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Deficiencies - Doctors Appt.

AmandaD

By AmandaD
in Coping with Celiac Disease

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AmandaD Community Regular
AmandaD
Posted

Hi again - Just returned from a regular general practitioner appointment where we we discussing my new Celiac status. I made mention that I'm feeling quite anxious about the whole process and that it's quite a life change. I also mentioned I'd been feeling like my muscles were twitching or that I would try to relax and I feel all trembly...like I was either having anxiety or dehydrated....

He said he was sure I had a calcium/magnesium or electrolyte deficiency and that I need to be on a good supplement (I'm also still nursing a baby and he said that can make the problem worse). He said that my body is probably not absorbing nutrients correctly.

Have any of you had experience with this or give me some advice? This doc also mention he hadn't seen a "sprue" in years. I felt totally weird when he said that!!!

Any advice would be really appreciated.

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kvogt Rookie
kvogt
Posted

First, I'd find a doc who has seen a sprue twice this week.

Second, you aren't absorbing vitamins and minerals very well. You should take a daily vitamin (choose carefully) and probably additional vitamins for nursing mothers.

AmandaD Community Regular
AmandaD
Posted
  • Author

Thank you for that advice. I think I'm going to hang on tight to my gastroenterologist and only discuss Celiac with her. After that appt. and post I called my gastro office and left a message with the nurse about what my g.p. had said. The nurse said she didn't know exact amounts of supplementation and that she'd call me back.

This doctor said he hadn't seen celiac in almost 30 years. I was totally, totally stunned. And kind of pissed too, if I'm allowed to say that...

First, I'd find a doc who has seen a sprue twice this week.

Second, you aren't absorbing vitamins and minerals very well.  You should take a daily vitamin (choose carefully) and probably additional vitamins for nursing mothers.

<{POST_SNAPBACK}>

nettiebeads Apprentice
nettiebeads
Posted
This doctor said he hadn't seen celiac in almost 30 years. I was totally, totally stunned. And kind of pissed too, if I'm allowed to say that...

<{POST_SNAPBACK}>

You're allowed to say anything you want here. ( Except the s**t word which automatically gets transposed to poop) If your doc hasn't seen celiac disease in 30 years I doubt he's been looking very hard. 1 out of 133 is est. to have it now.

luvs2eat Collaborator
luvs2eat
Posted

And I'm thinking that the 1 in 333 will soon be 1 in way less than 333. It seems more cases are diagnosed every day... just look at the membership on this board! It astounds me how many new folks come every day with a brand new diagnosis.

  • 1 month later...
kelliac Rookie
kelliac
Posted
This doctor said he hadn't seen celiac in almost 30 years. I was totally, totally stunned. And kind of pissed too, if I'm allowed to say that...

<{POST_SNAPBACK}>

Oh, they've seen it, they just didn't recognize it!

Ursa Major Collaborator
Ursa Major
Posted
Oh, they've seen it, they just didn't recognize it!

<{POST_SNAPBACK}>

Yeah, like my doctor, who told me yesterday (after I told her I self-diagnosed myself with Celiac, and what an astounding difference the diet is making), that she knew I had all the symptoms, but she thought that it couldn't be Celiac, because I was gaining weight instead of losing it! And so she tested for everything under the sun, with the exception of celiac disease. :angry: And I was desperately ill all summer as a result of her ignorance.

But she knows now, our consultation turned into an information session for HER.

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ryebaby0 Enthusiast
ryebaby0
Posted

He said he was sure I had a calcium/magnesium or electrolyte deficiency and that I need to be on a good supplement (I'm also still nursing a baby and he said that can make the problem worse). He said that my body is probably not absorbing nutrients correctly.

Well, he's absolutely right. Think of your GI system as a carpet, but the damaged glutenated pieces as where the carpet has worn straight thru to the wood floor. If you spilled water, is the floor gonna absorb anything? Definitely take a multi!!

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