Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Found Something For Inflammation

AVR1962

By AVR1962
in Coping with Celiac Disease

Recommended Posts

Adalaide Mentor
Adalaide
Posted

I totally LOOKED at my teapot tonight! I almost even put water on to boil. :lol: Maybe later, when I'm not trying to cook 600 things.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 137
  • Created
  • Last Reply
IrishHeart Veteran
IrishHeart
Posted

I totally LOOKED at my teapot tonight! I almost even put water on to boil. :lol: Maybe later, when I'm not trying to cook 600 things.

600? babes, how many burners does your stove have?? :lol: take care of you right now. xx

Adalaide Mentor
Adalaide
Posted

Okay okay, I was cooking 3 things. Taters, green beans and a burger. But it felt like a 600.

JNBunnie1 Community Regular
JNBunnie1
Posted

Started my nettle tea today! Will see what sorts of things happen.

Dejibo Newbie
Dejibo
Posted

I will have to add this to my cabinet. Thanks for the tip.

AVR1962 Collaborator
AVR1962
Posted
  • Author

Tomorrow will be two weeks of drinking a cup per day, some days two. Positive things that I cannot prove are connected to the tea, but I am hopeful.

Accidental glutening symptoms were less severe than in the past. The gluten was from almonds packaged on the same lines as gluten and was obvious within half hour of ingestion. My symptoms are usually severe for five days. This time they were slightly less severe and lasted for 3 or 4.

I have had far more "vertical" time over the past two weeks. I was feeling quite ill one day and skipped the tea - the following day my joint/muscle pain was much worse.

Again, nothing conclusive - but everything promising. Off to drink my morning tea biggrin.gif

AWESOME!!!!!

AVR1962 Collaborator
AVR1962
Posted
  • Author

No supplements, teas, or herbs (or making sacrifices to the gods) seem to help me.

I have decided to just do it full throttle --after doing is "sort of", I went full paleo 4 days ago.

No grains, dairy, legumes, sugar , soy (those last three were easy--I don't eat soy at all, sugar whips me up like a 3 year old

on Christmas Eve and causes insomnia and except for chili and soups, beans are not a big part of my diet. Hate peas. Peanuts are not a big deal to me either). Cheese, rice, white potatoes--these are tough to sacrifice. sigh.

But anyone who has gone full paleo --AVR included--has reported a reduction in inflammation, so I have to do it. The pain is maddening.

I'll keep you posted. (..........but cavemen drank gin, right? :unsure: )

Yes, grains and sugar are culprits for my inflammation and so staying away from them has done wonders for me. I do however eat aged cheese and white potatoes but very limited on the potatoes. The potatoes don't seem to give me issues.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Yes, grains and sugar are culprits for my inflammation and so staying away from them has done wonders for me. I do however eat aged cheese and white potatoes but very limited on the potatoes. The potatoes don't seem to give me issues.

This is very encouraging, A--thanks. Actually, anyone I know who has gone paleo says they feel great for doing so.

I'll stick with it--- and let you know. I appreciate you telling us how well you are doing. I remember when you first came on and

at the time, we both still felt so poorly. We have made great strides!

Healing happens. :)

Edited to add:

I have to correct myself. I am not "paleo", I am PRIMAL.

I have done more research and apparently, there are a few distinctions.

Primal it is.

AVR1962 Collaborator
AVR1962
Posted
  • Author

IrishHeart, you are so correct about the pain I was in, it was terrible! I feel for all of the newbies with the same issues. What I can say is 'don't give up, don't stop trying, continue to find what works for you body.' I think people thought I had lost my mind, a real freak but I had to do what made me feel better. I have learned an awful lot in the last 2 years. Feel better now than I have in many years. My husband even mentioned he sees a huge difference in me.

Wanted to share this link also. I have been doing yoga and have finally got rid of the nerve pain (pins and needles) in my feet due to 2 bulging discs in my back but I was also having a different type of nerve pain in one of my feet...podiatrist said the nerves were inflamed....he tried various treatments including a cortizone shot to the foot which lasted about 6 months and then the pain came back. I am also finally noticing a difference in this pain and I don't think it is from the yoga, I could be wrong. I think it is from the nettle tea. Open Original Shared Link

IrishHeart Veteran
IrishHeart
Posted

IrishHeart, you are so correct about the pain I was in, it was terrible! I feel for all of the newbies with the same issues. What I can say is 'don't give up, don't stop trying, continue to find what works for you body.' I think people thought I had lost my mind, a real freak but I had to do what made me feel better. I have learned an awful lot in the last 2 years. Feel better now than I have in many years.

