Great  post. The skin issue can be intolerable. I have been taking niacinamide for the past month and have improved with respect to the blistering lesions. 
    • knitty kitty
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By knitty kitty · Posted

      I've found taking Niacin Vitamin B 3 in the form that causes flushing (nicotinic acid) helps immensely to clear my skin.  The flushing is harmless and goes away the longer Niacin is taken.  The flushing (vasodilation in the skin) helps the body get rid of the tTg 3 IgA antibodies that cause the blisters.  TTg 2 IgA antibodies are found in the blood and are measured in diagnostic testing for Celiac.  People with Dermatitis Herpetiformis make tTg 3 as well as tTg 2 antibodies.  Niacin Vitamin B3 in the non flushing form niacinamide also works without the flushing, but takes a bit longer.   I also avoid foods containing high levels of iodine because iodine activates the tTg 3 IgA antibodies to become more active and make more blisters.  I avoid kelp (nori, seaweed) and crustaceans,  eggs, dairy products, and iodized table salt.   Niacinamide and Nicotinic acid are water soluble and harmless.  I'd much rather take Niacin than Dapsone with scary side effects.  
×
×
  • Create New...