Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Go To An Allergist Next?


Guest DanceswithWolves

Recommended Posts

Guest DanceswithWolves

Well, as you all know, I wasn't too thrilled with the Gastro doc I went to.

He brushed me off with a "IBS" excuse and I'm suppossed to eat whatever I want and gain weight until he sees me again in October.

I have been eating bread again and drinking milk. I tried eating some Tastycakes which I am sure are loaded with Gluten, and I was belching right away on even a little bite. I tossed them in the garbage. Over the weekend, I drank Guinness (which I absoloutely LOVE) played golf and ate a burger and fries at Bennigan's afterwards. It felt great to just be out and enjoying myself with a friend again.

My weight still changes by the day. Either I go up two pounds or I drop two pounds.

I was 121 now I am back down to 118.

My question is this: Should I just go to an allergist next and get one of those scratch tests done or continue to eat "whatever I want" and get re-tested for celiac disease?

I have an appointment with my regular doctor next week, so I am going to bring up that question with them.

I know this time of year is very bad on my allergies, so I am unsure if it is that or the gluten causing my reactions. I get REAL congested at night and in the morning when I wake up. Mucus in my throat, eyes watering, the works. This is every night around a certain time, and when I wake up. The other night I was driving home with the window open and as soon as I turnd the corner for my housing development, I started to get congested and my eyes teared up. We have a ton of different trees and bushes in my area. I read that PA is very bad for people who suffer with allergies.

I've had allergies all my life, basically. I realise that allergies would not cause weight loss, but if it was all just anxiety and IBS that caused my weight loss, maybe I just have many allergy sensitivities???

Any members on this board, really sensitive to pollen and other nasties in the air?

Mold?

Dust mites?

I read that's a big cause too.

Any members live in Arizona? What's it like out there for allergies?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kabowman Explorer

I have so many allergies that it is easier to list what I am not allergic to. I have been doing shots now for 3 1/2 years with, finally, great success. I keep taking my meds most of the year, only use the nasal sprays (plural) in the spring, and the eye drops about 8 months of the year. Most people see enourmous improvement within one year.

I did my allergy testing in the late winter because you have to be off ALL antihistamines for 7 full days and they will provide you with a list of all meds to avoid. Now, when I have to go back in for additional testing, they put me on steroids for 7 days so I can survive the allergies. I imagine most docs could do that too...

Now, I tested negative, both times, for a wheat allergy or any other food allergy. My dx is formally, by GI, PCP, and allergiest, food intolerance. I have been dx with IBS for years, I have GERD, etc but no formal dx for celiac disease.

I went gluten-free, hard core, no cheating, to see if I felt better; I did. After all the gluten was elimited from my diet and I felt better, I was able to identify all the other foods that I cannot tolerate. I now, rarely, get sick. I have been able to finally gain weight and actually, wouldn't mind losing some again since I now know what I can and cannot eat.

skbird Contributor

I tend to have more airborne mold allergies than pollen so my allergies are usually worse in fall, and I sometimes have problems in libraries and used book stores. I am 95% sure I am allergic to a mold called aspergillus which on it's own can do bad things but is used "safely" in foods like fermented soy/tamari, miso, tofu, seitan, and is used to make the food preservative citric acid. It is also in Lactaid and Beano. It is very common on leaves in the fall which would explain why I have a hard time in the fall.

In Arizona, I wouldn't know at all. I am in California and not any kind of desert climate (though it gets very hot here in the summer, 110 for a week or two straight this year) and not much rain.

I have been given the impression that allergists aren't very helpful in this area. I know you are having an unsatisfactory experience with your gastro but maybe continuing with your food challenge and going back for re-test is the best thing at this time. I have tried calling allegists and gastros both before to ask questions about my reactions and been told to see the other, not them. Sigh.

I envy you for the Guiness! We have one in my fridge that neither my husband nor I are touching at this point, me for obvious reasons, and him for alcohol reasons. I have seen him drink a couple recently and seriously had to fight the urge to just take a taste. I don't know what it is about dark beer...

