Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Accidental Gluten-Eating

nicolebeth

Recommended Posts

nicolebeth Apprentice
nicolebeth
Posted

Hi, everyone. We decided to take our son (7) gluten-free on October 3. Anyway, until yesterday, we feel pretty good that he's been gluten-free. The new GI we saw was pretty unwilling to classify him as celiac (though acknowledges the existence of non-celiac gluten intolerance) because our son had a negative biopsy in June 2010. After an x-ray, our son was deemed very constipated and was told to take Miralax. While we gave it to him, and were willing to make the nutritionist appointment as recommended by the GI, we also decided, on our own (and after much advice from this forum!) to take him gluten-free. Interestingly, he had NO reaction to the Miralax at all, but feels his stools are more normal now. We've been gradually reducing the Miralax dose (and he started with a whole capful). That adult dose did not incapacitate him as predicted by the GI. Yet, somehow, his stools have become smaller since taking it (and since we've taken him gluten-free).

Anyway, yesterday, he was given Twizzlers at a birthday party. My husband had no clue those have gluten. For some reason, I've known this for several years. I know that less than three weeks is too soon to know anything about whether our son is responding to the diet. He claims to have had no reaction to eating the Twizzlers (I asked him, separately, how he's been feeling, even before mentioning the Twizzlers).

Am I right that three weeks is too soon to know anything? And how much of a setback is this? We're trying to see if our kid starts to grow/gain weight, and realize that, at some point, it might be clear that gluten is not his problem (although, again, he says he feels better, digestively, without it). Are we on Day 1 again because of this?

My husband felt badly, and admits that he would not have messed up if our son was actually diagnosed with celiac. That's why the GI doctor wasn't recommending a gluten-free diet for gluten intolerance. He thinks it's too difficult to follow. It's annoying that he was proven right. My son has otherwise been doing well, even turning down bread from forgetful-but-well-meaning-teachers.

Thank you (and thanks to everyone for the previous advice--it was very helpful!!)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Everyone has hiccups when starting out, dont beat yourself up. My husband accidently fed me 3 wholemeal bread rolls when I was 3 weeks gluten-free.

I am 7 weeks now and getting the hang of it more.

Worth sticking with it and it is unlikely he is back at day 1. If nothing else, you are learning about the diet.

I always stash snacks in my bag for things like parties and playdates - gluten-free for me nut free for my son

Good luck

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Oh, and I am self diagnosed

:)

nicolebeth Apprentice
nicolebeth
Posted
  • Author

Thank you! We did notice that our son, while having no direct complaints, seemed to be constipated (or, at least stopped up) again yesterday. We are pretty sure he actually has celiac, but were hopeful this wouldn't be too much of a setback. Thanks again for the reassurance!

shadowicewolf Proficient
shadowicewolf
Posted

It happens! Don't sweat it!

GottaSki Mentor
GottaSki
Posted

I agree - tell your hubs to try not to feel bad - I know mine always did each time he's made a mistake with ingredients - we both cook. It happens - more frequently in the early days, but accidents will happen again. Each accident will not reset your son back to day one - although he may develop a few more symptoms to accidental glutening as his time gluten-free increases.

Darn210 Enthusiast
Darn210
Posted

We're five and a half years into this and my husband glutened my daughter within the last year with regular Rice Krispies at a hotel . . . "Hey, she eats Rice Krispies at home, she can eat them here" . . . he didn't realize there are two versions.

It happens.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nicolebeth Apprentice
nicolebeth
Posted
  • Author

Thank you, everyone. We will try to mellow out--well, I will (my husband couldn't be any more mellow).

It turns out that the nutritionist decided our son should be treated as having celiac after hearing the family history, the slow growth, the minor symptoms after having the licorice, and our willingness to have started the gluten-free diet on our own. She gave us all the celiac diet materials, talked about vitamins, etc. The GI doc is sticking with non-celiac gluten intolerance, but we're feeling supported by them, which is good!

Takala Enthusiast
Takala
Posted

Funny how much easier the gluten free diet is to follow for just gluten intolerance, if you are sick enough to start out with :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Celiac Diner Sues Olive Garden After Gluten Mix-Up Leads to Medical Emergency (+Video)

    2. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    3. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    4. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    5. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,033
    • Most Online (within 30 mins)
      7,748
    DeeDeeS
    Newest Member
    DeeDeeS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.