Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D


ShannonA

Recommended Posts

ShannonA Contributor

What is the difference between vitamin D and D3? I saw both at the store an don't know the difference. About a year ago my doctor put me on vitamin D because of low levels and now I want to start them again but I don't know the difference between the two.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

this may shed some light?

Open Original Shared Link

ShannonA Contributor

this may shed some light?

Open Original Shared Link

Thank you!
Marilyn R Community Regular

That was a good article, Irish, thanks for sharing.

OP, I like Vitamin D 3 drops. You just stick a drop in your water, juice, whatever. It's tasteless. I get mine at the healthfood store.

IrishHeart Veteran

Me, too--I take D3, 2000 IUs now (I was tanked in D upon DX and at one time was told to take 5,000 IUs until the level came up over 60) and I have used both capsules and sub-lingual drops.

Some people use the D2, but I think the D3 is preferable?

frieze Community Regular

Me, too--I take D3, 2000 IUs now (I was tanked in D upon DX and at one time was told to take 5,000 IUs until the level came up over 60) and I have used both capsules and sub-lingual drops.

Some people use the D2, but I think the D3 is preferable?

Yup, don't take that D2 ...stuff. getting sun is even better. no sun tanning, that actually sort of, defeats the concept....

  • 2 weeks later...
Kar1972 Newbie

I have low vitamin D too. Last check was at 41 and I'm taking 5,000 IU per day! Will it ever be in the normal range? Is this a celiac thing?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

I have low vitamin D too. Last check was at 41 and I'm taking 5,000 IU per day! Will it ever be in the normal range? Is this a celiac thing?

It will come up in time as your gut heals. Eat foods with Vitamin D, too and get some sunshine.

41 is within normal range, according to the lab where I have my tests done, but some suggest over 60 is optimal.

kristenloeh Community Regular

When I was diagnosed my D levels were at 17. Not sure where they are at now, but I'm on about 6,000 IU a day.

squirmingitch Veteran

My vit D was 25 with a range of 30-100 so the doc put me on Vit D3 5,000 IU per day & I got the drops too but have been unable to tolerate them at those rates. Made me get the shaky kind of indigestion & made me nauseous. I tried 1/2 the dose & still couldn't do it. I have discovered that 1/2 dose 2 or 3 times per week is the max. I can tolerate.

frieze Community Regular

My vit D was 25 with a range of 30-100 so the doc put me on Vit D3 5,000 IU per day & I got the drops too but have been unable to tolerate them at those rates. Made me get the shaky kind of indigestion & made me nauseous. I tried 1/2 the dose & still couldn't do it. I have discovered that 1/2 dose 2 or 3 times per week is the max. I can tolerate.

get out in the sun! if you are fair skinned, you may need to break it up, but 15-20 daily, with large skin areas exposed, no sun screen. NOT enough to tan, that defeats the purpose.

Kar1972 Newbie

Is sunlight from a window on your lower legs good enough? That's the kind of exposure I get.

squirmingitch Veteran

I do that twice a day.

IrishHeart Veteran

When I was diagnosed my D levels were at 17. Not sure where they are at now, but I'm on about 6,000 IU a day.

Your doc should check you after 6 months of supplementing.

And IMHO, any sunshine is a good thing.

kristenloeh Community Regular

Your doc should check you after 6 months of supplementing.

And IMHO, any sunshine is a good thing.

I LOVE the sun, but the catch is, I live in Seattle. So we only get MAYBE 2 months a year if we are lucky of sun.

IrishHeart Veteran

I LOVE the sun, but the catch is, I live in Seattle. So we only get MAYBE 2 months a year if we are lucky of sun.

Sorry, hon. :(

er, um, move to California? (just teasing)

I've been to Seattle. Had a blast!! Pike Place Market, very cool.

GottaSki Mentor

I find this subject very interesting. At diagnosis my D was at 17 - I live in sunny San Diego and rarely missed at least a 45 minute walk outside - most days I was out in the sun much more than that.

I have been above 35 for about a year, but don't think I would have got there without supplementation.

So while sunshine is very important - for vitamin D and much more - I don't think it is possible to get enough strictly from sunshine.

Edited to add: for me it was the combination of removing gluten and supplementation == for the first year gluten-free I supplemented D specifically - for the past couple years I've been fine with getting it from food + sun :)

frieze Community Regular

I find this subject very interesting. At diagnosis my D was at 17 - I live in sunny San Diego and rarely missed at least a 45 minute walk outside - most days I was out in the sun much more than that.

I have been above 35 for about a year, but don't think I would have got there without supplementation.

So while sunshine is very important - for vitamin D and much more - I don't think it is possible to get enough strictly from sunshine.

