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Should I Be Doing More To Help My Son?

krisb

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krisb Contributor
krisb
Posted

Since Kevin's colonoscopy and scope the Dr. said to start the gluten free diet. I did that but is there more I should do to help him heal? He is anemic, I'm assuming from his ulcerated intestine's. I wonder if he should have a suppliment or probiotic. I have a multi vitamin w/flouride but they are so brightly colored and I'm not sure if they have gluten. I don't give them to him. I feel like he needs something but the GI didn't say. I go back to her in 3 weeks.

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nettiebeads Apprentice
nettiebeads
Posted
Since Kevin's colonoscopy and scope the Dr. said to start the gluten free diet. I did that but is there more I should do to help him heal? He is anemic, I'm assuming from his ulcerated intestine's. I wonder if he should have a suppliment or probiotic. I have a multi vitamin w/flouride but they are so brightly colored and I'm not sure if they have gluten. I don't give them to him. I feel like he needs something but the GI didn't say. I go back to her in 3 weeks.

<{POST_SNAPBACK}>

I'm sure you can call your GI and leave a message with her nurse with all of these questions. It does take time to heal, youth is on his side. Just make sure his calories are high protein/high iron to help his anemia, with vita C to help his body absorb the iron. And because of his malabsorption, you may want to ask about a multi vitamin/multi MINERAL supplement. Minerals are often overlooked, but very important too. Is he starting to feel better, I hope?

krisb Contributor
krisb
Posted
  • Author
Is he starting to feel better, I hope?

He says he is feeling better. He hasn't had any belly aches and it looks like he gained 2 pounds already! He hasn't been very gassy either. My younger boys were diagnosed the same time as Kevin. There belly aches are getting better too. They didn't go as long as my oldest with celiac so I believe there damage isn't as bad.

nettiebeads Apprentice
nettiebeads
Posted
He says he is feeling better. He hasn't had any belly aches and it looks like he gained 2 pounds already! He hasn't been very gassy either. My younger boys were diagnosed the same time as Kevin.  There belly aches are getting better too. They didn't go as long as my oldest with celiac so I believe there damage isn't as bad.

<{POST_SNAPBACK}>

Very glad to hear that! But I would try to leave some questions for your GI; if she's a good dr. she would understand your concerns and worries and address them w/o waiting for your next appt by having her nurse call you back or leave a written recommendation with the receiptionist for you to pick up later.

hilaryw Newbie
hilaryw
Posted
Since Kevin's colonoscopy and scope the Dr. said to start the gluten free diet. I did that but is there more I should do to help him heal? He is anemic, I'm assuming from his ulcerated intestine's. I wonder if he should have a suppliment or probiotic. I have a multi vitamin w/flouride but they are so brightly colored and I'm not sure if they have gluten. I don't give them to him. I feel like he needs something but the GI didn't say. I go back to her in 3 weeks.

<{POST_SNAPBACK}>

My daughter (newly diagnosed) is also anemic. We are supposed to be giving her iron. She couldn't tolerate it in liquid form so we give her Solaray cherry chewable multivitamins that have an adequate amount of iron. I called Soloray, they are gluten free. My daughter will have another CBC in 6 weeks, but I think her iron level must be better b/c she looks and feels so much better already. I would definitely want an iron supplement of some form if I were you. Call the doctor, I'm surprised he/she didn't prescribe something. Our doc. was concerned about the anemia (hemoglobin 9.6.)

krisb Contributor
krisb
Posted
  • Author
My daughter (newly diagnosed) is also anemic.  We are supposed to be giving her iron.  She couldn't tolerate it in liquid form so we give her Solaray cherry chewable multivitamins that have an adequate amount of iron.  I called Soloray, they are gluten free.  My daughter will have another CBC in 6 weeks, but I think her iron level must be better b/c she looks and feels so much better already.  I would definitely want an iron supplement of some form if I were you.  Call the doctor, I'm surprised he/she didn't prescribe something.  Our doc. was concerned about the anemia (hemoglobin 9.6.)

<{POST_SNAPBACK}>

He doesn't go back to the GI until the end of October. She is on vacation. Maybe I will bring him to the ped in the meantime. I have a lot of questions that aren't getting answered. I worry about him. I feel like he has so many Dr.'s but they all assume the other is taking care of him.

Kasey'sMom Enthusiast
Kasey'sMom
Posted

My dd Dr. suggested that I give her chlorophyl drops for low iron levels. He said she would probably not like the taste. :P I did however find a company that makes a mint flavored version and they confirmed it is gluten-free and soy free. Here's the company that has the mint chlorophyl.....

Open Original Shared Link

I haven't been able to confirm that Desouza's chlorophyl is gluten-free but the have a wonderful article about chlorophyl.

Open Original Shared Link

Also Probiotics can be very helpful for the intestines. :)

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tarnalberry Community Regular
tarnalberry
Posted
Since Kevin's colonoscopy and scope the Dr. said to start the gluten free diet. I did that but is there more I should do to help him heal? He is anemic, I'm assuming from his ulcerated intestine's. I wonder if he should have a suppliment or probiotic. I have a multi vitamin w/flouride but they are so brightly colored and I'm not sure if they have gluten. I don't give them to him. I feel like he needs something but the GI didn't say. I go back to her in 3 weeks.

<{POST_SNAPBACK}>

If he's iron-deficient anemic, then a multi-vit with iron is a good idea, or making sure he drinks orange juice or something else with vit C with meat or eggs. He shouldn't need flouride in his multi-vit, particularly if you live in an area where your water is flouridated, so I wouldn't worry about that. There are a lot of vitamins (without colors and additives), so you might want to spend a little while browsing a local health food store for something YOU are happy with. (The workers there can help, but they are not the fountain of knowledge that many try to pass themselves off as.)

Guest nini
Guest nini
Posted

When my dd first went gluten-free, we gave her a chewable multi vitamin that I had confirmed was gluten-free... I found it at Dollar Tree of all places... She also drank Pediasure (didn't really like it that much).

I have found a company (Market America) that has a line of supplements (Isotonix) that come in a powder form and you mix them with water in a pre measured cap/cup. They have a childrens "Might A Mins" and I take a digestive enzyme and b-12. Google Market America and you can find a rep through the website. It's kinda like Mary Kay or Avon, you have to find someone who sells it.

Indea88 Newbie
Indea88
Posted

Our Ped GI said Flinestones? There has to be a better multi for kids that is gluten-free. Ive been on the hunt as well. Havent found one yet....

Guest Lucy
Guest Lucy
Posted

don't flinstones contain gluten? I don't have a bottle handy, but I thought they did?

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