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AVR1962

Found Something For Inflammation

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I know....sigh, but I do have the GEM of a lifetime GI doc in my corner now!

and even HE said it was okay to "indulge in moderation" and it was better than taking NSAIDS, muscle relaxers or narcotic pain meds. ;)

Seriously, going out to get the Tart Cherry juice tomorrow. Patti's idea is a good one.


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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I was thinking of putting it in the tea or lemonade or lime soda? Perhaps a cherry margarita!

Have a "check-up" tomorrow. Not sure I will mention the tea. She may be pissed that I had the lab tech change what lab tests I got. :ph34r:


 

 

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I was thinking of putting it in the tea or lemonade or lime soda? Perhaps a cherry margarita!

Have a "check-up" tomorrow. Not sure I will mention the tea. She may be pissed that I had the lab tech change what lab tests I got. :ph34r:

Good luck, K. Hope all's well.

No need to mention drinking herbal tea--- unless it is contraindicated with a prescription drug. For example, green tea can cause some issues.

"Do not use green tea without first talking to your doctor if you have

heart problems or high blood pressure,

kidney disease,

an overactive thyroid (hyperthyroidism),

an anxiety or nervous disorder, or

a bleeding or blood clotting disorder or if you take a blood thinner such as warfarin (Coumadin).

Green tea contains a large amount of caffeine and may be problematic if used by people with any of the conditions listed above. You may not be able to use green tea, or your doctor or health care provider may recommend a lower dose or special monitoring."

of course, there are these warnings too:

"Because stinging nettles can produce side effects and interact with other drugs and natural treatments, consult your healthcare practitioner before using it.

Learn more: http://www.naturalnews.com/036080_stinging_nettles_remedies_arthritis.html#ixzz2AAXviF6O

hmmm.... cherry margarita..


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Good luck, K. Hope all's well. (No need to mention drinking herbal tea unless it is contraindicated with a prescription drug. For example, green tea can cause some issues).

hmmm. cherry margarita..

If I have a perscription, I would have to figure that out anyway. A doc wouldn't know.


 

 

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I still haven't tried it yet. I am waiting a bit to see if the nettle tea drinkers all mysteriously stop posting. Total thread silence could be a warning better than on a pill bottle. :blink::unsure::ph34r:

As long as you all are self-experimenting like Halloween mad scientists, you might want to try some rodiola rosea too. It has a rep for making one feel more energetic and positive. Or mullein tea, which has a rep for, dang I think it was GI symptom relief or something like that.

Luckily we all live far enough away from each other that a self sustaining fission reaction isn't likely to develop. I hope. :blink:


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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If I have a perscription, I would have to figure that out anyway. A doc wouldn't know.

exactly.


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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As long as you all are self-experimenting like Halloween mad scientists, you might want to try some rodiola rosea too.

I did try that, and it gave me insomnia. It is supposed to be very good, though--unfortunately I had that side effect.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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As long as you all are self-experimenting like Halloween mad scientists

I did everything suggested by an ND and an "integrative MD" for 2 years pre-DX. THAT baloney was "experimenting like a Mad scientist" <_<

Drinking this one herbal tea (that has minimal side effects) is easily controlled and monitored.

"stinging nettle has possible side effects, including retaining water and upsetting your stomach. Avoid stinging nettle if you are pregnant, as it can possibly cause a miscarriage. It can also change a woman's menstrual cycle."

I'm not seeing how any of these is an issue for me.


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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"stinging nettle has possible side effects, including retaining water"

LOL...the reading I did before I joined this experiment said nettle tea is used to remedy water retention :P


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

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LOL...the reading I did before I joined this experiment said nettle tea is used to remedy water retention :P

Sounds just like all the other medical advice we receive - what's true yesterday is false tomorrow!! I wonder if doctors ever take true/false tests on exams?? T'would be tricky. :blink: Of course, they don't study much of this stuff. :D

ETA: I once took a class where I had to put in my notes "IB" for "instructor believes" so I could get the T/F questions right :lol:


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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Something else that can be tried for inflammation - the thread is so long I don't know if it has already been mentioned -- but I found this on another forum I frequent:

http://www.afibbers.net/forum/read.php?9,133839,133915#msg-133915

Jackie Burgess' recipe for ginger tea:

"Be sure you buy organic ginger root...and I'd avoid anything grown in China even if marked organic.

Slice into "coins" about 2 - 3 inches of organic ginger root which has been thoroughly scrubbed and washed.

Add that to a quart of purified (non-tap) water and simmer just under boiling for about 30 minutes.

It will continue to steep and the flavor will intensify as it sits in the pan.

I add a 3"stick of cinnamon along with the ginger root.

Eventually, the cinnamon adds a dark color to the tea.

Sometimes I also add 3 - 4 whole cloves just for interest.