I say the same: never give up. Stay the course. I am slowly coming back from the walking dead and I have learned an awful lot in the last 2 years, too. :)

I am still drinking the nettle tea. Maybe it takes longer for me to see results. I do some yoga as well -- and like you, I feel better--- and I will continue to try anything to reduce inflammation and get out of this pain. Thanks for all the encouraging words. I am thrilled for you!!

kareng Grand Master
kareng
Posted

I stopped the tea. I was having stomach issues. I don't think the tea was the issue, butn I stopped it. My joints are hurting today, but I did a lot of UP and down these bleachers (first step at 2 foot off the ground) and no back rest, etc. Might try to find the tart cherry stuff Patti mentioned.

IrishHeart Veteran
IrishHeart
Posted

I stopped the tea. I was having stomach issues. I don't think the tea was the issue, butn I stopped it. My joints are hurting today, but I did a lot of UP and down these bleachers (first step at 2 foot off the ground) and no back rest, etc. Might try to find the tart cherry stuff Patti mentioned.

Man, bleacher seats are the worst!

I got the Knudsen brand Tart Cherry, K -- I found it in the grocery store in the "natural" aisle.

I throw it in my smoothie or as Patti suggested, it's good in some seltzer with lime. I'm sore from stacking wood, so I hear ya on the "squawking joints". Damn you, inflammation!! (picture me with my fist raised dramatically to the sky....)

GottaSki Mentor
GottaSki
Posted

I'm holding solid at two cups per day - last week went 1.5 days without and ended up with very stiff, achy and sore for a few days...can't prove it was lack of tea...but I am much improved since I've been back on two cups per day. Tuesday will be four weeks on tea and 5 or 6 with no other supplements. Hard to know it's the tea as it may just be the length of time since my diet was tightened up - still promising.

Teen son with sinus and gerd issues that were improved gluten-free, but have never cleared - he's been permanently stuffy for years...is claiming very, very minor improvement at one cup per day and wants to continue for now. I do hear less morning hacking cough from him :)

Adult daughter with very serious AI symptoms from five AIs will be joining our experiment this week.

JNBunnie1 Community Regular
JNBunnie1
Posted

I've been brewing the tea in the morning, and then a few hours reusing the teabag.

Does this have any value or should I be getting a new tea bag each time?

Adalaide Mentor
Adalaide
Posted

I don't use teabags, I just buy dried nettle. Unless it isn't available as an herb I don't commonly buy tea bags, although I do keep some around the house of my favorite bedtime tea out of sheer laziness. Anyway, in both cases, with bags and herbs I always use them twice. I just leave it in a little longer the second time around. Omg, if I ever threw out a teabag or herbs after one steep and my grammy found out? She'd disown me!

GottaSki Mentor
GottaSki
Posted

I use tea bags...have tried making a second cup with them and it was pretty light -- I do let mine steep for a long time with the initial use, so not much left for the second round. My son's lets his steep for only a couple minutes....his may be able to make it for a second round.

JNBunnie1 Community Regular
JNBunnie1
Posted

i just leave the tea bag in the cup until it's cool enough to drink, then I drink it, and brew another. It

definitely gets just as dark the second time around for me. And it tastes the same.

GottaSki Mentor
GottaSki
Posted

If it is just as dark...I'd say you are good to go :)

JNBunnie1 Community Regular
JNBunnie1
Posted

I've been mixing the nettle tea with chamomile, as I've needed the relaxing effects

as of late, and there's only so many cups of tea I need to be drinking in a day. Is

that ok to do? So many questions...!

GottaSki Mentor
GottaSki
Posted

Chemistry according to G :blink: :blink: gle says it goes great together and the combo is suggested as a remedy for hay fever :D

JNBunnie1 Community Regular
JNBunnie1
Posted

LOL, thanks Leeser!

IrishHeart Veteran
IrishHeart
Posted

Chemistry according to G :blink: :blink: gle says it goes great together and the combo is suggested as a remedy for hay fever :D

yes, but will it cure my addiction to Ba--CON!?

(see what I did there? that's a cross-over thread right there! ta da. Nailed it.)

I am drinking my nettle tea right now because you all are saying it helped. I will keep at it..

IH waves at Bunz!! let's sip our tea together.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

IH, are you sure you are not back on the tonic today?

A friend got me some nettle and peppermint so I'll give that a spin I think :)

JNBunnie1 Community Regular
JNBunnie1
Posted

She's been drinkin somethin'..... :ph34r:

IrishHeart Veteran
IrishHeart
Posted

IH, are you sure you are not back on the tonic today?

A friend got me some nettle and peppermint so I'll give that a spin I think :)

what's tonic? tonic water? blech....nope.

She's been drinkin somethin'..... :ph34r:

I told you...tea. Just tea.

Could I multi - quote otherwise? ;) You all know I am mutli-quote challenged.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    2. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    3. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
    4. knitty kitty
      - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten! Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten. I can get glutened from the bakery section at the grocery store. The nose and mouth drain into the digestive system and can trigger systemic reactions. I find the histamine release...
    5. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Guinness, can you drink it?

      This article may be helpful:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748
    IRENEG6
    Newest Member
    IRENEG6
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.