Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Found Something For Inflammation

AVR1962

By AVR1962
in Coping with Celiac Disease

Recommended Posts

Adalaide Mentor
Adalaide
Posted

I totally LOOKED at my teapot tonight! I almost even put water on to boil. :lol: Maybe later, when I'm not trying to cook 600 things.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 137
  • Created
  • Last Reply
IrishHeart Veteran
IrishHeart
Posted

I totally LOOKED at my teapot tonight! I almost even put water on to boil. :lol: Maybe later, when I'm not trying to cook 600 things.

600? babes, how many burners does your stove have?? :lol: take care of you right now. xx

Adalaide Mentor
Adalaide
Posted

Okay okay, I was cooking 3 things. Taters, green beans and a burger. But it felt like a 600.

JNBunnie1 Community Regular
JNBunnie1
Posted

Started my nettle tea today! Will see what sorts of things happen.

Dejibo Newbie
Dejibo
Posted

I will have to add this to my cabinet. Thanks for the tip.

AVR1962 Collaborator
AVR1962
Posted
  • Author

Tomorrow will be two weeks of drinking a cup per day, some days two. Positive things that I cannot prove are connected to the tea, but I am hopeful.

Accidental glutening symptoms were less severe than in the past. The gluten was from almonds packaged on the same lines as gluten and was obvious within half hour of ingestion. My symptoms are usually severe for five days. This time they were slightly less severe and lasted for 3 or 4.

I have had far more "vertical" time over the past two weeks. I was feeling quite ill one day and skipped the tea - the following day my joint/muscle pain was much worse.

Again, nothing conclusive - but everything promising. Off to drink my morning tea biggrin.gif

AWESOME!!!!!

AVR1962 Collaborator
AVR1962
Posted
  • Author

No supplements, teas, or herbs (or making sacrifices to the gods) seem to help me.

I have decided to just do it full throttle --after doing is "sort of", I went full paleo 4 days ago.

No grains, dairy, legumes, sugar , soy (those last three were easy--I don't eat soy at all, sugar whips me up like a 3 year old

on Christmas Eve and causes insomnia and except for chili and soups, beans are not a big part of my diet. Hate peas. Peanuts are not a big deal to me either). Cheese, rice, white potatoes--these are tough to sacrifice. sigh.

But anyone who has gone full paleo --AVR included--has reported a reduction in inflammation, so I have to do it. The pain is maddening.

I'll keep you posted. (..........but cavemen drank gin, right? :unsure: )

Yes, grains and sugar are culprits for my inflammation and so staying away from them has done wonders for me. I do however eat aged cheese and white potatoes but very limited on the potatoes. The potatoes don't seem to give me issues.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Yes, grains and sugar are culprits for my inflammation and so staying away from them has done wonders for me. I do however eat aged cheese and white potatoes but very limited on the potatoes. The potatoes don't seem to give me issues.

This is very encouraging, A--thanks. Actually, anyone I know who has gone paleo says they feel great for doing so.

I'll stick with it--- and let you know. I appreciate you telling us how well you are doing. I remember when you first came on and

at the time, we both still felt so poorly. We have made great strides!

Healing happens. :)

Edited to add:

I have to correct myself. I am not "paleo", I am PRIMAL.

I have done more research and apparently, there are a few distinctions.

Primal it is.

AVR1962 Collaborator
AVR1962
Posted
  • Author

IrishHeart, you are so correct about the pain I was in, it was terrible! I feel for all of the newbies with the same issues. What I can say is 'don't give up, don't stop trying, continue to find what works for you body.' I think people thought I had lost my mind, a real freak but I had to do what made me feel better. I have learned an awful lot in the last 2 years. Feel better now than I have in many years. My husband even mentioned he sees a huge difference in me.

Wanted to share this link also. I have been doing yoga and have finally got rid of the nerve pain (pins and needles) in my feet due to 2 bulging discs in my back but I was also having a different type of nerve pain in one of my feet...podiatrist said the nerves were inflamed....he tried various treatments including a cortizone shot to the foot which lasted about 6 months and then the pain came back. I am also finally noticing a difference in this pain and I don't think it is from the yoga, I could be wrong. I think it is from the nettle tea. Open Original Shared Link

IrishHeart Veteran
IrishHeart
Posted

IrishHeart, you are so correct about the pain I was in, it was terrible! I feel for all of the newbies with the same issues. What I can say is 'don't give up, don't stop trying, continue to find what works for you body.' I think people thought I had lost my mind, a real freak but I had to do what made me feel better. I have learned an awful lot in the last 2 years. Feel better now than I have in many years.