Edited to add: for me it was the combination of removing gluten and supplementation == for the first year gluten-free I supplemented D specifically - for the past couple years I've been fine with getting it from food + sun :)

it could be a combo of issues, not right time of day, not enough skin exposed, and ? too vigorous washing too soon after exposure. maybe a very low fat diet?

GottaSki Mentor

it could be a combo of issues, not right time of day, not enough skin exposed, and ? too vigorous washing too soon after exposure. maybe a very low fat diet?

Still seems strange. When I was extremely low I was out ALL times of the day with at least head, arms, part of legs exposed - only used sunscreen if I was going to be out longer than 1/2 hour. Never wash vigorously afterward...except for my face. Pre- celiac diet was not intentionally low fat - sure I was getting plenty between meat, cheese and oils/butter from cooking.

I am in the sun FAR less now - severe heat allergy has worsened so I only exercise before 8am, but am now absorbing nutrients from food -- I'm not saying that we do not get Vitamin D from sunshine, only that it is puzzling that I wasn't getting enough when exposed to quite a bit of sun each day prior to Celiac Dx.

frieze Community Regular

Still seems strange. When I was extremely low I was out ALL times of the day with at least head, arms, part of legs exposed - only used sunscreen if I was going to be out longer than 1/2 hour. Never wash vigorously afterward...except for my face. Pre- celiac diet was not intentionally low fat - sure I was getting plenty between meat, cheese and oils/butter from cooking.

I am in the sun FAR less now - severe heat allergy has worsened so I only exercise before 8am, but am now absorbing nutrients from food -- I'm not saying that we do not get Vitamin D from sunshine, only that it is puzzling that I wasn't getting enough when exposed to quite a bit of sun each day prior to Celiac Dx.

could have been a degree of fat malabsorbtion, do you/did you take a statin?

GottaSki Mentor

could have been a degree of fat malabsorbtion, do you/did you take a statin?

no meds then or now....maybe it could have been fat malabsorbtion since I was low in every other nutrient measured at diagnosis. Sure didn't seem like I was having a problem absorbing fat -- was always far too heavy for the healthful diet I ate along with getting plenty of exercise.

It does makes me curious, but am happy that although I still have serious health problems caused by decades of undiagnosed celiac - absorption no longer seems to be one of them :)

IrishHeart Veteran

So while sunshine is very important - for vitamin D and much more - I don't think it is possible to get enough strictly from sunshine.

Edited to add: for me it was the combination of removing gluten and supplementation == for the first year gluten-free I supplemented D specifically - for the past couple years I've been fine with getting it from food + sun :)

Yes, I do not think any of us suggested sunshine alone would boost those D levels up where she needs them, rather we suggested it would help. (makes me want to move to Florida. The winters are long up here in the Northeast)

Medline:

Ten to 15 minutes of sunshine three times weekly is enough to produce the body's requirement of vitamin D. The sun needs to shine on the skin of your face, arms, back, or legs (without sunscreen). Because exposure to sunlight is a risk for skin cancer, you should use sunscreen after a few minutes in the sun.

and from a recent U.S News Health report (citing a study from the Archives of Internal Medicine):

"In the winter, it's impossible to produce vitamin D from the sun if you live north of Atlanta because the sun never gets high enough in the sky for its ultraviolet B rays to penetrate the atmosphere. But summer is a great time to stock up on the nutrient. When the sun's UV-B rays hit the skin, a reaction takes place that enables skin cells to manufacture vitamin D. If you're fair skinned, experts say going outside for 10 minutes in the midday sun—in shorts and a tank top with no sunscreen—will give you enough radiation to produce about 10,000 international units of the vitamin. Dark-skinned individuals and the elderly also produce less vitamin D, and many folks don't get enough of the nutrient from dietary sources like fatty fish and fortified milk.

The government's dietary recommendations are 200 IUs a day up to age 50, 400 IUs to age 70, and 600 IUs over 70. But many experts believe that these recommendations are far too low to maintain healthful vitamin D levels. They advocate for supplementation in the winter of about 2,000 IUs per day and a dose of daily sunshine in the summer."

heather806 Rookie

I've crawled my way from 13 to 44 in the past year by taking 2,000 IU's of D3 each day...but I wasn't gluten free until my diagnosis in June, so I am hoping my absorption improves. My B-12 is great, 875! (am supplementing with B-12 but bad about taking it every day)

IrishHeart Veteran

I've crawled my way from 13 to 44 in the past year by taking 2,000 IU's of D3 each day...but I wasn't gluten free until my diagnosis in June, so I am hoping my absorption improves. My B-12 is great, 875! (am supplementing with B-12 but bad about taking it every day)

Sounds like you are making good progress and yes, absorption will improve and those vitamin levels should normalize more rapidly.

Hang in there!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    3. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    4. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.