Take care

Steph

frenchiemama Collaborator

I'm allergic to dogs, tree pollen and two kinds of dustmites (who knew there was more than one kind?)

I get sinus problems, weepy eyes and a sore, scratchy throat from the tree pollen and the dustmites. I get hives from contact with dogs.

frenchiemama Collaborator

Oh yeah, I'm allergic to latex and nickel too. I also can't use any scented detergents, fabric softener or lotions.

nogluten- Newbie

I would insist on being tested for Celiac and I would go to an allergist. I didn't test as allergic to wheat on the scratch test, but I definately have Celiac. Your gastro should give you an endoscopy and the gene testing, imo. If he won't, I'd switch doctors. If it was his health, I'm sure he wouldn't be taking his time about it. :rolleyes:

Remember too that dairy increases mucus production. I know, it sucks.

skoki-mom Explorer

OMG, I'm so lame, I just am dying with jealousy that you ate a BURGER!!!!!!

Seriously though, I totally sympathize with the allergies. Basically one side or the other of my nose is totally blocked with swelling every day of my life. I'm a total mouth breather and people are always asking me if I have a cold. I'm worse when it rains, probably due to spores or something. I also have a terrible time at work and my sinuses are often completely swollen shut there, I have no idea what nasty allergens are going on there, and it is a NICU which is pretty scary!

Have you ever had skin testing done?? I did, it's not fun, but it gives you some useful information. Unfortunately for me, I did 5 years of shots and when I was done I tested more sensitive than when I began, so that sort of sucked. I just kind of live with it and treat the symptoms. I'm sort of hoping that now I know I have celiac disease and am eating gluten-free they might get a little better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

i have had horrible allergies since i was a kid--mold/mildew, dust, cats and some outdoor trees/pollen. i was constantly on antibiotics and nearly had to have the dreaded sinus surgery. shots were a huge help to me. i got them for quite a few years and it made all the difference in the world. and is better therapy than constant meds. my brother and his friend rave about flonase--that is literally gets rid of their allergies, so there's something else to look into if you go that route.

ravenwoodglass Mentor
Well, as you all know, I wasn't too thrilled with the Gastro doc I went to.

He brushed me off with a "IBS" excuse and I'm suppossed to eat whatever I want and gain weight until he sees me again in October.

I have been eating bread again and drinking milk. I tried eating some Tastycakes which I am sure are loaded with Gluten, and I was belching right away on even a little bite. I tossed them in the garbage. Over the weekend, I drank Guinness (which I absoloutely LOVE) played golf and ate a burger and fries at Bennigan's afterwards. It felt great to just be out and enjoying myself with a friend again.

My weight still changes by the day. Either I go up two pounds or I drop two pounds.

I was 121 now I am back down to 118.

My question is this: Should I just go to an allergist next and get one of those scratch tests done or continue to eat "whatever I want" and get re-tested for celiac disease?

I have an appointment with my regular doctor next week, so I am going to bring

up that question with them.

I know this time of year is very bad on my allergies, so I am unsure if it is that or the gluten causing my reactions. I get REAL congested at night and in the morning when I wake up. Mucus in  my throat, eyes watering, the works. This is every night around a certain time, and when I wake up. The other night I was driving home with the window open and as soon as I turnd the corner for my housing development, I started to get congested and my eyes teared up. We have a ton of different trees and bushes in my area. I read that PA is very bad for people who suffer with allergies.

I've had allergies all my life, basically. I realise that allergies would not cause weight loss, but if it was all just anxiety and IBS that caused my weight loss, maybe I just have many allergy sensitivities???

Any members on this board, really sensitive to pollen and other nasties in the air?

Mold?

Dust mites?

I read that's a big cause too.

Any members live in Arizona? What's it like out there for allergies?

