Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diet Is Working, Yee Ha


T.H.

Recommended Posts

T.H. Community Regular

Both my family and my husband's have thyroid problems, hypothyroidism on my side, Hashimoto's on his. My daughter was tested last year and both her TSH and her Free T4 were too high.

We were vacillating on whether to take her to the endocrinologist or not, but in the end, I opted to wait and retest her. When I was reacting less and really careful in my foods, my thyroid numbers improved, so I was hoping the same might apply to her as well.

So, we've been SUPER careful. We already had a gluten free household and almost no gluten-free processed food, but we've been even more careful in the last year with her. We switched her to gluten-free certified foods only (her choice, as it made her feel safer). We dropped all grains because she was saying they are making her stomach hurt as well, and she reacted a few times to gluten cc with them. We don't eat out now and take all our food everywhere and she is much more careful about handling her food and touching her mouth while she's out and about.

She went from reacting every few weeks to maybe 2 reactions in the last 6 months. Big improvement.

We retested her again this week and her test results came back:

TSH went from 5.3 to 2.2

Free T4 went from 6.7 to 1.2

So much better! I'm so happy we waited and gave the diet change a shot. She's not completely well yet, but I'm so happy that our extra caution and consistency has resulted in improved health for her. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

Wow..that's fantastic news! The switch to gluten-free and tightening up the chance of cc has probably saved your daughter from a lifetime of thyroid problems?

Isn't it amazing how many things in our bodies are affected by what we eat? :blink:

beachbirdie Contributor

WOW! That is incredible news! Way to go! As Bubba's Mom said, I hope that your diligence and success nowwill protect her from thyroid issues for the rest of her life!

If I had known when my thyroid problems first started that gluten is a common trigger, I'd have been gluten free decades ago!

T.H. Community Regular

As Bubba's Mom said, I hope that your diligence and success nowwill protect her from thyroid issues for the rest of her life!

Thanks guys; that's what I'm hoping. It would be so wonderful if this diet enables her to avoid all these problems that have plagued the rest of the family. Her grandmother developed her Hashimoto's early, right around my daughter's age, so I was really worried about it, you know?

We don't know what's going to happen in the future, obviously, but at least I feel like this is giving her the best chance at having a healthy, happy, long life. Considering that we also have Diabetes and Rheumatoid Arthritis in the family, too, my poor kids need all the help they can get!

gemini1962 Newbie

Both my family and my husband's have thyroid problems, hypothyroidism on my side, Hashimoto's on his. My daughter was tested last year and both her TSH and her Free T4 were too high.

We were vacillating on whether to take her to the endocrinologist or not, but in the end, I opted to wait and retest her. When I was reacting less and really careful in my foods, my thyroid numbers improved, so I was hoping the same might apply to her as well.

So, we've been SUPER careful. We already had a gluten free household and almost no gluten-free processed food, but we've been even more careful in the last year with her. We switched her to gluten-free certified foods only (her choice, as it made her feel safer). We dropped all grains because she was saying they are making her stomach hurt as well, and she reacted a few times to gluten cc with them. We don't eat out now and take all our food everywhere and she is much more careful about handling her food and touching her mouth while she's out and about.

She went from reacting every few weeks to maybe 2 reactions in the last 6 months. Big improvement.

We retested her again this week and her test results came back:

TSH went from 5.3 to 2.2

Free T4 went from 6.7 to 1.2

So much better! I'm so happy we waited and gave the diet change a shot. She's not completely well yet, but I'm so happy that our extra caution and consistency has resulted in improved health for her. :D

Hi I have been receintly diagnosed with Celiac Disease and it was in my small and large intestines, the worse case the doctor has seen. I had half of thyroid removed years ago and the doctors have never been able to get me regulated. I was so glad to see your post on both Celiac & Thyroid issues. I would really like to know more specifics on the diet you are using in hopes to get both under control.

T.H. Community Regular

... I had half of thyroid removed years ago and the doctors have never been able to get me regulated... I would really like to know more specifics on the diet you are using in hopes to get both under control.

Sure, no problem. :-)

The basics that me and my daughter both do are pretty much the same:

1. We don't really eat processed gluten-free food

2. We don't really eat grains - I just could not get better when I had any grains at all. My daughter every once in a while has Tinkyada pasta, but that seems about her limit, at the moment.

3. We both carefully source our nuts and legumes so that they are not from facilities that also process wheat. We can't much of these, but a little is okay for us.

4. We both started keeping a food journal, got tested for food and environmental allergies, went on an elimination diet based on the food journal and allergy tests, and found other foods that affect us. Now we both don't eat our 'bad' foods that make us react, either.

5. We both don't eat dairy - this is because we both react to it, but it seems to be one of the most common foods that Celiacs have trouble with in the beginning due to intestinal damage. Some of us are able to eat dairy again after we've healed up a few months later.

6. We started eating organic meats, fruits and veggies rather than conventional.

7. I started growing an herb garden and using fresh herbs rather than purchased spices. I've been very happy with this, not just for food reasons but because the fresh herbs tend to add some vitamins and antibacterial components to the diet, as well.

8. We made the house gluten free, including our pet's food and our toiletries. Some prefer to do this, some don't. But looking at everything that will touch your lips is a good idea, IMO. For example hand lotion, if you chew your nails.

I will use olive oil and sea salt, and my daughter every once in a while will eat a processed gluten-free food that is gluten free certified (it's the black circle against a white background with a black gluten-free in the middle) by the GFCO.

So yeah, those are the basics. :-D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Ginger38's topic in Related Issues & Disorders
      13

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - knitty kitty replied to Ginger38's topic in Related Issues & Disorders
      13

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      13

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - chrisinpa commented on Scott Adams's article in Additional Concerns
      5

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

    5. - trents commented on Scott Adams's article in Winter 2026 Issue
      2

      Why Celiac Diagnosis Still Takes Years—and How to Change That


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,569
    • Most Online (within 30 mins)
      7,748

    CV327
    Newest Member
    CV327
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.