Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This From Celiac?


dd6444

Recommended Posts

dd6444 Rookie

Ok.... so last year, I was really sick. I was missing a lot of school, and no one knew what was wrong, but a little over 2 months ago I was diagnosed with celiac disease. I've been eating gluten free since then. Overall I've been feeling much better, but still not perfect (I know it could take over 6 months or up to a year to completely heal). Last year toward the end of the school year I was only going to school 1 to 2 days of the week because of how sick I was (I was still able to make up all my work and pull a 3.5 gpa though yay). This year, I've been going to school almost every day.

Even though I've been doing better, I'm still having sleeping problems, and I still sometimes have these random days where I'm so tired that I can barely move and have no energy. I'm like almost dead. This morning, I couldn't get up and I slept until about 3:30 in the afternoon. It was the second day of school that I missed in the last month. I'm almost positive that I haven't been glutened, but sometimes this happens to me randomally. Other than that, I've bene hanging in there. Has this happened to anyone and is this from celiac disease? Thanks in advance :)

edit: I should also mention that I was glutened like two weeks ago (i was really hungry and ate bacon cheese fries at nathans which i knew was stupid) but I thought it was out of my system. Could I have gotten randomally sick today from that?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Claire Collaborator
edit:  I should also mention that I was glutened like two weeks ago (i was really hungry and ate bacon cheese fries at nathans which i knew was stupid) but I thought it was out of my system.  Could I have gotten randomally sick today from that?

<{POST_SNAPBACK}>

I was told recently by a neurologist that if you put a gram of gluten and a drop of blood (from a celiac disease person) together in a petri dish - an interactive attack will begin almost immediately and will be sustained for days - even weeks.

This is not to be mess with. Claire

mytummyhurts Contributor

If you have been having the problem with fatigue even before you were glutened it could be because you are still deficient in many nutrients. Has your doctor run blood tests for this? Celiacs are often times deficient in vitamin B12, which can cause fatigue among other problems and is very important. Once you are eating gluten free, even if your are taking a pill vitamin it is most likely not being absorbed as the intestines remain damaged for a while. Shots or sublingual tablets are better for absorbtion.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.