<{POST_SNAPBACK}>

My allergies definately wer intensified by Gluten. The only thing I did not test positive for was beech trees! I would definately see and allergist and make sure to ask him to guide you through an elimination diet. Food intolerances do NOT show up on skin testing, they are not a histimine reaction. The elimination diet can be a bit of a pain but when you are through with it you will know for sure what your body is sensitive to. Good luck, and wish I could have had a sip of that Guiness but will have to pop open a Woodchuck instead.

Carriefaith Enthusiast
My question is this: Should I just go to an allergist next and get one of those scratch tests done or continue to eat "whatever I want" and get re-tested for celiac disease?

I think that it is a good idea to get allergy testing done, just to amke sure that you don't have any onther major allergies that may be causing your symptoms. But if you want to get re-tested for celiac disease, it is a good idea to stay on gluten for a good solid 3 months, and then get tested again.

Any members on this board, really sensitive to pollen and other nasties in the air?

Mold?

Dust mites?

I read that's a big cause too.

I had the skin prick test done and I was allergic to every pollen that they tested me for :rolleyes: and I also found out that I was allergic to dogs, cats, wheat, yeast, some types of mold, dust, and dust mites.

drewsant Rookie
My allergies definately wer intensified by Gluten. The only thing I did not test positive for was beech trees! I would definately see and allergist and make sure to ask him to guide you through an elimination diet. Food intolerances do NOT show up on skin testing, they are not a histimine reaction. The elimination diet can be a bit of a pain but when you are through with it you will know for sure what your body is sensitive to. Good luck, and wish I could have had a sip of that Guiness but will have to pop open a Woodchuck instead.

I'm going to an allergist next Wednesday. When I went to the doctor originally about the Celiac, he suggested I go to an allergist to see if I have any other food allergies. And according to him, he had been having a lot of stomach problems, so he went to this same allergist, and he did the skin prick tests, and my doc is allergic to soy. (Said his arm swelled up "like a toad" were his words!) So I'm assuming that food allergies will show up on skin prick tests, just not the intolerances?

Someone mentioned that having this test done was not fun. I've never had this done, so my question is, how bad is it, and what do they do?

Guest DanceswithWolves

Someone mentioned that having this test done was not fun. I've never had this done, so my question is, how bad is it, and what do they do?

<{POST_SNAPBACK}>

Wandering Hermit Contributor
Someone mentioned that having this test done was not fun. I've never had this done, so my question is, how bad is it, and what do they do?

<{POST_SNAPBACK}>

It is not that bad at all. I would rather have 100 of these tests than have that horrible endoscope rammed down my throat.

skoki-mom Explorer
Someone mentioned that having this test done was not fun. I've never had this done, so my question is, how bad is it, and what do they do?

<{POST_SNAPBACK}>

It's been years since I had it done, but I personally didn't enjoy it much. They prick your skin then put the allergen on it. That is not the painful part, just a tiny prick. But if you react, like I did, the itching is horrible. and of course you can't touch it because you might transmit the allergens between poke sites or even worse, get it in your mouth or eyes or something. However, I do remember the response being fairly short lived and my arms were red but not itchy the next day. Not very helpful, sorry. I found the endoscope to be nothing really, I didn't feel a thing and I don't remember anything.

Guest DanceswithWolves

I had this crazy idea of asking my parents to be tested for celiac disease, since mine came back negative. Has anyone done this with their parents?

My mother thought it would be a good idea...not sure if my dad would take the time to do it, but it may explain some stomach issues he's had all his life.

skbird Contributor

I've been trying to get my brother tested because we are very similar and have had some of the same anxiety and sugar issues. But he is in the middle of getting married and I don't want to freak him out further or his fiancée (who is being wonderful - she hasn't picked a restaurant yet in SF for their engagement dinner for 30 in part because she wants to choose a place I can eat! WOW! and yes, I told her not to worry about that, I'll be fine... just give me the name in advance and I'll call them myself). But he still eats gluten so it would be an interesting test result.

Stephanie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.