Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Have I Gone Gluten Crazy?

deals88

By deals88
in Coping with Celiac Disease

Recommended Posts

deals88 Rookie
deals88
Posted

Hey, so on completely gluten free diet and really trying hard to avoid CC. I have seen my girlfriend twice this week and both times i feel gluten-ed after a short time with her. Is her makeup or any of her products really affecting me? I got the name of all her products and have been searching them havnt found any answers though im sure her mascara and maybe powder has gluten but would this affect me?? thx

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kittty Contributor
kittty
Posted

Hey, so on completely gluten free diet and really trying hard to avoid CC. I have seen my girlfriend twice this week and both times i feel gluten-ed after a short time with her. Is her makeup or any of her products really affecting me? I got the name of all her products and have been searching them havnt found any answers though im sure her mascara and maybe powder has gluten but would this affect me?? thx

Could it be that she's kissing you right after eating gluten? That could do it.

shadowicewolf Proficient
shadowicewolf
Posted

She needs to brush her teeth and whatnot before kissing you.

deals88 Rookie
deals88
Posted
  • Author

I think this may have been been the case last week when she had a packet of quavers think i spelt that wrong, anyway crisp that had gluten in them. So what about the make up? Ive basically made her check everything she wears and told her to change it if it has gluten. Do we not think it on my face would cause a reaction? Thx for your replys

deals88 Rookie
deals88
Posted
  • Author

Also had her eating gluten free bread today, dont think she signed up for this lol

kareng Grand Master
kareng
Posted

Any makeup you might ingest. Lipstick might be a concern. You would get it on your mouth. Mascara shouldn't make a difference unless you chew on her eyelashes. :o

deals88 Rookie
deals88
Posted
  • Author

Any makeup you might ingest. Lipstick might be a concern. You would get it on your mouth. Mascara shouldn't make a difference unless you chew on her eyelashes. :o

Yeah i tried to find the ingredients online for her lip gloss, didn't happen. Haha i dont intend to do that, although in saying that when your involved in partner activities surly its possibly you do get there eye make up and powder etc in your mouth you not think.

Any1 else exp reactions from their partner?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
IrishHeart Veteran
IrishHeart
Posted

Yeah i tried to find the ingredients online for her lip gloss, didn't happen. Haha i dont intend to do that, although in saying that when your involved in partner activities surly its possibly you do get there eye make up and powder etc in your mouth you not think.

Any1 else exp reactions from their partner?

Well, I expect "reactions" from him, but they do not involve gluten. ;)

The minuscule amount of wheat that may possibly (read as : remotely) be in a fleck of mascara or eye makeup would not concern me or my hubs at all.

Lipstick is the biggest concern for gluten CC in makeup.

And the people who live with WEs and swap spit regularly say BRUSH YOUR TEETH before smooching.

  • 3 months later...
medaevalmom Newbie
medaevalmom
Posted

I am sure this is what is happening.

I (briefly) dated a guy in high school who had an anaphalactic allergy to dairy. Literally, if we kissed soon after I ate dairy he was in BIG trouble.

It sounds to me like you are very careful on your own, but if you are THAT sensitive you must be coming in contact with it somewhere.

Anything put on our skin hits our bloodstream in 30 seconds.

It sounds like it is time for a real heart to heart with her to explain the seriousness of your condition and teach her how to be more cautious for your protection.

kareng Grand Master
kareng
Posted

Anything put on our skin hits our bloodstream in 30 seconds.

This is not true. If this were true everything we touched would go into our bodies. There are a very few things that are small enough to go through skin. An example is a nicotine patch which is specially made to be small enought to go through. But not the whole patch, just some cells on the patch.

IrishHeart Veteran
IrishHeart
Posted

Anything put on our skin hits our bloodstream in 30 seconds.

Not sure where you read that information, but I do not think that is quite true, hon.

If this were the case, we'd be soaking up any number of high levels of chemicals, etc.when taking showers, swimming in pools, splashing paint or gasoline on ourselves accidentally or swimming in the ocean.

And I could probably rub a loaf of Wonderbread on my legs and nothing would happen to me as I do not have a wheat allergy in addition to celiac and it would not somehow get into my blood..

Gemini Experienced
Gemini
Posted

And I could probably rub a loaf of Wonderbread on my legs and nothing would happen to me as I do not have a wheat allergy in addition to celiac and it would not somehow get into my blood..

I can just see IrishHeart with her loaf of Wonderbread too......oh, the images this brings to mind! :P

IrishHeart Veteran
IrishHeart
Posted

I can just see IrishHeart with her loaf of Wonderbread too......oh, the images this brings to mind! :P

yer just a silly pants! (now this just sounds like bad" gluten porn" ! :lol: )

GFinDC Veteran
GFinDC
Posted

I can just see IrishHeart with her loaf of Wonderbread too......oh, the images this brings to mind! :P

I hear she has her hub's rub his legs with Wonderbread... kinky! :D

Gotta agree with the things not soaking into skin. Some things may do that, but for the most part we don't have a big problem there with everyday items.

Deals88, is it possible you are reacting to a perfume? Some people are sensitive to odors. like perfumes.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to GlorietaKaro's topic in Super Sensitive People
      2

      Am I nuts?

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference...
    2. lalan45
      - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things ...
    3. Russ H
      - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled...
    4. Scott Adams
      - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation...
    5. Scott Adams
      - Scott Adams replied to GlorietaKaro's topic in Super Sensitive People
      2

      Am I nuts?

      Your experience is absolutely valid, and you are not "nuts" or a "complete weirdo." What you are describing aligns with severe neurological manifestations of gluten sensitivity, which is a recognized, though less common, presentation. Conditions like gluten ataxia and peripheral neuropathy are documented in medical literature, where gluten triggers an autoimmune...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748
    lalan45
    Newest Member
    lalan45
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Am I nuts?

      By trents · Posted

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      My journey is it gluten or fiber?

      By lalan45 · Posted

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      Anti-endomysial Antibody (EMA) Testing

      By Russ H · Posted

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      Just diagnosed today

      By Scott Adams · Posted

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Am I nuts?

      By Scott Adams · Posted

      Your experience is absolutely valid, and you are not "nuts" or a "complete weirdo." What you are describing aligns with severe neurological manifestations of gluten sensitivity, which is a recognized, though less common, presentation. Conditions like gluten ataxia and peripheral neuropathy are documented in medical literature, where gluten triggers an autoimmune response that attacks the nervous system, leading to symptoms precisely like yours—loss of coordination, muscle weakness, fasciculations, and even numbness. The reaction you had from inhaling flour is a powerful testament to your extreme sensitivity. While celiac disease is commonly tested, non-celiac gluten sensitivity with neurological involvement is harder to diagnose, especially since many standard tests require ongoing gluten consumption, which you rightly fear could be dangerous. Seeking out a neurologist or gastroenterologist familiar with gluten-related disorders, or consulting a specialist at a major celiac research center, could provide more validation and possibly explore diagnostic options like specific antibody tests (e.g., anti-gliadin or transglutaminase 6 antibodies) that don't always require a gluten challenge. You are not alone; many individuals with severe reactivity navigate a world of invisible illness where their strict avoidance is a medical necessity, not a choice. Trust your body's signals—it has given you the most important diagnosis already.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.