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Should I Get Some Other Tests


scottyg354

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scottyg354 Enthusiast

Ok thyroid labs are completely normal. I don't have my most recent available but I know they were right were they had to be. Testosterone was way low. Going to discuss with doc next week. I'm still having odd issues though.

Bowel Troubles are stills pretty constant

I get burning and nausea in the gut

dizziness (almost to the point that it makes me feel like falling over)

sweating

fatigue (which I put up to the Low T)

I'm not losing weight but I'm also not gaining (thank god)

I also have low vitamin d. I've been taking 5000 IU every night.

Any suggestions as to what else could be going on here.

I had a colonoscopy, no crohns or uc. Had the celiac blood test done, came back negative with I think the Gluten Giladian IgG or IgA (i forget which ones) be Tentative at 11 which was the slightest elevated.

Liver Panel was fine, nothing showed up on my Abdominal and Pelvic Ultrasound.

Any suggestions as to any other testing or could it be stress. I'm not really worried these days as much as annoyed as I want to feel better.


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GFinDC Veteran

Hi Scotty,

The sweating could be an indicator of infection or inflammation. I used to sweat a lot especially when sleeping at night. Ongoing irritation in the gut can cause that IMHO. That kind of irritation can be caused by food intolerances (as it was for me), or parasites, or Crohns or UC which are already ruled out. The answer for me was changing my diet. Diet made a huge difference for me but it took me years to figure out the problem foods and eliminate them. New ones seemed to crop up over time. So that's where I would tend to look first, is diet. Doctors aren't much help with that.

1desperateladysaved Proficient

You might want to study out any other nutrients you need. If you are not absorbing D well, what about B? Many of us are low in magnesium, iron, and B vitamins. I am planning to do a blood test for nutrients. Spectra -Cell is one test that measures for nutrients.

DT

frieze Community Regular

Ok thyroid labs are completely normal. I don't have my most recent available but I know they were right were they had to be. Testosterone was way low. Going to discuss with doc next week. I'm still having odd issues though.

Bowel Troubles are stills pretty constant

I get burning and nausea in the gut

dizziness (almost to the point that it makes me feel like falling over)

sweating

fatigue (which I put up to the Low T)

I'm not losing weight but I'm also not gaining (thank god)

I also have low vitamin d. I've been taking 5000 IU every night.

Any suggestions as to what else could be going on here.

I had a colonoscopy, no crohns or uc. Had the celiac blood test done, came back negative with I think the Gluten Giladian IgG or IgA (i forget which ones) be Tentative at 11 which was the slightest elevated.

Liver Panel was fine, nothing showed up on my Abdominal and Pelvic Ultrasound.

Any suggestions as to any other testing or could it be stress. I'm not really worried these days as much as annoyed as I want to feel better.

The low T may be related to the low D.....obviously the dose you are taking is not working. Need more, or more sun.

Bubba's Mom Enthusiast

Ok thyroid labs are completely normal. I don't have my most recent available but I know they were right were they had to be. Testosterone was way low. Going to discuss with doc next week. I'm still having odd issues though.

Bowel Troubles are stills pretty constant

I get burning and nausea in the gut

dizziness (almost to the point that it makes me feel like falling over)

sweating

fatigue (which I put up to the Low T)

I'm not losing weight but I'm also not gaining (thank god)

I also have low vitamin d. I've been taking 5000 IU every night.

Any suggestions as to what else could be going on here.

I had a colonoscopy, no crohns or uc. Had the celiac blood test done, came back negative with I think the Gluten Giladian IgG or IgA (i forget which ones) be Tentative at 11 which was the slightest elevated.

Liver Panel was fine, nothing showed up on my Abdominal and Pelvic Ultrasound.

Any suggestions as to any other testing or could it be stress. I'm not really worried these days as much as annoyed as I want to feel better.

Ask to be tested for small intestine bacterial overgrowth(SIBO). If you have bad bacteria in your upper intestine it can rob the nutrients from your body, causing malabsorption of some of them. They can also emit toxins into your system as they feed, causing reactions like dizziness and night sweats. Did you get an endoscope done to see how your villi look?

You may be Celiac, or at least gluten intolerant? If Celiac blood tests show up negative, try strict gluten-free anyway for at least 3 months. You could have an intolerance which hasn't progressed enough to show in the bloodwork and there's also a 20-30% false negative with blood tests.

For the nausea..have you had a HIDA scan? It tests how your gallbladder is functioning. This is different from an ultrasound which checks for gallstones. If your gallbladder isn't functioning at a normal rate, your pancreas may not be releasing the digestive enzymes you need either? They both get their signal from CCK, a hormone made in the duodenum. If you have damage to this area from SIBO, Celiac, or dairy/soy or other intolerance either the hormone may not be made..or may not be sent to signal those two organs to "do their thing".

If you have taken acid blockers, SIBO is more likely. Adding probiotics and digestive enzymes could help you out a lot.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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