Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Yes, Things Do Get Better!

FruitEnthusiast

Recommended Posts

FruitEnthusiast Enthusiast
FruitEnthusiast
Posted

I've been agonizing over the time it's taking to heal, as I've mentioned in previous posts. Then I made an encouraging realization. Recovering isn't taking as long as I thought. I keep thinking I've been gluten free for nearly five months, which is technically true, but I've been developing sensitivities to other foods for the last three months, and was "glutened" a few times each of those months, not by actual gluten, but by other the other foods I've developed the exact same symptoms to: rice, eggs, and nightshades. Each time I was getting better before trying another new food. So, there is a direct link to my current symptoms, and still feeling bad makes sense. I've only been "reaction free" since eliminating the last problem food. That was only three weeks ago! In reality I've only been "gluten" free for three weeks! No wonder I've been so sick. There aren't any foods left to "test", so that's great. I still have to eat the extremely limited diet I'm eating now, for a long time, but I won't be eating anything else new, so I really can start to recover, finally. I already am.

Thank goodness I kept track of each dietary change on my calendar, otherwise I wouldn't be able to put these pieces together. I think the brain fog, depression, and anxiety (all part of the entire group of symptoms I experience) has kept me from seeing this pattern sooner. I can tell my mind is clearing because I'm starting to think about things I haven't thought about in a long time, like my future, instead of just trying to get through each day. I'm feeling a lot more positive, listening to music, working on my artwork, and exercising again.

Things do get better. Even when I have any other setbacks, because, of course, this road will never be entirely free of "bumps", I can look back at this post and others like it, and remind myself to be patient, and that the recovery will come.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

Sara, that is great to hear. We have all been or are going through something that will, in the long run, make us stronger people. We have learned to cherish the good days, and we have learned patience to get us through the bad ones.

But most of all, I think this disease teaches us about hope. And hope is one of the most beautiful words in the English language.

Keep up the good work, and here's hoping your setbacks are mild and infrequent! :)

cahill Collaborator
cahill
Posted

I have been gluten free since 2009 and soy free since 2010 and I still keep a food journal.

I can not stress how helpful it has been.I would suggest that anyone having food issues keeps a food journal.

Glad things are looking up :)

FruitEnthusiast Enthusiast
FruitEnthusiast
Posted
  • Author

It's such a rollercoaster right now. A good day then a bad one and so on... I still don't know what each day will be like. Didn't feel well again today, but seem to be bouncing back tonight. Tomorrow who knows? It feels good to be feeling more like myself again though. It means so much to me to be able to check in on this site, and see what's happening with all the rest of you who are having similar experiences. I felt so alone with this stuff before, and since finding this forum, I feel like I'm part of a community. It's really nice. I hope others who are suffering will find it too.

cahill Collaborator
cahill
Posted

It's such a rollercoaster right now. A good day then a bad one and so on... I still don't know what each day will be like. Didn't feel well again today, but seem to be bouncing back tonight. Tomorrow who knows? It feels good to be feeling more like myself again though. It means so much to me to be able to check in on this site, and see what's happening with all the rest of you who are having similar experiences. I felt so alone with this stuff before, and since finding this forum, I feel like I'm part of a community. It's really nice. I hope others who are suffering will find it too.

It is a rollercoaster right now but just hang in the there. At some point you will realize that you are having more good days than bad. Then you will realize it has been awhile since you had a bad day.

It DOES get better :)

1desperateladysaved Proficient
1desperateladysaved
Posted

"But most of all, I think this disease teaches us about hope. And hope is one of the most beautiful words in the English language."

Five years back when I was terribly ill I saw a Home for sale sigh. I thought it said "Hope for Sale." Oh, I could use some hope I thought. I had no hope in this world, but God was my hope. He is bringing me through it.

Thanks for this thread it is hard not to lose sight of the light ahead sometimes.

FruitEnthusiast Enthusiast
FruitEnthusiast
Posted
  • Author

It is a rollercoaster right now but just hang in the there. At some point you will realize that you are having more good days than bad. Then you will realize it has been awhile since you had a bad day.

It DOES get better :)

I really like the way you put that. Thanks. Pretty sick again today. I believe in what you have said here though. I look forward to getting better and better. I know it will happen. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

Good for you Sara. Simple food and a simple diet can make a big difference in healing speed IMHO. But it sitll takes time for things to settle down in your gut, and come to a new "normal". The usual things like avoiding sugar, taking probiotics, and digestive enzymes are helpful too.

I am trying to get started back up on doing my art right now. I got over a coconutting, a stomach ulcer, and a slight CC incident and feel ok again. All that only took a couple weeks to go by. Things do get better, it may take awhile, but they do get better given time and attention to diet. I hope you continue to improve! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. dixonpete
      0

      Inoculation and video development

    2. Juliane
      - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Stomach burning and neuropathy

      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    3. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
    4. Colleen H
      - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Stomach burning and neuropathy

      Hello I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet. Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I...
    5. sleuth
      - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Of course my son is on a 100% gluten free diet. I wish his symptoms were not debilitating as there are right now. He cannot work, even when a miniscule of cross contamination occurs. It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc. It's literally neurological inflammation. Not to be taken lightly here. We...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,842
    • Most Online (within 30 mins)
      7,748
    JenKnight
    Newest Member
    JenKnight
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Juliane
      Stomach burning and neuropathy

      By Juliane · Posted

      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.