Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gallbladder removal complication of Celiac?

ChristianGrey

Recommended Posts

ChristianGrey Rookie
ChristianGrey
Posted

I was curious as to if - consequently, anyone may have had gallbladder disease/cholecystectomy - gallbladder removal - as a complication of the disease

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tom Contributor
tom
Posted

I haven't but I've gotta say it's one thing that's really surprised me reading here through the years.

Many more than I would've expected have had their gallbladder removed w/out the expected reduction/elimination of symptoms. Too often it's years before they found that the real issue was gluten. :(

Hopefully THAT situation is growing scarce as celiac & gluten issues have become better-known.

mommida Enthusiast
mommida
Posted

I've read medical reports on gallbladder removals relating to Celiac. I have even herad of a 12 year-old having hers removed when she was trying to get diagnosed.

My gallbladder was removed a few years ago too. (I was gluten free for about 6 years before surgery)

IrishHeart Veteran
IrishHeart
Posted

Since the majority of my health issues began with gall bladder disease and a cholecystectomy, I am going to say YES. And since practically no one in my family has a GB left (mom, sister, niece, cousins, aunts) and they are probably undiagnosed celiacs themselves, given their symptoms and various AI diseases, I am going to say yes again--to the gall bladder becoming diseased as a result of gluten intolerance or celiac.

I wish I could say it resolved my GI issues, but it did not. Then, the "symptom-treating" started-- and various other health issues and AI problems, miscarriages, blah blah blah. I was not DXed with celiac (until I was very ill) -- another 27 years later.

Had I known back then (at 25) what I know now, and if an astute doctor had checked me for celiac disease when my GB went south, perhaps things may have been a whole lot different.

here are some things I have found:

https://www.celiac.com/articles/119/1/Gall-Bladder-Disease-and-Celiac-Disease---By-Ronald-Hoggan/Page1.html

Gallstone Diseases

"Impaired gallbladder motility has been reported also in patients with celiac disease in relation to reduced secretion of enteric hormones and/or decreased gallbladder sensitivity to them. In particular, untreated celiacs showed low postprandial cholecystokinin and increased fasting somatostatin levels ."

M. Fraquelli, M. Pagliarulo, A. Colucci, S. Paggi, and D. Conte, “Gallbladder motility in obesity, diabetes mellitus and coeliac disease,” Digestive and Liver Disease, vol. 35, no. 3, pp. S12–S16, 2003.

Adalaide Mentor
Adalaide
Posted

My stupid useless gallbladder is the only reason I know I have celiac. It's a long story, but between the underhanded betrayal by my gallbladder and the backstabbing of my insurance I found myself having emergency surgery one day and and endoscopy the next and home cooking a Christmas ham and opening presents high as a kite the next... and here I am! I'm surprised I remember any of last Christmas. :lol:

I was already sick enough to be pretty close to housebound. I spent my whole life, literally all 34 years of it, suffering with problems. Many of them I though were just normal. Others I was told I would have to learn to live with. I can't imagine how much worse it would have gotten if my gallbladder hadn't decided to stop playing nice. I'm actually thankful to be rid of it, because the way it worked out it could be the symptom that saved my life.

  • 2 weeks later...
shadowicewolf Proficient
shadowicewolf
Posted

I believe mine was starting to go before hand and this just intensified it and literlly killed it rofl. So happy not to have it though.

Roda Rising Star
Roda
Posted

Having mine rechecked with ultrasound and a HIDA scan today. I have had slight issues for 2.5 years but it was still functioning at 48% which I was told was above the 35% threshold for removal. Symptoms have been very mild since then, so when I would have them I'd just deal with it. My symptoms decided to "morph" about 1.5 weeks ago which brings me to getting it rechecked again. My GI also wants me to have another EGD to check things out. He is now recommending all his celiac patients be scoped yearly. So we will see..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bubba's Mom Enthusiast
Bubba's Mom
Posted

Having mine rechecked with ultrasound and a HIDA scan today. I have had slight issues for 2.5 years but it was still functioning at 48% which I was told was above the 35% threshold for removal. Symptoms have been very mild since then, so when I would have them I'd just deal with it. My symptoms decided to "morph" about 1.5 weeks ago which brings me to getting it rechecked again. My GI also wants me to have another EGD to check things out. He is now recommending all his celiac patients be scoped yearly. So we will see..

My gallbladder was working at 30%. I was on a "wait and see plan". I got glutened and my gb symptoms have gotten much worse. So much so, that I went back to the GI that first DXed my Celiac. Since Mayo said to wait it out..she doesn't want to redo the HIDA scan. :(

I hope yours tests OK. Having a surgery is no fun.

Roda Rising Star
Roda
Posted

My gallbladder was working at 30%. I was on a "wait and see plan". I got glutened and my gb symptoms have gotten much worse. So much so, that I went back to the GI that first DXed my Celiac. Since Mayo said to wait it out..she doesn't want to redo the HIDA scan. :(

I hope yours tests OK. Having a surgery is no fun.

Thanks. Ultrasound was normal yesterday which I already figured it would be. I go today to get the HIDA scan done. I have a feeling I'll be in the same situation as last time. If so, I guess I'll manage like I have been.

Roda Rising Star
Roda
Posted

To the OP did you have your gallbladder out or are you currently having problems? I just found out today that I have chronic cholecystitis and poor gallbladder ejection fraction of only 21%. I've been very uncomfortable since my HIDA scan today. It has really went down hill from the tests 2.5 years ago. I knew it was worse since I've become more symptomatic. I guess after my vacation this coming week I'll consult with a surgeon to get it out. I'm bound and determined to have a great time while at the Outer Banks, NC if I have to live on applesauce. :P

I don't really know if celiac played a role in it's decline, but it probably didn't help any. I've been gluten free now for almost 4 years. That's not to say there haven't been bumps in the road. Back in 2010 I had an eight month spell where I was having a lot of trouble. I didn't realize I was getting gluten free oat cross contamination in the gluten free products I used. Once the light bulb went on I fixed that problem. I'm severely intolerant to the avenin protein in pure oats that the CC did a number on me. I react just as bad as if I ate gluten. So I'm sure that didn't help the issue either.

I've been seeing the humor in it though. I have other risk factors for GB disease..I'm female, fat, fertile and almost 40. Great combo with the celiac! : :o:lol:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will...
    2. Jacki Espo
      - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure.
    3. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

      Hi Tiffany. Thank you for writing your dituation and circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines. Way back when I was in my 2...
    4. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but...
    5. knitty kitty
      - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      Fascinating.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748
    jenny44
    Newest Member
    jenny44
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.