This is great either hot or iced. Store in the refrigerator. "

I have not tried this myself yet, but intend to. :)


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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Shroom, that sounds delicious. Let us know if you try it. I'll bet it's good for a stomach ache too.


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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I've used ginger tea for stomach aches since ginger ale stopped working for me...it works great :)

Haven't added cinnamon - but will do next time - thanks for sharing Neroli!


-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)

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I did try that, and it gave me insomnia. It is supposed to be very good, though--unfortunately I had that side effect.

Did that for me too Patti-cakes, insomnia city. This time I am going to try it every other day instead of daily. I ahve 700 MG capsules. Maybe every two days just to see what it does.

I did everything suggested by an ND and an "integrative MD" for 2 years pre-DX. THAT baloney was "experimenting like a Mad scientist" dry.gif

Drinking this one herbal tea (that has minimal side effects) is easily controlled and monitored.

"stinging nettle has possible side effects, including retaining water and upsetting your stomach. Avoid stinging nettle if you are pregnant, as it can possibly cause a miscarriage. It can also change a woman's menstrual cycle."

I'm not seeing how any of these is an issue for me.

Me too really,. stomach upset? I can't imagine that happening to any of us. Sounds wildly implausible. :D

I picked mullein today and am going to try making some tea with it. Just for the heck of it really. It is easy to find along roadways and such. It has very soft, velvety leaves. They say to put it in tea bag or cloth to filter out the fuzziness before drinking the tea. Or the fuzziness (hairs) can be irritating.

Has anyone tried Goat's rue? It is supposed to be good for blood sugar control and making milk flow in mommies. There is a commercial med made from Goat's Rue for controlling diabetes, I think it is called Metformin.

Goat's Rue on Wiki


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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Hey Everyone,

Ginger tea is the best! I drink it with lemon and honey.

About the nettle - I don't know if you can find it in the US but when I got bored of the taste of nettle tea, I started to take it in pill form..

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Here's my unscientific results so far:

I have had 1 cup a day (from tea bags). I was noticing that some stiffness in joints seemed less. Yesterday, I didn't have any. Woke up several times with pain in hips and shoulders. My feet and fingers are stiff this morning.

I'm drinking some right now!

YAY!!!!!! My daughter also has trouble with inflammation especially from corn. Recently she ate something with corn, started feeling the inflammation, drank the nettle tea and it went away!!!


Yesterday is not ours to recover but today is ours to win or lose!

Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.

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Trying to follow the thread best I could. It's good to hear some of you all have had good results. I ran out of my initial box I bought from the US and found a couple diffrent types here in Germany. Neither were as strong or as effective. My husband noticed the same, his cramps in the arches of his feet came back. So I have more from the US on order. Glad some of you are getting some relief from symptoms, and I will try the ginger tea myself.


Yesterday is not ours to recover but today is ours to win or lose!

Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.

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Hi everyone. I've only just picked up on this thread as I haven't been active for a while. I'll be shortly heading to the store to pick up some nettle tea to test out...

Inflammation is definitely a problem for me. Before I went gluten free I had no celiac antibodies, but did have a very high ESR (100), and a few other blood abnormalities including a highish TSH. Going gluten free brought the ESR and TSH down to decent levels, and the worst of my symptoms (frequent episodes of migraine, vomiting and D, skin rashes, itchy and burning skin) improved, some quickly and some gradually over about 6 months. However I did still have lingering abdominal pain, head and muscle aches, fatigue and brain fog. An endoscopy after 6 months on the diet confirmed ongoing gut inflammation.

8 months further on with these dragging symptoms, despite eating a strict diet mainly free of unprocessed foods I finally understood a way to manage the problems (although I don't really understand why this should be so). I realised that the brain fog was caused by the paracetamol and codiene painkillers I was frequently using to control the head and body pains (I had not been taking more than the allowed daily dose, but did take them on most days). My brain fog cleared within about two weeks of stopping the medication, and the headaches and body pains also reduced significantly - a sure sign of their overuse!

Once that was out of the way, I could see that the headaches or body aches started only if I ate grains, with rice being the major culprit. Going grain free (with a little corn now and again) has stopped the headaches and body pains immediately, my gut was more comfortable and behaved better, and within a few weeks my energy levels soared. Evidence of finally getting the remaining inflammation under control.

Finally, for me, the inflammation may be allergy-related in some way. Since ditching the painkillers and the rice, I have discovered that any headache or gut pain is alleviated by taking an anti-histamine. It doesn't seem to matter which one, I take either Zantac (and H2) or Piriton (an H1). They both work extremely well for me. I would be really interested to hear if this works for anyone else.

Thanks for reading. I'm now off to buy some nettle tea!

Antihistimines can suppress AI symptoms.

It could also be an allergy...

