Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Setting Up 504 For Highschooler- What Am I Leaving Out?


MitziG

Recommended Posts

MitziG Enthusiast

My 13 yo dd is getting a 504 plan due to excessive absences that would otherwise give her a failing grade. (Over 6 is automatic F) she already has missed 5. She is a straight A student. She is homeschooled but is dual enrolled in 9th grade at the high school. Was hoping she could manage half days but it isn't going so hot.

So, I intend to have them allow for absences obviously. Unlimited restroom use. (They only get 6 passes for whole year!)

Time to make up homework missed. Tutoring of missed topics if/when it becomes necessary.

That's all I can think of. She is ale to know what is safe to touch obviously, doesn't eat lunch at school and is extremely cautious about wiping down her desk every time she sits at it. She is really sensitive to cc so she takes no chances

Is there anything you think I am missing?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

IS she allowed to keep a snack and a waterbottle with her?

What about tummy meds?

The ability to lie down in the nurses office if needed?

MitziG Enthusiast

Good ideas!

T.H. Community Regular

What ingredients she needs to avoid should be included. And it should probably be mentioned that she needs to avoid these as something she consumes and in airborne situations. Being able to get alternatives for assignments that might involve these might be something you want to include. There can be some art projects that include flour which could be unsafe for her, paper mache, for example. I believe some tempera paints may be an issue, too. I recall one such thing in an old history class of mine where students were assigned to make certain foods from ancient Rome for a classroom project, as another example.

The restroom use - you have it listed as unlimited. Is that for # of times, or does it also include no limits on how quickly she can access it? As I recall, some parents had to include the ability to leave class quickly and without requiring teacher permission for getting to the bathroom. Some celiac kids were made to wait to leave while the teacher finished talking with other students, for example, and the poor things simply couldn't wait that long, you know?

Some classes may have parties, snacks, or other times where a food is introduced into the classroom. Is she okay with gluten around her in that type of environment? If not, you may need to include something about where she can go, or information about bringing her own snacks, where she can store food for this type of thing.

Probably another one is that she should not be given medication or food by anyone but you or your husband, or someone you designate. I could possibly see something small, like a tylenol, being given if she was at the nurse's for a headache, say(maybe? I don't know the protocol for this at all schools). If it were a generic version, something with gluten for example, that could be an issue.

Probably you want something in there about what to do if she reacts at school. Who to contact, if you want to be contacted, or permission to leave school at your discretion if her reactions are sometimes severe. I have met a couple parents who were not called when their child reacted, because it wasn't considered a big enough issue to contact the parents about. The school had the 'it's just a little tummy pain' attitude, and the more frequently it happened, the more they seemed to dismiss it. Like they fell into a pattern of thinking of it as the child trying to avoid school. :-(

shadowicewolf Proficient

All the schools i've been through won't give out pain meds without consent from a parent first.

What about art supplies (if she takes art), and home ec. (backing/cooking)?

Juliebove Rising Star

I would make sure to mention the touching of wheat. Last year in my daughter's science class they were required to use pasta wagon wheels. AFAIK those don't come in gluten-free. They were making a car out of pasta. This year the project involved eating Jolly Ranchers and she can't have sugar on her diet. You'd think the eating and touching of food would go away when they get older, but it does not.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,964
    • Most Online (within 30 mins)
      7,748

    Cbear
    Newest Member
    Cbear
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.