Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Teens :d


shauniscrazy

Recommended Posts

shauniscrazy Explorer

I am new and would love tips. I would like to here what other people did when they first found out too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Persei V. Enthusiast

I felt desperate. I was sick for a couple of weeks when I put the pieces together and went to a doctor, and my diet was only liquids, not to mention I was rail thin. How was I supposed to reach a healthy weight again, if I am not supposed to eat anything with wheat? My diet was basically cookies, bread and juice, back then.

So I sat down and started to list foods I liked and could eat. Then I went on trying new ones when I got better, and my food list has expanded greatly ever since. Processed foods around where I live hardly are gluten free, so I had to look before leap.

And that's about it. Thinking about what you can eat safely for the time being until well enough to try out other things seems to be the reasonable thing to do.

shauniscrazy Explorer

I felt desperate. I was sick for a couple of weeks when I put the pieces together and went to a doctor, and my diet was only liquids, not to mention I was rail thin. How was I supposed to reach a healthy weight again, if I am not supposed to eat anything with wheat? My diet was basically cookies, bread and juice, back then.

So I sat down and started to list foods I liked and could eat. Then I went on trying new ones when I got better, and my food list has expanded greatly ever since. Processed foods around where I live hardly are gluten free, so I had to look before leap.

And that's about it. Thinking about what you can eat safely for the time being until well enough to try out other things seems to be the reasonable thing to do.

Thanks and i have been trying new foods. I have also found new ones to replace what i cant eat anymore. I cant really get anything at restaurants anymore :P. Sandwiches on gluten free bread is about the only thing i have been eating now though and that is getting old quick lol. What would you recommend?

Sage122 Explorer

I completely feel you. This weekend, I had to be rushed to the ER cause I had an anaphylactic reaction to wheat and milk. Now I can't eat wheat (gluten) or milk (cheese, butter, ice cream, yogurt, rtc). It's hard but I HAVE to stick to it. The next time i accidentally consume it, I could die.

I've been scared to eat now too, after all had happened. But like the other user said, you just need to sit down and write what you CAN eat. I'm making cheese less Mexican pizza tonight (refried beans, salsa , corn) with a dairy free wheat free crust I found at whole foods. You can manage. Here are some ideas for you:

Chicken/fish/meat and veggie

Rice and meat

Tacos

Corn tortillas with stuff inside

What did you eat before you found out you had celiac??? You can pretty much eat the same things. Now you just have to substitue pasta and bread for Gluten free pasta and bread

shauniscrazy Explorer

I completely feel you. This weekend, I had to be rushed to the ER cause I had an anaphylactic reaction to wheat and milk. Now I can't eat wheat (gluten) or milk (cheese, butter, ice cream, yogurt, rtc). It's hard but I HAVE to stick to it. The next time i accidentally consume it, I could die.

I've been scared to eat now too, after all had happened. But like the other user said, you just need to sit down and write what you CAN eat. I'm making cheese less Mexican pizza tonight (refried beans, salsa , corn) with a dairy free wheat free crust I found at whole foods. You can manage. Here are some ideas for you:

Chicken/fish/meat and veggie

Rice and meat

Tacos

Corn tortillas with stuff inside

What did you eat before you found out you had celiac??? You can pretty much eat the same things. Now you just have to substitue pasta and bread for Gluten free pasta and bread

Thanks for your reply and im sorry that happened to you. I have never had any really bad reactions, i just felt sick and really tired all the time. But i cant have wheat or dairy either now. I have found substitutes for most things like they have dairy free cheese which would go great with your pizza lol and i have been drinking rice milk instead.

  • 2 weeks later...
Guest Runningdream

That seems hard. Have you gone to whole foods? They have tons of gluten free and dairy free stuff

shauniscrazy Explorer

That seems hard. Have you gone to whole foods? They have tons of gluten free and dairy free stuff

I want to go to one but the closest is more than an hour away i believe. But ingles has a bunch of gluten free and dairy free. There is also an Earth Fare near here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,032
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.