Antihistimines give me relief after a glutening, and I don't appear to have an allergy to glutenous grains.


Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.

Hashimoto's DX 2005.

Gluten-Free since 6/2011.

DH (and therefore Celiac) dx from ND.

Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

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No supplements, teas, or herbs (or making sacrifices to the gods) seem to help me.

I have decided to just do it full throttle --after doing is "sort of", I went full paleo 4 days ago.

No grains, dairy, legumes, sugar , soy (those last three were easy--I don't eat soy at all, sugar whips me up like a 3 year old

on Christmas Eve and causes insomnia and except for chili and soups, beans are not a big part of my diet. Hate peas. Peanuts are not a big deal to me either). Cheese, rice, white potatoes--these are tough to sacrifice. sigh.

But anyone who has gone full paleo --AVR included--has reported a reduction in inflammation, so I have to do it. The pain is maddening.

I'll keep you posted. (..........but cavemen drank gin, right? :unsure: )


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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Well IH, I am sure cavemen must have at least eaten juniper berries, so maybe that counts?

I had to give up alcohol (and survived). Gin was my fave too.

Well done on going paleo, let us know how it goes. I am thinking about it...

Mw


- Symptoms from 2001, maybe before. Across 20+ years, these have included, vomiting, D, migraines, headaches, recurrent miscarriage, inflammation problems (failure to heal from injuries) brain fog, anxiety and more!

- Elimination diet using Atkins, 2003 – excluded wheat, caffeine, quorn. 2005, excluded sesame, alcohol

- Started diagnosis route April 2012, blood tests, endoscopy – said negative, gluten challenge, clearly something very wrong, had to stop after 3 weeks.

- Gluten Free, August 2012, Corn Free, September 2012. Removed most processed gluten free foods.

- Genetic testing, December 2012 – negative – Diagnosis – Non Celiac Gluten Intolerance (NCGI)

- Elimination diet, January 2013 – all of the above plus dairy, legumes, all grains, sugar, additives, white potatoes, soy. Reintroducing sloooowly now. Health improving.

It's not that I'm so smart, it's just that I stay with problems longer. ~Albert Einstein hidsmile2t.gif

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Well IH, I am sure cavemen must have at least eaten juniper berries, so maybe that counts?

I had to give up alcohol (and survived). Gin was my fave too.

Well done on going paleo, let us know how it goes. I am thinking about it...

Mw

I can give it up, no prob.....I had to do it for almost 3 years when I was sick, but I am not going to like it much, I am sure. :lol:

yeah, Mw.... I used the juniper berry excuse in my head, then I tried potato vodka yesterday (it's a tuber, right), but let's face it, I'm just making excuses.... and come off sounding like a boozy tart at this point.


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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I keep doing the on again off again tea. I get out my pot, get my nettles in it and pour in the water. I'll have a cup and have a cup left for the next day to warm up. Then, I'll forget for a day or two to make some. I'm so absent minded lately. Of course, now that I pretty much can't eat anything maybe I'll just make the tea and then eat the warm soupy nettles. At least I can have those.

Some days I'm less achy, some days more. I don't know if it helps or not, I suppose maybe I should try harder to drink it every day.


"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2011

CRPS DX March 2014

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I LOVE Nettle!! I drink it in an infusion. I get the leaves from a local herbalist, then dump about half a cup in a mason jar, pour boiling water over it, then let it steep in the fridge for at least 24 hours. Then I strain out the leaves, and drink a gulp of it every day. Infusions are more potent than teas. It always makes me feel great! :)


Debilitating tendonitis in both arms in 2003, at age 23, declared "permanent and stationary" by workman's comp doctors.

Fibromyalgia diagnosis in 2010.

Mild hyperthyroidism diagnosis 2011.

Disc Degeneration diagnosis 2012.

Life long battle with hypoglycemia.

Gluten Free since 2010. On Paleo-type diet since May 2011.

Suffered years of brain fog, back spasms, nausea, and recurring connective tissue pain and injuries. After years of misdiagnosis, I did my own elimination diet and discovered a severe reaction to wheat gluten and casein. After going on a grain free, nightshade free, Paleo-ish diet, my symptoms are nearly gone, and I FINALLY KICKED THE BRAIN FOG!

Cheers to health! <3

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. Then, I'll forget for a day or two to make some. I'm so absent minded lately. Of course, now that I pretty much can't eat anything .

Oh honey! you were accidentally glutened recently, right? You are not absent-minded! it's just damn "gluten head" I am so sorry, Addy, ((hugs))

Some people think drinking this tea helps with that gluten head.

I usually double my probiotics, drink extra water to hydrate, take digestive enzymes with meals for a few days, some B complex with coenzymes (Country Life is gluten-free) and wait for it to pass. Hope you feel better soon!


"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif

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