Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Increased Sensitivity After 2 Months Gluten Free?


Keshavdas

Recommended Posts

Keshavdas Apprentice

Hi - I'm new to the forum. Found out by accident that I have celiac issues. My doctor (who is mostly useless) did a wide-spectrum panel of blood tests to see if he could come up with any reason why my chronic fatigue has re-appeared after 5 years - and one of the things that came up was that I had celiacs disease. Can't believe that after 20 years of complaining about how every little thing set off month-long bouts of terrible constipation that neither my doctor or any of the five other GI doctors who did colonoscopies - ever considered checking me for celiac issues!!!

I quit eating gluten right away and it's been months now with no bloating or constipation. Incredible. However - I have had a few minor "slips" about two weeks ago, a tortilla that wasn't corn after all, a bit of pie, nothing major... followed by diarrhea and nausea in the morning accompanied by crazy severe depression.

I never had severe reactions like this when I was eating bread, pizza, pasta etc? Anybody have similar experience?

I am in the meantime getting tested for parasites - because this combination of symptoms is exactly what I experienced last time I got sick in India.

Thanks,

KD


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient
I never had severe reactions like this when I was eating bread, pizza, pasta etc? Anybody have similar experience?

You may think you are getting worse. I think your body is now getting better enough to let you know what it doesn't like.

I hope you will look and find other posts on this theme. Yes, many of us have experienced new and different symptoms as we transition.

Best wishes and get well.

Diana

GottaSki Mentor

Yes, I think most of us become more sensitive and some become hyper sensitive -- we can get symptoms that you describe and worse from very small amounts of gluten - a whole flour tortilla - don't even want to think about what that would do to me :blink:

For me - I recall becoming more and more sensitive over the first 6 months which encouraged me to become that much more diligent in learning where all potential gluten sources were.

Hang in there!

ccheri Newbie

My family and I have been on the gluten-free diet for just over a year, now. My husband, basically, started the diet to support my son and I, in which, gluten has a drastic affect to us. My husband has had intestinal issues and the gluten-free diet has helped him considerably. Except now, whenever he eats gluten, he gets really sick as if he has celiacs disease. I'm concerned that going gluten-free can increase sensitivity. I suggest this diet for people to try if they have many health problems. Doctors say you should try it 2-3 weeks and see if it makes you feel better, if it helps continue it. I'm concerned with my 19 yr old daughter and knowing her pasts symptoms, that she should be on the diet. She says that she is afraid if she starts it, it will make her sensitive, like her step-dad. I don't have an argument for that,(we don't have health insurance because of another lengthy issue), so I'm interested in other people's experiences with it. Thanks.

beachbirdie Contributor

I'm about two months gluten free (with the exception of three or 4 mis-steps) and I'm noticing I am more reactive than I thought I'd be.

I was eating bread and all kinds of glutenous stuff and not feeling too badly, maybe some bloating and a little tenderness once in a while.

Now, if I get a little unexpected gluten I start hurting in a few hours, and hurt for a week.

nvsmom Community Regular

I seem to be more sensitive now too... I think. It could be that I'm not used to the discomfort anymore but I don't think that's it entirely.

I ate out a few days ago, and ordered gluten-free from a gluten-free menu and something got me, I have no idea what. I was shocked at how obvious my reaction was with the belly ache, bloat and migraine... Quite disappointing.

LauraB0927 Apprentice

I never had GI symptoms and like you was diagnosed almost by accident. Now after only several months of eating gluten free I've found that I'm extremely sensitive - I could eat 3 slices of pizza and a bowl of pasta and NOTHING. Now today, I ate gluten free gummy bears but then saw on the package that it was made in a facility that also makes wheat products and not even an hour later my abdomen is rock hard and three times its normal size - fatigue has already set in and now I'm just waiting for my joints to flare up as well. After today I realize that I'm VERY sensitive, more sensitive than I thought. Other people on this forum seem to have the same experiences. I agree with the above comment, now our bodies are just becoming more advanced to let us know when we make a wrong turn....good luck and keep in touch!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cara in Boston Enthusiast

If you have a gluten sensitivity (celiac or intolerant) you will likely become more sensitive (more severe reactions) to even smaller amounts of gluten the longer you are gluten free. This is part of the healing process and your body is supposed to work like this. Here's how it was explained to me: Before gluten-free diet, your body was overwhelmed with the daily load of gluten. Since the gluten was constant, you may have had annoying symptoms off and on or not at all. That is the best your body could muster up. Now that your body is gluten free, it responds in a big way whenever gluten is reintroduced. Like it has been sitting around just waiting for gluten to mess with it.

My son's symptoms have changed (we see more symptoms and more severe) and he is sensitive to even the smallest amount (like from cross contamination) after a year of being gluten free. His symptoms are way worse than anything we experienced before he was diagnosed.

If you are not actually sensitive to gluten, going gluten-free will not MAKE you more sensitive. It just doesn't work like that. We have non-celiac members in our family who are mostly gluten free (except when they eat out) and there has been no change for them. If you are undiagnosed and find that after you start the gluten-free diet you become more sensitive or develop new symptoms when gluten is accidently ingested, YOU WERE ALREADY GLUTEN-SENSITIVE and you just didn't know it. Your reaction to the diet is your body telling you YOU SHOULD NOT BE EATING GLUTEN ANYWAY.

Cara

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,896
    • Most Online (within 30 mins)
      7,748

    Judy M
    Newest Member
    Judy M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.