I say the same: never give up. Stay the course. I am slowly coming back from the walking dead and I have learned an awful lot in the last 2 years, too. :)

I am still drinking the nettle tea. Maybe it takes longer for me to see results. I do some yoga as well -- and like you, I feel better--- and I will continue to try anything to reduce inflammation and get out of this pain. Thanks for all the encouraging words. I am thrilled for you!!

kareng Grand Master
kareng
Posted

I stopped the tea. I was having stomach issues. I don't think the tea was the issue, butn I stopped it. My joints are hurting today, but I did a lot of UP and down these bleachers (first step at 2 foot off the ground) and no back rest, etc. Might try to find the tart cherry stuff Patti mentioned.

IrishHeart Veteran
IrishHeart
Posted

I stopped the tea. I was having stomach issues. I don't think the tea was the issue, butn I stopped it. My joints are hurting today, but I did a lot of UP and down these bleachers (first step at 2 foot off the ground) and no back rest, etc. Might try to find the tart cherry stuff Patti mentioned.

Man, bleacher seats are the worst!

I got the Knudsen brand Tart Cherry, K -- I found it in the grocery store in the "natural" aisle.

I throw it in my smoothie or as Patti suggested, it's good in some seltzer with lime. I'm sore from stacking wood, so I hear ya on the "squawking joints". Damn you, inflammation!! (picture me with my fist raised dramatically to the sky....)

GottaSki Mentor
GottaSki
Posted

I'm holding solid at two cups per day - last week went 1.5 days without and ended up with very stiff, achy and sore for a few days...can't prove it was lack of tea...but I am much improved since I've been back on two cups per day. Tuesday will be four weeks on tea and 5 or 6 with no other supplements. Hard to know it's the tea as it may just be the length of time since my diet was tightened up - still promising.

Teen son with sinus and gerd issues that were improved gluten-free, but have never cleared - he's been permanently stuffy for years...is claiming very, very minor improvement at one cup per day and wants to continue for now. I do hear less morning hacking cough from him :)

Adult daughter with very serious AI symptoms from five AIs will be joining our experiment this week.

JNBunnie1 Community Regular
JNBunnie1
Posted

I've been brewing the tea in the morning, and then a few hours reusing the teabag.

Does this have any value or should I be getting a new tea bag each time?

Adalaide Mentor
Adalaide
Posted

I don't use teabags, I just buy dried nettle. Unless it isn't available as an herb I don't commonly buy tea bags, although I do keep some around the house of my favorite bedtime tea out of sheer laziness. Anyway, in both cases, with bags and herbs I always use them twice. I just leave it in a little longer the second time around. Omg, if I ever threw out a teabag or herbs after one steep and my grammy found out? She'd disown me!

GottaSki Mentor
GottaSki
Posted

I use tea bags...have tried making a second cup with them and it was pretty light -- I do let mine steep for a long time with the initial use, so not much left for the second round. My son's lets his steep for only a couple minutes....his may be able to make it for a second round.

JNBunnie1 Community Regular
JNBunnie1
Posted

i just leave the tea bag in the cup until it's cool enough to drink, then I drink it, and brew another. It

definitely gets just as dark the second time around for me. And it tastes the same.

GottaSki Mentor
GottaSki
Posted

If it is just as dark...I'd say you are good to go :)

JNBunnie1 Community Regular
JNBunnie1
Posted

I've been mixing the nettle tea with chamomile, as I've needed the relaxing effects

as of late, and there's only so many cups of tea I need to be drinking in a day. Is

that ok to do? So many questions...!

GottaSki Mentor
GottaSki
Posted

Chemistry according to G :blink: :blink: gle says it goes great together and the combo is suggested as a remedy for hay fever :D

JNBunnie1 Community Regular
JNBunnie1
Posted

LOL, thanks Leeser!

IrishHeart Veteran
IrishHeart
Posted

Chemistry according to G :blink: :blink: gle says it goes great together and the combo is suggested as a remedy for hay fever :D

yes, but will it cure my addiction to Ba--CON!?

(see what I did there? that's a cross-over thread right there! ta da. Nailed it.)

I am drinking my nettle tea right now because you all are saying it helped. I will keep at it..

IH waves at Bunz!! let's sip our tea together.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

IH, are you sure you are not back on the tonic today?

A friend got me some nettle and peppermint so I'll give that a spin I think :)

JNBunnie1 Community Regular
JNBunnie1
Posted

She's been drinkin somethin'..... :ph34r:

IrishHeart Veteran
IrishHeart
Posted

IH, are you sure you are not back on the tonic today?

A friend got me some nettle and peppermint so I'll give that a spin I think :)

what's tonic? tonic water? blech....nope.

She's been drinkin somethin'..... :ph34r:

I told you...tea. Just tea.

Could I multi - quote otherwise? ;) You all know I am mutli-quote challenged.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
    3. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was...
    4. Amy Barnett
      - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

      What is the best liquid multivitamin for celiac disease?
    5. Scott Adams
      0

      Quick Gluten-Free Shrimp Stir-Fry With Crisp Vegetables

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      Question

      By Amy Barnett · Posted

      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.